Quality of life of children with language delays

Agt, Heleen M. E. van; Essink‐Bot, Marie‐Louise; Stege, H.A. van der; Ridder-Sluiter, J.G. de; Koning, Harry J. de

doi:10.1007/s11136-004-6013-z

Cited by 23 publications

(6 citation statements)

References 30 publications

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“…Even modest deficits in language abilities are known to significantly impact a child's day-to-day function, communication, and to negatively influence social interaction. 48 The results of this study are consistent with previous reports and recommendations. The Cardiac Neurodevelopmental Outcome Collaborative indicates expressive language delays are a common concern for children with critical CHD and should be monitored.…”

Section: Discussionsupporting

confidence: 93%

Language abilities in preschool children with critical CHD: a systematic review

et al. 2022

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Context: Children with critical CHD are at risk for neurodevelopmental impairments, including delays in expressive and receptive language development. However, no study has synthesised the literature regarding language abilities in children with this condition. Objective: We summarised the literature regarding expressive and receptive language in preschool children with critical CHD. Data sources: MEDLINE, Embase, Scopus, Child Development and Adolescent Studies, ERIC, PsycINFO, and CINAHL. Study selection: We included studies published between January, 1990 and 1 July, 2021, focused on children aged ≤5 years with critical CHD requiring a complex cardiac procedure at age <1 year. Language ability was documented using standardised, validated tools assessing both expressive and receptive language outcomes. Data extraction: Data (study, patient and language characteristics, and results) were extracted by two reviewers. Results: Seventeen studies were included. Among children 2–5 years old with critical CHD, there were statistically significant deficits in overall (standardised mean difference: –0.46; 95 % confidence interval: –0.56, –0.35), expressive (standardised mean difference: –0.45;95 % confidence interval: –0.54, –0.37), and receptive (standardised mean difference: –0.32; 95 % confidence interval: –0.40, –0.23) language compared to normative data. Results reported as medians were similar to meta-analysis findings. Subgroup analysis showed that children with univentricular physiology had lower language scores than children with biventricular physiology. Conclusions: Preschool children with critical CHD had statistically significantly lower language outcomes compared to expected population norms. Healthcare professionals should test early and often for language deficits, referring to individually tailored supports.

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Section: Discussionsupporting

confidence: 93%

Language abilities in preschool children with critical CHD: a systematic review

et al. 2022

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“…They seem to be less energetic and less active than typically developing children. Moreover, parents tend to state that children with SLI may have a poor understanding of others and consequently, they are less capable of playing with other children, are less at ease, and are less sure of themselves when in the company of others [5]. As they progress through the school system, adolescents with SLI are at risk of becoming targets for victimization, and this can adversely impact their social integration [30].…”

Section: Discussionmentioning

confidence: 99%

“…Three other studies with varied sample sizes suggested that despite a history of mild to severe SLI, adolescents and young adults with SLI did not differ significantly from control subjects in subjective perceptions of their quality of life [8–10]. These conflicting reports may be explained by the use of different measures of HRQOL used in each study (TACQOL [4], TAPQOL [5], CHQ-PF 28 [6], HRQOL 17D [7]), the variety of age categories (ranging from preschool children to adults), or differences in the educational and cultural systems of the countries studied. In light of the apparent lack of consensus regarding the HRQOL of children with SLI in the literature, no clear conclusion can be drawn from the current published data.…”

Section: Introductionmentioning

confidence: 99%

Health-Related Quality of Life for Children and Adolescents with Specific Language Impairment: A Cohort Study by a Learning Disabilities Reference Center

Hubert-Dibon¹,

Bru

Guen³

et al. 2016

PLoS ONE

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ObjectivesTo assess the health-related quality of life (HRQOL) of children with specific language impairment (SLI).Study DesignIn a prospective sample at a Learning Disabilities Reference Center, proxy-rated HRQOL (KIDSCREEN-27) was assessed for children with SLI and unaffected children from January 1, 2014 to March 31, 2015. Quality of life predictors for children with SLI were evaluated by recording the length and number of speech therapy and psychotherapy sessions and the specific school organization that the children had participated in. The KIDSCREEN scores of the two groups were compared using nonparametric statistics.ResultsThe questionnaires were completed by the parents of 67 children with SLI and 67 unaffected children. For children with SLI, the mean HRQOL scores were significantly lower for physical and psychological well-being, autonomy and parent relation, social support, and school environment compared to the reference group, controlling for age and parental education (β = -6.7 (-12.7;-.7) P = 0.03, β = -4.9 (-9.5;-.3) P = 0.04, β = -8.4 (-14.2;-2.6) P = 0.005, β = -11.6 (-19.5;-3.7) P = 0.004, β = -7.1(-12.4;-1.7) P = 0.010, respectively). Multivariate analyses in the group of children with SLI found that children who had undergone psychotherapy sessions or who had been enrolled in specific schooling programs had reduced HRQOL scores in social support and school environment and that children who were in a special class had higher scores in physical well-being.ConclusionChildren with SLI had significantly lower HRQOL scores as compared to unaffected children. Measurement of HRQOL could serve as one of the strategies employed throughout the follow-up of these individuals to provide them with the most appropriate and comprehensive care possible.

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“…A few additional studies have used proxy-reporting to explore the HRQOL of children with communication disorders. Parents of 3-year-old children with a language disorder completed the TNO-A21 Pre-school Children Quality of Life Questionnaire, which revealed that all children with language disorders, irrespective of the criteria used for identifying a language problem, had a lower HRQOL, discriminating 3-year-old children with language problems from those without [ 13 ]. In a follow-up study the parents who reported a persistent language disorder in their 8-year-old child, completed the Child Health Quality of Life Questionnaire - parent form 28 and rated their child’s general behavior, self-esteem, mental health, attitude towards schoolwork, emotional stability and psychosocial summary score all significantly lower than children without language disorders [ 14 ].…”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life from the perspective of children with severe specific language impairment

Nicola

Watter

2015

Health Qual Life Outcomes

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BackgroundThis study aimed to evaluate the feasibility and reliability of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales (PedsQL™) for use by children with severe specific language impairment (SLI) and their parent, and to explore the health-related quality of life of children with severe SLI. We hypothesized that the PedsQL™ would be a suitable measure, and identify lower health-related quality of life compared to the healthy population sample, particularly in school and social functioning.MethodsForty-three out of 61 children with severe SLI enrolled at a dedicated school from February 2010 until September 2011 agreed to participate. Children and parents completed the PedsQL™ separately with support as required.ResultsThe PedsQL™ proved to be suitable for this cohort. Children perceived themselves to be at risk of impaired social and physical functioning, rendering the total score below the population mean. Parents rated social and emotional functioning at risk of impairment, with the psychosocial and total summary score consequently below the population mean. Physical functioning had the largest child/parent difference, with children rating themselves below the cut-off score, and parents rating their children above the cut-off score.ConclusionsThis measure can be used with this group. Our group of children with severe SLI reported lower health-related quality of life than the healthy population mean as perceived by both the child and the parent. Health professionals working with children who have SLI need to consider not only a child’s impairment, but also their wellbeing and participation by incorporating self- and proxy-reports into assessment in order to promote meaningful therapeutic outcomes that impact positively on a child’s life.

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Quality of life of children with language delays

Cited by 23 publications

References 30 publications

Language abilities in preschool children with critical CHD: a systematic review

Language abilities in preschool children with critical CHD: a systematic review

Health-Related Quality of Life for Children and Adolescents with Specific Language Impairment: A Cohort Study by a Learning Disabilities Reference Center

Health-related quality of life from the perspective of children with severe specific language impairment

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