Quality Of Life of Children with Thalassemia in Alexandria

Mahmoud, Maha; Helaly, Nadia; Mohammed, Abeer Abd El-Razik Ahmed; Kamal, M.A.

doi:10.21608/asalexu.2019.206578

Cited by 3 publications

(3 citation statements)

References 9 publications

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“…Analysis of demographic characteristics showed that the majority of patients (40.59%) were within age group (9)(10)(11)(12) and regarding gender, more than half of participants (50.5%) were female. These findings agree with a study results stated that the majority of patients were within age group (10_12) [22]. The results also supported by another study that showed that the highest percentage was female [23] .Regarding to the resident, the majority of participants (70.3%) were from urban areas.…”

Section: Discussionsupporting

confidence: 92%

Psychosocial Aspects of Children with Thalassemia in Mosul City

Ali,

Dhahir

2024

JOCAMR

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Background: Thalassemia is a widespread heritable disease in Mediterranean region, the assessment of psychological and social status of thalassemic children is an important issue. Objectives: The main aim is to assess psychosocial status of children with thalassemia and to find out the association between some demographic characteristics and psychosocial aspects. Methodology: A cross-sectional study of (101) randomly selected thalassemic children. The study was conducted at Al-Hadbaa Specialist Hospital for blood diseases and bone marrow transplantation, Mosul City, Iraq for the period from 1st November 2023 to 5th January 2024.In order to collect the required data, a questionnaire was developed based on the standards of the pediatric quality of life Scale (PedsQoL). Results: shows that the largest proportion of samples belong to the age group (9-12) years and the highest percentage of the study sample is female (50.5%).Regarding education, the table presents that the highest percentage of patients are student (67.3%). The table also shows that (65.3%) of patients have family history of thalassemia. For the number of blood transfusion, the highest percentage was (every 3 weeks) to be (59.4%). The mean+SD emotional domain score was 1.8733±0.602, social domain score was 1.2436±3.55. Conclusion: The present study indicates that psychosocial aspects were range between moderate for emotional functioning and good for social functioning. And there is significant association between some demographic variables and psychosocial functioning of thalassemic children. Recommendations: The current study recommended to provide psychological and social support units for thalassemic children to help them to adapt with the disease by reducing negative thoughts about themselves and building a positive self-image.

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Section: Discussionsupporting

confidence: 92%

Psychosocial Aspects of Children with Thalassemia in Mosul City

Ali,

Dhahir

2024

JOCAMR

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“…So, the necessary interventions that focus on the affected quality of life domain should be done to improve their QOL. Bedsides, this finding was in line with Mahmoud et al, (2019) in their study about "Quality Of Life of Children with Thalassemia in Alexandria ". They reported that Thalassemia is negatively affecting the children's QOL.…”

Section: Effect Of Self -Determination Theory Based Intervention On Q...supporting

confidence: 82%

Effect of Self -Determination Theory Based Intervention on Quality of Life Among School Age Children with Thalassemia

Badawy,

Okby,

Omar

et al. 2023

Menoufia Nursing Journal

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Background: Self-determination theory (SDT) play an integral role in the management of many children with thalassemia. Purpose: The purpose of the study was to assess the effect of the self-determination theory based intervention on quality of life among school age children with thalassemia. Research Design: A quasi experimental design was used. Setting: It was conducted the pediatric thalassemia unit in Menoufia University Hospital. Sample: Purposive sample of 70 children with thalassemia at the previously mentioned setting. Instruments: Three data collection instruments were used: structured interviewing questionnaire, Basic Psychological Needs Satisfaction and Frustration Scale and Standardized QOL checklist. Results: the result of this study showed that there were very highly statistical significant differences between children's knowledge on posttest compared to pretest (3.6±1.1 Vs 1.7±0.6 respectively). Also, children who received self-determination theory based intervention had improved their autonomy, relatedness, competency and quality of life dimensions. Conclusion: It was concluded that implementation of self-determination theory improved knowledge and quality of life dimensions for children with thalassemia on post and follow-up tests than pretest. Recommendation: self-determination theory based intervention about thalassemia should be developed and provided for children in pediatric thalassemia units.

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“…This possible reason was backed by the results obtained from the survey of the level of social skills and getting along. 17 A study by Abdel Hakeem GL found physical performance of thalassemia patients to be most affected in all the domains by using Peds QoL 4.0 scale. 18 Mean age of our study population was 8.56 ± 4.526 for cases and 7.94 ± 4.528 for controls.…”

Section: Discussionmentioning

confidence: 99%

Health-related Quality of Life in Pediatric and Adolescent Patients with Transfusion Dependent ß-Thalassemia

Qayyum,

Hasan,

Akram

et al. 2023

J. Bahria Uni. Med. Dent. Coll.

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Objective: To evaluate the impact of disease on physical, educational, psychological and social wellbeing of transfusion dependent thalassemia major patients. Study Design and Setting: A case control study conducted in Thalassemia Centre of Pediatric Ward, PNS Shifa Hospital Karachi for a duration of six months from March 2019 till August 2019. Methodology: Seventy cases of thalassemia major patients were enrolled along with a control group of hundred patients. The enrolled cases were registered thalassemia patients of pediatric hematology clinic. The controls are healthy, age and sex matched participants and their history was taken to compare with the diseased participants. Peds QL4.0 generic core scale proforma was filled to assess health related quality of life (HRQoL) in these patients. Results: Mean age of patients was 8.56 ± 4.526 and 7.94 ± 4.528 for controls. The greatest level of difficulty was seen in thalassemia patients in physical functioning, health activities and emotional functioning domains with a score of 9.4 ± 6.85, 9.186 ± 5.724 and 6.4 ± 3.5 respectively. The total score in terms of increasing difficulty was 51.84 ± 21.26 in patients while it was 15.06 ± 10.26 in control group with a significant difference (p = 0.05). There was also significant association of splenectomy with health-related scores. Conclusion: This study reiterated the impact of blood transfusion, iron chelation and other clinical dependencies of thalassemia major patients on their quality of life. The questionnaire data provided valuable information regarding impact on daily life activities and its difference in comparison to controls.

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Quality Of Life of Children with Thalassemia in Alexandria

Cited by 3 publications

References 9 publications

Psychosocial Aspects of Children with Thalassemia in Mosul City

Psychosocial Aspects of Children with Thalassemia in Mosul City

Effect of Self -Determination Theory Based Intervention on Quality of Life Among School Age Children with Thalassemia

Health-related Quality of Life in Pediatric and Adolescent Patients with Transfusion Dependent ß-Thalassemia

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