Quality of life of family caregivers of patients with advanced cancer

Nayak, Malathi G; George, Anice; Vidyasagar,; Kamath, Asha

doi:10.9790/1959-03217075

Cited by 24 publications

(29 citation statements)

References 7 publications

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“…Some categories of this concept, that is, patient-related stress, concern about future, stress, depression and grief, financial and physical problems, family challenges, sleep-related changes, psychological functional problems, loneliness and caregiving pressure are consistent with some research (4,7,8,(14)(15)(16)(17)(18). However, two sub-categories, namely, annoying and dysfunctional beliefs and resentment from the relatives are not seen in prior research.…”

Section: Discussionsupporting

confidence: 63%

“…Palliative care is also the most important part of the caregiving in the last stages of life (2) which is provided for the life-threatening diseases, and it is an inclusive approach which is focused on enhancing life in the last stages (6). Several researches from around the world have been conducted on family caregivers of cancer patients in the terminal phase, suggesting that their common problems include depression (7), financial pressure, low quality of life, cessation of work and running out of financial savings (8), grief and anxiety (9). There are certain ethnic, racial, value-related, cultural belief-based and family system characteristics, which might cause the caregivers of different countries to experience their role differently (10), and according to the knowledge of the researcher, up to now in Iran, no reliable research has been conducted on family caregivers of cancer patients in the terminal phase and in accordance with care conditions in the country.…”

Section: Introductionmentioning

confidence: 99%

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Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

2017

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Background: Cancer is a disease which affects both the patient and family members. Family caregivers of these individuals have been recognized as the undercover patients, the problems and experiences of whom should be evaluated. The present research has been aimed to provide a deep understanding of the experiences and consequences of care in family caregivers of patients with cancer in the terminal phase. Methods: The present research has been conducted by a qualitative content analysis method. The sampling method was purposeful and it was progressed until data saturation. The data were gathered through in-depth semi-structured interviews, and then, were analyzed via content analysis. Results: From the total 18 interviews, 413 initial concepts (codes) were obtained. Finally, three main concepts (categories) were extracted after data analysis, including: 1, inhibition; 2, challenges and consequences of care; and 3, supportive-palliative factors. Conclusions: According to the family caregivers' condition in Iran, that is, caring overload, informational and emotional inhibition, and spirituality as a way of alleviation and adaptability, the emergent need for counseling and psychological-socialinformational-spiritual support particular to this culture, seems to be necessary.

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Section: Discussionsupporting

confidence: 63%

Section: Introductionmentioning

confidence: 99%

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

2017

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“…Financial burden is one of the factors that influence the low quality of life of caregivers. Caregivers should stop working or reduce their savings for treatment and medication (Nayak et al, 2014).…”

Section: Picture 1 Structural Model On Path Analysismentioning

confidence: 99%

Effect of Locus of Control, Self-Efficacy, and Personality Type on the Quality of Life among Caregivers of Schizophrenia Patient in Godean Sub-District, Yogyakarta

Mulyanti

Adriani

Rahardjo

2017

J EPIDEMIOL PUBLIC HEALTH

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Background: Caregivers of schizophrenia patients have an important role in fulfilling the need of patients. This task implicates on care burden and psychological problems on the caregivers. The quality of life of the caregivers may have important impact on the caring process. This study aimed to examine effect of locus of control, self-efficacy and personality type on the quality of life among caregivers of schizophrenia patient. Subjects and Method: This study was analytic observational with cross-sectional design. It was carried out at Godean Sub-District, Yogyakarta, from March to April 2017. A sample of 102 caregivers of schizophrenia patient were selected for this study by fixed diseases sampling. The dependent variable was quality of life. The independent variables were age, gender, personality type, locus of control, self-efficacy, family concern, family income. The data was collected by questionnaire, and analyzed by path analysis. Results: Higher quality of life of caregivers was affected by self-efficacy (b=0.46; SE=0.15; p<0.001), extrovert personality (b=0.21; SE=0.10; p=0.01), and higher family income (b=0.18; SE=0.05; p=0.02). Self-efficacy was affected by better family concern (b=0.22, SE=0.16; p=0.02) and extrovert personality (b=0.33; SE=0.06; p<0.001). Conclusion: Higher quality of life of caregivers was directly affected by self-efficacy, extrovert personality, and higher family income. Higher quality of life of caregivers was indirectly affected by better family concern and extrovert personality.

