Quality of life in young people with congenital heart disease is better than expected

Reiner, Barbara; Oberhoffer, Renate; Ewert, Peter; Müller, Jan

doi:10.1136/archdischild-2017-314211

Cited by 45 publications

(47 citation statements)

References 37 publications

(69 reference statements)

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“…A recent study carried out in relation to 1248 children, aged 7-17, compared the self-assessed general QoL using KINDL-R in 514 children with congenital heart disease and 734 healthy ones. The QoL results were higher than those obtained in our study: 78.6 ± 9.8 for children with heart problems, and 75.6 ± 10.1 for healthy ones [14]. KINDL-R was also used to assess the QoL of younger children than those participating in our study -Villalonga-Olives et al showed the following average results of KINDL-R on the basis of a group of 317 preschoolers: 67.88 ± 17.3 for boys, and 71.70 ± 16.37 for girls [15].…”

Section: Discussioncontrasting

confidence: 95%

Quality of life in allergic rhinitis - children’s and their parents’ perspective in polish urban and rural population

Sikorska-Szaflik

Sozańska

2020

Health Qual Life Outcomes

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Background: Allergic rhinitis is a common chronic condition in the paediatric population. No reports regarding the quality of life in children with allergic rhinitis in the Polish population have been found in the available literature. The aim of this study was to assess and compare the quality of life in patients with allergic rhinitis reported by children and their parents living in a city and in rural areas, and to evaluate the possible relationships between the quality of life and the severity of symptoms. Methods: Two hundred and eight children with allergic rhinitis participated in the study (89 girls, aged 6-17, mean age 11.7 ± 3). Children were asked to evaluate their rhinitis symptoms by using two scales: the Total 4 Symptom Score and the Visual Analogue Scale. The quality of life assessment included the KINDL-R questionnaire. Results: Both for the T4SS and the VAS scale the severity of symptoms in children with seasonal rhinitis was significantly higher than in children allergic to perennial allergens. The quality of life total scores on the KINDL questionnaire was 45.6 ± 8.5 for the children and 73.7 ± 10.7 for the parents. In all the domains, except for physical health, the child's quality of life was rated significantly higher by parents than by children. The biggest discrepancy occurred in the domains: social contacts and family. Conclusions: Allergic rhinitis can disrupt the quality of life. Parents tend to overestimate their children's quality of life comparing to the children's own assessment. The quality of life in children with allergic rhinitis correlated with the severity of the clinical symptoms of the disease. Evaluation of the quality of life in children is an essential issue in clinical investigation of patients with allergic rhinitis. It is of great importance to ask children themselves about their quality of life than rely only on parental opinion.

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Section: Discussioncontrasting

confidence: 95%

Quality of life in allergic rhinitis - children’s and their parents’ perspective in polish urban and rural population

Sikorska-Szaflik

Sozańska

2020

Health Qual Life Outcomes

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“…A recent systematic review and meta-analysis showed that this was also true for older adult patients (mean age = 61 years old) with coronary heart disease (Le et al, 2018 ). This may not be the case for younger congenital heart disease patients (7–17 years old) who had QoL levels identical to those of healthy controls (Reiner et al, 2019 ). However, in the context of implantable cardioverter defibrillators (ICD), younger patients were found to cope with a lower QoL than older patients (Friedmann et al, 2006 ).…”

Section: Discussionmentioning

confidence: 99%

What Do We Know About Young Adult Cardiac Patients' Experience? A Systematic Review

et al. 2020

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Background: Studies interested in patients coping with a cardiac illness usually focus on children, teenagers, and adults above the age of 55. Apart from the field of congenital heart diseases, there is a general lack of literature regarding young adult cardiac patients (18-55 years old) who seem to cope with psychosocial issues. Therefore, the objective of this paper was to gather all the research carried out concerning the psychological experiences of young adult cardiac patients. Methods and Results: A comprehensive, systematic review was conducted on quantitative, qualitative, and mixed-method studies in PsycINFO, PubMed, ScienceDirect, and Cochrane Library databases. Out of the 10,747 articles found, 32 were included. While we aimed to include many cardiac diseases, coronary patients dominated the data. Five main themes emerged: emotional states (depression, anxiety, emotional distress, and stress), quality of life (health-related quality of life, physical functioning, and sexuality), adjusting to the medical environment (coping with the disease, health behavior change, financial barriers, and interactions with medical professionals), social life (social support and work), and identity (parenthood, new challenges, and new meanings). The results highlighted that their levels of depression, anxiety, stress, and quality of life were sometimes worse than in the general population and than in older and younger patients coping with a cardiac illness. Social isolation, identity changes, work, and parenthood were the specific challenges that this population had to face. Furthermore, young adult cardiac patients showed worse health behavior profiles than the general population and felt that they lacked information from professionals, especially regarding sexuality. Compared to men, women had worse psychosocial outcomes, especially regarding depression, stress, emotional distress, and quality of life. Conclusions: Young adult cardiac patients are to be considered with their own identity and challenges. They may be in need of specific interventions, some dedicated to women, and better communication is necessary with their families and professional caregivers so as to improve the patient's mental health, quality of life, coping skills, and adherence.

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“…No statistical significant association was observed between age and satisfaction with life in the current study. Reiner et al declared that young patients with CHD reported their health-related quality of life as high as their healthy peers (23).…”

Section: Discussionmentioning

confidence: 99%

Comparison of Life Satisfaction in Patients with Congenital Heart Diseases

Farzinfar

Abtahi

Ordoubadi

2019

Zahedan J Res Med Sci

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Background: Congenital heart diseases (CHD) constitute a wide range of heart abnormalities. Major advances in surgical treatments have led to a rapidly growing number of surviving individuals. Living well to most people is as important as living longer. Currently, there are few studies on this group of patients regarding their satisfaction with life. Objectives: This study attempts to compare satisfaction with life among CHD patients. Methods: In this cross-sectional study, patients with cyanotic and acyanotic CHD were enrolled. Satisfaction with Life was assessed using SWLS. Results: Eighty patients (52.05% females) with cyanotic (21.3%) and acyanotic CHD were enrolled. The patients with cyanotic CHD were as satisfied with their life as the patients with acyanotic CHD. There were no statistical significant differences between cyanotic and acyanotic patients regarding satisfaction with life. Younger age was associated with a higher degree of satisfaction with life. Women and patients with a history of corrective cardiac surgery were more satisfied with their life. Correlations between satisfaction with life and age and sex were not statistically significant. Conclusions: We found that the patients with cyanotic CHD were as satisfied with their life as acyanotic patients. The results of our study indicate that life satisfaction was not associated with age, sex, and the history of corrective cardiac surgery.

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Quality of life in young people with congenital heart disease is better than expected

Abstract: The high HRQoL in young patients with CHD suggests that they can cope well with their disease burden. This holds true for all severity classes and diagnostic subgroups.

Cited by 45 publications

References 37 publications

Quality of life in allergic rhinitis - children’s and their parents’ perspective in polish urban and rural population

Quality of life in allergic rhinitis - children’s and their parents’ perspective in polish urban and rural population

What Do We Know About Young Adult Cardiac Patients' Experience? A Systematic Review

Comparison of Life Satisfaction in Patients with Congenital Heart Diseases

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