Quality of life in the care home: a qualitative study of the perspectives of residents with multiple sclerosis

Riazi, Afsane; Bradshaw, Siobhan; Playford, E Diane

doi:10.3109/09638288.2012.672539

Cited by 19 publications

(41 citation statements)

References 32 publications

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“…Even for those discharged to longterm care facilities, it has been shown that skills learned at rehabilitation are empowering and strengthen the feeling of independence. 37,38 Future work aimed to further quantify the effect of returning home on QoL would allow a ''value-based healthcare'' 39 approach to assess effectiveness of rehabilitation.…”

Section: Discussionmentioning

confidence: 99%

Does Specialized Inpatient Rehabilitation Affect Whether or Not People with Traumatic Spinal Cord Injury Return Home?

Cheng

Plashkes

Shen

et al. 2017

Journal of Neurotrauma

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Return to living at home is an important patient-reported outcome following traumatic spinal cord injury (tSCI). Specialized inpatient rehabilitation assists such patients in maximizing function and independence. Our project aim was to describe those patients receiving specialized rehabilitation after tSCI in Canada, and to determine if such rehabilitation improved the likelihood of returning home. This cohort study utilized data from the Rick Hansen Spinal Cord Injury Registry (RHSCIR) to identify patients with tSCI discharged from 1 of 18 participating acute specialized spine facilities between 2011 and 2015 to either 1 of 13 participating specialized rehabilitation facilities, or to another discharge destination. To determine if specialized rehabilitation affected likelihood of returning home, multiple logistic regressions and propensity score matchings were performed to account for age at injury, gender, neurological severity and level, acute length of stay (LOS), and region of residence. The χ test was used to compare rate of return home between matched groups. Of the 1599 patients included, 71% received specialized rehabilitation. Receiving specialized rehabilitation was a significant and strong predictor of return to home after controlling for covariates (adjusted odds ratio = 3.1; 95% confidence interval [CI], 1.6-5.9). The rate of return to home was significantly higher in the matched rehabilitation group than the no rehabilitation group (98% vs. 87%, p = 0.0004). For the matched patients, an extra 11 patients returned home for every 100 patients receiving specialized rehabilitation. However, effect of age on returning home requires further investigation. Improving access to specialized rehabilitation could potentially reduce discharges to nursing homes or other non-home destinations.

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Section: Discussionmentioning

confidence: 99%

Does Specialized Inpatient Rehabilitation Affect Whether or Not People with Traumatic Spinal Cord Injury Return Home?

Cheng

Plashkes

Shen

et al. 2017

Journal of Neurotrauma

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“…Interviews with persons with MS in residential care settings suggest that they may find it difficult to interact with other residents with more severe cognitive impairment. 45 This presents a unique challenge in the delivery of person-centered care that is aligned with the individual strengths, preferences, and needs of minority patient populations in residential care settings. Organizational commitment to personcentered care may not be sufficient to ensure that the social needs of persons with MS are addressed given care providers' orientation toward practice using a medical paradigm.…”

Section: The Canadian Journal Of Neurological Sciencesmentioning

confidence: 99%

Clinical Profile of Persons with Multiple Sclerosis Across the Continuum of Care

Turcotte

Marrie

Patten

et al. 2017

Can. J. Neurol. Sci.

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“…MS seems to have a detrimental effect on the functional performance of many daily activities. The disease characteristics, the unpredictable nature of the disease, and functional disabilities experienced by people with MS seems to significantly affect their life (Riazi, Bradshaw, & Playford, 2012). Studies have also found that psychosocial factors such as lower coping, negative mood, reduced self-efficacy, and decreased perceived support effect their life and eventually lead to reduced quality of life in people with MS (Farran, Ammar, & Darwish, 2016).…”

Section: Introductionmentioning

confidence: 99%

Living with multiple sclerosis: A Jordanian perspective

Al‐Sharman

Khalil

Nazzal

et al. 2018

Physiotherapy Res Intl

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Background Multiple sclerosis (MS) symptoms are very heterogeneous and may lead to reduced physical, cognitive, and psychosocial functioning that can consequently impair aspects of individual's life. Many studies have examined the living experiences of individuals with MS and its impact on their daily lives. In developing countries and particularly in Jordan, there has been little attempt to conduct studies exploring the experiences of people living with MS. Such knowledge will provide a background to hidden aspects of human concepts, such as culture, perception, and attitudes about chronic diseases. Objective The purpose of this qualitative study was to explore and describe the daily living experiences and challenges of Jordanian individuals with MS. Methods A qualitative design was utilized. Sixteen individuals with MS took part in the study; they were interviewed and divided into 4 focus groups. Conversations were digitally recorded followed by a verbatim transcription. Transcripts were analysed using thematic analysis and validated via researcher triangulation and peer checking. Results Experiences of 16 Jordanian individuals with MS who participated in this study were categorized into the following major themes: (a) experiences related to the disease itself and (b) experiences related to the healthcare system. Disease‐related experiences include physical decline, psychosocial withdrawal, and fear of the future. Participants' experiences with the healthcare system include difficulty of diagnosis, poor communication and rapport with healthcare providers, and lack of awareness about MS and its rehabilitation. Conclusions Findings of this study suggests that more attention should be given to the people with MS in Jordan. In particular, awareness about the disease should be improved among healthcare providers and the general public. Furthermore, rehabilitation services should be emphasized during the management of MS disease.

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Quality of life in the care home: a qualitative study of the perspectives of residents with multiple sclerosis

Cited by 19 publications

References 32 publications

Does Specialized Inpatient Rehabilitation Affect Whether or Not People with Traumatic Spinal Cord Injury Return Home?

Does Specialized Inpatient Rehabilitation Affect Whether or Not People with Traumatic Spinal Cord Injury Return Home?

Clinical Profile of Persons with Multiple Sclerosis Across the Continuum of Care

Living with multiple sclerosis: A Jordanian perspective

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