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“…The Scale was adapted to Latin American average for Lizman (2008, Cronbach's alpha of 0.92 quoted in Beltrán [8] ), where the score is considered less than 47 points: no overload, from 47 to 55 mild overload and more than 55 points as intense overload; Part III: 36 items of the SF-36 (Short Form -36 Health survey, developed for the study of medical outcomes: medical Outcomes Study, USA 1991), these 36 items are grouped into eight dimensions: physical function, physical role, bodily pain, general health, vitality, social function, emotional role and mental health. Each dimension was structured with a score from 0 to 100, so that the total score of the scale is the average of the scores of the items that comprise it.…”

Section: Data Collection Tools and Assessmentsmentioning

confidence: 99%

“…Caring for a person with cancer generates dependency on both, changes in their lives at personal, family, work and social levels even a negative impact on their physical and psychological health, physical and emotional overload that may lead the IC to become a patient and abandon the family1.Other factors that could coexist influencing the quality of life of the IC is the income, occupation, education, family type, marital status, gender, age, culture, education, time devoted to care, employment, emotional and physical health, which cause detrimental alterations to the quality of life (QOL) of the IC and therefore on the assisted patient. [5] Studies claim that if the IC suffers from physical, emotional condition, among others, it affects the quality of care offered to cancer patients and thus disrupts the QOL of that patient [2,[6][7][8] likewise, some evidences [9,10] report the social, psychological, physical impact on the QOL and the family as a whole, not only to the IC but also the patient.…”

Section: Introductionmentioning

confidence: 99%

The relationship of the quality of life and burden of informal caregivers of patients with cancer in Lima, Peru

Córdova

Canales

Krederdt

et al. 2016

JNEP

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Objective: To evaluate quality of life the Informal cancer (IC) patients' caregivers offer to relatives suffering from cancer and to determine their relation with the IC work overload. Methods: The study was correlational cross-sectional design. The convenience sample included 164 caregivers of relatives diagnosed with cancer who are receiving chemotherapy treatment in a General Hospital in Lima, Peru. The instrument of "Zarit Rating Scale", and The Medical Outcomes Study Short Form, version 2(SF-36v2)SF36 were used, along with questions on sociodemographic data to the caregiver and the cancer patient. Descriptive statistics and Spearman's ρ were used. Results: The 85% of IC referred to perform this role for more than three months, while 15% from one to two months. More than a half (60%) cohabited with the patient. Most (74%) had greater burden. The areas of highest percentages of overload indicated fear and dependency of the IC towards the relatives diagnosed. The results on quality of life presented an average below 60% in social functions, vitality, mental health and general health. The results of significant correlation between quality of life and overload are: general health, social functioning and pain (p: .01-.02). Conclusions: The results described the caregivers group of people with cancer as a vulnerable group and in need of attention. The requirements described are referred to aspects, such as mental and social health. The effect of their role as caregiver has an effect on the intense overload for most of them, threatening their physical and mental health. Further research is suggested, as well as implementing programs of attention to this vulnerable group.

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Quality of life of family caregivers of patients with advanced cancer

Cited by 24 publications

References 7 publications

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

Effect of Locus of Control, Self-Efficacy, and Personality Type on the Quality of Life among Caregivers of Schizophrenia Patient in Godean Sub-District, Yogyakarta

The relationship of the quality of life and burden of informal caregivers of patients with cancer in Lima, Peru

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