Quality of Life of Caregiver Spouses of Veterans With Bilateral Lower Extremity Amputations

Moradi, Ali; Ebrahimzadeh, Mohammad Ali; Soroush, Mohamad Reza

doi:10.5812/traumamon.21891

Cited by 13 publications

(10 citation statements)

References 29 publications

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“…Some studies reported that the education level of caregivers could influence their HRQoL (Alshubaili et al, 2008 ; Moradi et al, 2015 ; Ndikuno et al, 2016 ). The present study confirmed that FCs of patients with GD with a higher level of education had better physical component scores than those with lower education levels.…”

Section: Discussionmentioning

confidence: 99%

Family caregivers of rare disease: A survey on health‐related quality of life in family caregivers for Gaucher disease patients in China

Han

et al. 2021

Molec Gen & Gen Med

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Background Rare diseases affect the health‐related quality of life (HRQoL) of patients and their family caregivers (FCs). However, limited evidence is available on the HRQoL of FCs of patients with Gaucher disease (GD). This study aimed to assess HRQoL and related factors among FCs of patients with GD in China. Methods A cross‐sectional online survey was conducted with 49 FCs recruited by convenience sampling. Participants completed the Medical Outcome Study Short Form‐36 (SF‐36), Zung's Self‐Rating Anxiety Scale, Zung's Self‐Rating Depression Scale, the Multi‐dimensional Scale of Perceived Social Support, the Herth Hope Index, and a questionnaire about FCs’ and patients’ sociodemographic characteristics. Single‐sample t tests, one‐way analysis of variance, and multivariate linear regression analysis were used to analyze the data analysis. Results Participating FCs had significantly lower scores in all eight SF‐36 domains compared with the general population in China (p < 0.01). FCs’ gender, education, daily care time, anxiety, and the perceived disease severity of patients were significant predictors of SF‐36 physical component summary scores. Caregiving help from others, anxiety, perceived disease severity, and medical insurance type were significant predictors of SF‐36 mental component summary scores. Conclusion The findings showed FCs of patients with GD had lower HRQoL. There is an urgent need to address the health concerns of FCs of people with rare diseases including their HRQoL.

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Section: Discussionmentioning

confidence: 99%

Family caregivers of rare disease: A survey on health‐related quality of life in family caregivers for Gaucher disease patients in China

Han

et al. 2021

Molec Gen & Gen Med

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“…In these women, because of the sensibility of their husband in social relations, disorder, and limited social interactions have been observed (Vagharseyyedin, 2015). Care of chronic patient cause's impaired social relationships and feelings of loneliness, depression, and life dysfunction (Moradi et al, 2015). A qualitative study on veterans' wives stress disorder after the accident t in Iran showed the negative impact on family structure and function are particularly spouses of veterans.…”

Section: Discussionmentioning

confidence: 99%

Threatened Health in Women: A Qualitative Study on the Wives of War Veterans with Post-Traumatic Stress

Akoondzadeh¹,

Ebadi²,

Nouhi³

et al. 2017

GJHS

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Introduction and Aim: Post-traumatic stress disorder causes distress and dysfunction in the life of the wives of veterans, which causes physical and mental health problems with the continuation of life. This study examined the life experiences of wives of war veterans with post-traumatic stress. Materials & Methods:This qualitative study using qualitative content analysis with the participation of 16 wives of war veterans with post-traumatic stress in Golestan province in Iran was conducted in 2015. Data was collected through semi-structured interviews and by purposive sampling and continued until data saturation. Data analysis was done continuously and simultaneously with data collection by content analysis method. Findings:Four main categories and nine sub-categories including mental health (mental health problems and the memories), physical function (physical injuries and sleep disorders), captivity in life (humiliation, lack of independence in life), isolation (impairment in social interaction), dysfunction life (damage to the sons, the defect in family interactions) were the main findings of this study, which causes health threats. Conclusion:Spouses of veterans have many problems in their daily lives and caregivers by understanding their needs and enhancing information systems, and social support can improve the function of their life.

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“…Lower extremity amputation causes physical, psychological, and emotional dysfunction, necessitating caregiver's support for rehabilitation and general health care . Several previous studies have associated amputation care with psychological and financial burden and physical and mental stress on the family; moreover, amputation care has an impact on social relationships.…”

Section: Introductionmentioning

confidence: 99%

Effect of lower extremity amputation on caregiving burden in caregivers of patients with diabetic foot: Prospective cohort study

Çamur

Batıbay

Bayram

2020

International Wound Journal

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Lower extremity amputation as a treatment of diabetic foot ulcer is probably a major burden for the patient's family and friends, who typically act as caregivers and support the patient in coping with the physical disabilities and emotional distress. In the present prospective study, we investigated the effects of different lower extremity amputation levels for diabetic foot ulcer treatment on caregivers of patients with diabetes using the Zarit Burden Interview (ZBI‐12) scale. Patients with diabetic foot ulcers who underwent unilateral major amputation (above‐below knee) and minor amputation of foot (heel sparing) and their caregivers were requested to volunteer to participate in this study from June 2016 to December 2018. The ZBI‐12 form was completed immediately preoperatively and 3 and 6 months after postoperatively. In the minor amputation group, the mean age of the 51 patients was 72.1 years. In the major amputation group, the mean age of the 88 patients was 73.7 years. Both groups of caregivers of patients with minor amputation and major amputations showed a significant improvement in ZBI‐12 score when compared preoperatively and at 3‐ and 6‐month follow‐up visits. The mean ZBI‐12 score was significantly higher in the major than in the minor amputation group in preoperative and all postoperative visits. The absence of the ankle joint in the below‐ or above‐knee amputation renders it more difficult for the amputee to quickly learn the use of prosthesis, thereby increasing the burden of the patient and caregivers. We found that lower extremity amputation for the treatment of chronic diabetic foot ulcers has significantly favourable effect on the caregiver burden, and thereby heel sparing was considerably more effective for the caregiver burden.

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Quality of Life of Caregiver Spouses of Veterans With Bilateral Lower Extremity Amputations

Cited by 13 publications

References 29 publications

Family caregivers of rare disease: A survey on health‐related quality of life in family caregivers for Gaucher disease patients in China

Family caregivers of rare disease: A survey on health‐related quality of life in family caregivers for Gaucher disease patients in China

Threatened Health in Women: A Qualitative Study on the Wives of War Veterans with Post-Traumatic Stress

Effect of lower extremity amputation on caregiving burden in caregivers of patients with diabetic foot: Prospective cohort study

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