Quality of Life in Pediatric Cancer Survivors: Contributions of Parental Distress and Psychosocial Family Risk

Racine, Nicole; Khu, Melanie; Reynolds, Kathleen; Guilcher, Gregory M.T.; Schulte, Fiona

doi:10.3747/co.25.3768

Cited by 29 publications

(30 citation statements)

References 39 publications

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“…The increased survivorship as well as the documented side effects of chemotherapy and radiation have placed emphasis on the concept of health related quality of life (HRQOL) in pediatric cancer patients, both during and after treatment [ 18 , 6 , 13 , 16 ].…”

Section: Introductionmentioning

confidence: 99%

The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children

et al. 2020

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Background The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument, designed to integrate generic and disease specific measures, and includes both self- and proxy-reports. The aim of the study was to assess the reliability and limited validity of the Swedish version of the disease specific Pediatric Quality of Life Inventory 3.0 Cancer Module Scales (PedsQL 3.0), in a sample of Swedish children diagnosed with cancer. Method A total of 94 families at The Queen Silvia Children’s Hospital, Sahlgrenska University participated in the study. The Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL 4.0) and the PedsQL 3.0 were administered to 63 children (aged 5–18 years) with cancer and to 94 parents of children with cancer aged 2–18 years. Results The internal consistency of the PedsQL 3.0, reached or exceeded Cronbach’s alpha values of 0.70 for both -self- and proxy-reports. The PedsQL 4.0 and PedsQL 3.0 were highly correlated (r = 0.94 for proxy-reports and r = 0.91 for self-reports), indicating convergent validity. Conclusion PedsQL 3.0 Cancer Module Scales can be used as a valuable tool for measuring cancer-specific HRQOL in child populations, both in research and in clinical practice.

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Section: Introductionmentioning

confidence: 99%

The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children

et al. 2020

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“…The BSI has been used in a variety of settings, either with adolescents or adults, and, consequently, its psychometric properties have been widely investigated and appraised. The original factor structure has been intentionally designed and developed for adults and adolescents with a range of psychiatric disorders, even though the instrument has also been subsequently tested among cancer patients or individuals suffering from other chronic-degenerative disorders, among others 6,7…”

Section: Introductionmentioning

confidence: 99%

“…The original factor structure has been intentionally designed and developed for adults and adolescents with a range of psychiatric disorders, even though the instrument has also been subsequently tested among cancer patients or individuals suffering from other chronic-degenerative disorders, among others. 6 , 7 …”

Section: Introductionmentioning

confidence: 99%

<p>Psychometric properties of the Brief Symptom Inventory in nomophobic subjects: insights from preliminary confirmatory factor, exploratory factor, and clustering analyses in a sample of healthy Italian volunteers</p>

Adawi¹,

Zerbetto²,

Re³

et al. 2019

PRBM

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BackgroundThe Brief Symptom Inventory (BSI), developed by Derogatis in 1975, represents an important standardized screening instrument that enables one to quantitatively assess psychological distress and psychiatric disorders. The BSI is a 53-item self-report scale, measuring nine dimensions that can be summed up to reflect three global indices, including the General Severity Index (GSI). In the era of new information and communication technologies, nomophobia (“no mobile phobia”) is an emerging disorder, characterized by the fear of being out of mobile phone contact. Nothing is known, however, about the factor structure and reliability of the BSI in a population of nomophobic subjects. This study aimed at addressing this gap in knowledge.MethodsA sample of 403 subjects aged 27.91±8.63 years (160 males, 39.7% of the entire sample, and 243 females, 60.3%), recruited via snowball sampling, volunteered to take part in the study. The Italian versions of the Nomophobia questionnaire and the BSI were administered. Exploratory factor analyses, confirmatory factor analyses, and clustering analysis were carried out together with correlation analysis, analysis of variance, and multivariate regression analysis.ResultsFor each BSI subscale, scores were significantly higher than the norms. The nine subscales exhibited acceptable-to-good Cronbach’s alpha coefficients, varying from 0.733 for psychoticism to 0.875 for depression. Overall, the reliability of the entire instrument proved to be excellent (alpha coefficient=0.972). Furthermore, all BSI subscales as well as BSI synthetic indexes correlated with nomophobia in a significant way. Stratifying the population according to the severity of nomophobia (mild, 206 individuals, 51.1% of the sample; moderate, 167 subjects, 41.4%; and severe, 30 individuals, 7.4%), the GSI score could distinguish (P<0.001) between mild and moderate (0.99±0.71 vs 1.32±0.81) and between mild and severe (0.99±0.71 vs 1.54±0.79) nomophobia, although not between moderate and severe nomophobia (P>0.05). Similar patterns could be found for the other subscales of the BSI. Finally, looking at the fit indexes, the second-order 9-factor model best fit the data compared with the Derogatis 1-factor model.ConclusionThe findings of our study show that the BSI is a reliable and valid instrument with acceptable psychometric properties, and can be administered to populations of nomophobic subjects.

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“…Parental psychosocial functioning has been found to be positively correlated with psychosocial functioning in children. Children with cancer whose parents have severe distress and PTSS may receive insufficient emotional support and have difficulties coping with their situation [9].…”

Section: The Impact On Patients and Familiesmentioning

confidence: 99%

Pschychosocial support for distressed parents of Pediatric cancer patients

Suhag¹,

Bs²,

Vats³

et al. 2019

IPCC

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Survival rates for childhood cancer diagnosed before the age of 18 years have improved due to aggressive multidisciplinary therapeutic approaches. Parents have been found to be psychologically affected by their child's diagnosis, treatment, side-effects of the treatment and child's health status. Though parental emotional difficulties, such as depression and anxiety, have been reported to decrease after cancer treatment, parents continue to experience chronic post-traumatic stress (PTS) for a long time after their child's treatment. Parents may also report persistent feelings of loss, uncertainty, and anxiety about the recurrence of the disease or the emergence of late effects in their child. Such illness-specific distress of the parents should be assessed in order to fully understand their psychosocial functioning. Sensitizing health care professionals to the identification of this factor and its associated difficulties is essential for the implementation of efficient intervention strategies. General health of parents plays an important role in continuation of care for the sick child and the treatment follow up. Parental distress and PTS are associated with the emotional and behavioral functioning of children with cancer. There is a genuine need to offer programs of psychological attention to parents of children with cancer in order to reduce their emotional and cognitive psychopathology and to help them adopt adequate coping strategies.

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Quality of Life in Pediatric Cancer Survivors: Contributions of Parental Distress and Psychosocial Family Risk

Abstract: Background Pediatric survivors of childhood cancer are at increased risk of poor quality of life and social-emotional

Cited by 29 publications

References 39 publications

The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children

The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children

<p>Psychometric properties of the Brief Symptom Inventory in nomophobic subjects: insights from preliminary confirmatory factor, exploratory factor, and clustering analyses in a sample of healthy Italian volunteers</p>

Pschychosocial support for distressed parents of Pediatric cancer patients

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