Quality of life of patients living with psoriasis: a qualitative study

Meneguin, Silmara; Godoy, Natália; Pollo, Camila Fernandes; Miot, Hélio Amante; Oliveira, César de

doi:10.21203/rs.3.rs-42042/v4

Cited by 7 publications

(13 citation statements)

References 7 publications

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“…So, those patients report that doctors are not prepared to face the situation and minimize the problem, leaving them with feelings of rejection and with the gravity of their problems underestimated. Hence, there is a great need to support the individual issues of their lives beyond illness (18) as cited at (19) .…”

Section: Resultsmentioning

confidence: 99%

Effect of Individualized Guidance on Knowledge and Self-Care Practices of Psoriasis Patients

Elzehiri

Srour

Salime

2022

Tanta Scientific Nursing Journal

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Background: Psoriasis is a chronic, immune-multisystem, inflammatory disease that affects the skin and joints and there is a necessity for monitoring and educating patients about benefits as well as risks that may be correlated. Aim: Evaluate the effect of individualized guidance on knowledge and self-care practices of psoriasis patients. Subjects and methods:Design: A quasiexperimental design was utilized. Setting: The study was conducted at the Dermatology outpatient clinic at El-Mansoura University Hospitals. Sample: Purposive sample of 100 adult patients diagnosed with psoriasis from both sexes and they equally divided into study & control groups, (50) patients for each one. Tools: Two tools were used for data collection; the first tool was a structured interviewing questionnaire, and the second tool was the psoriasis disability index. Results: Mean age of the studied psoriasis patients in the study and control group were 44±8.6 and 42± 7.9 respectively. There was a highly statistically significant difference between the study and the control group in all items of psoriasis knowledge (p-value > 0.001). As well there were highly statistically significant differences between both groups post individualized guidance implementation regarding reported skincare and psoriasis affected areas in all items with (p-value > 0.001). There was a significant difference between the study and control group in the total level of disability post individualized guidance (P > 0.001). Conclusion: Implementation of individualized guidance had a positive effect on patients' knowledge and overall reported self-care practices including skincare and self-esteem with a decrease of the level of psoriasis disability, additionally a positive correlation between total scores of knowledge and total scores of reported practices were found. Recommendations: Individualized guidance should be recommended as a nursing intervention protocol during the care of every patient with psoriasis.

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Section: Resultsmentioning

confidence: 99%

Effect of Individualized Guidance on Knowledge and Self-Care Practices of Psoriasis Patients

Elzehiri

Srour

Salime

2022

Tanta Scientific Nursing Journal

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“…Psoriasis can have an effect on patient psychological and social well-being due to symptoms and the visibility of the affected area. 17,18 Addressing individual, team, and systemic gaps could provide psoriasis patients with more coherent, patient-centered care and thus reduce the impact of the disease on their quality of life. Although the current study revealed collaborative gaps between primary care providers, dermatologists, and rheumatologists, it would be beneficial for optimal patient care to ensure HCPs collaborate strategically and effectively with mental health professionals in educational interventions.…”

Section: Discussionmentioning

confidence: 99%

Healthcare Providers Face Numerous Challenges in Treating Patients with Psoriasis: Results from a Mixed-Methods Study

Murray

Crowley²,

Gooderham

et al. 2021

Journal of Psoriasis and Psoriatic Arthritis

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Background The paradigm shift toward biologic medications in psoriasis care requires healthcare providers (HCPs) to become acquainted with mechanisms of action and safety profiles of these new treatments to confidently use them in practice. A better understanding of this paradigm shift is necessary to provide adequate education for HCPs in psoriasis care. Objectives This study assessed clinical practice gaps and challenges experienced by HCPs caring for patients with psoriasis. Methods A mixed-methods approach was used to identify practice gaps and clinical challenges of dermatologists, rheumatologists, primary care physicians, physician assistants, and nurse practitioners with various levels of clinical experience in academic and community-based settings. Qualitative and quantitative data were collected sequentially. Interviews were transcribed and thematically analyzed. Results A total of 380 psoriasis care providers in Canada and the US participated in this study. Analysis revealed challenges in establishing an accurate diagnosis of psoriasis (including screening for sub-type and distinguishing psoriasis from other skin conditions), selecting treatment (particularly regarding recently approved treatments), monitoring side effects, and collaborating with other HCPs involved in psoriasis care. Conclusion These findings highlight educational needs of HCPs involved in psoriasis care that could have repercussions on accurate and timely diagnosis of the condition, treatment initiation, side effect monitoring, and continuity of care. Findings provide a starting point for clinicians to reflect on their practice and for the improvement of continuing professional development interventions that would bridge these gaps.

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“…In this study, improved pruritus and lesion visibility might be the major contributions in patient's satisfaction in addition to safety concerns. 31 So improved plaque severity and the decreased pruritus with topical cyclosporine would improve patient's quality of life suggesting that this treatment method would be clinically useful.…”

Section: Discussionmentioning

confidence: 99%

Efficacy of the topical cyclosporine cream assisted by fractional carbon dioxide laser vs topical clobetasol cream for the treatment of plaque psoriasis: Randomized comparative study

Helmy

batreek²,

Fadeel³

et al. 2021

J of Cosmetic Dermatology

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Background In mild psoriasis, topical agents remain the mainstay of treatment. However, the available treatments are not satisfactory for a significant proportion of patients in many terms such as efficacy and safety. Because of these deficits, augmentation of therapeutic effect seems desirable. This study aims To evaluate the efficacy of topical cyclosporine cream, delivered by fractional CO2 laser vs the efficacy of topical clobetasol cream for the treatment of mild to moderate plaque psoriasis. Patients and methods Twenty‐two patients with chronic plaque psoriasis involving <10% BSA were included in this study. They were randomly allocated into 2 groups. In Group A, patients were instructed to apply cyclosporine cream twice daily for 5 consecutive days per week immediately after fractional carbon dioxide laser session. While in Group B, clobetasol cream was applied twice daily for 5 consecutive days per week until complete clearance or for a maximum of 10 weeks. The efficacy was objectively assisted clinically and by histopathology by using the scores and skin biopsy. Results There was a significant improvement of erythema, plaque elevation, and scaling (p < 0.001) with the use of topical cyclosporine cream delivered by the aid of fractional CO2 laser, compared to base line. However, the improvement was more significant with topical clobetasol cream. Conclusion Laser‐assisted delivery of topical cyclosporine can provide comparable clinical and pathological improvement to that of clobetasol in the psoriatic plaques. These findings were apparent in patients with less widespread disease. However, topical steroid showed more improvement.

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Quality of life of patients living with psoriasis: a qualitative study

Cited by 7 publications

References 7 publications

Effect of Individualized Guidance on Knowledge and Self-Care Practices of Psoriasis Patients

Effect of Individualized Guidance on Knowledge and Self-Care Practices of Psoriasis Patients

Healthcare Providers Face Numerous Challenges in Treating Patients with Psoriasis: Results from a Mixed-Methods Study

Efficacy of the topical cyclosporine cream assisted by fractional carbon dioxide laser vs topical clobetasol cream for the treatment of plaque psoriasis: Randomized comparative study

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