Quality-of-life of patients with Parkinson’s disease

Dauwerse, Linda; Hendrikx, A.; Schipper, Kerstin; Struiksma, Chris; Abma, Tineke

doi:10.3109/02699052.2014.916417

Cited by 19 publications

(23 citation statements)

References 31 publications

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“…3.3 | Narrative analysis of papers by social role category 3.3.1 | General social functioning General social functioning included papers (n = 16) that described overall socialization or social functioning but did not discuss a specific social role. [21][22][23] Papers also described treatments and interventions to improve Parkinson's symptoms including "typical" PD treatments (ie, medication and deep brain stimulation [DBS] surgery), exercise interventions (eg, tango class), and educational programs (eg, psychoeducation). Gunnery et al described that facial masking was associated with social functioning problems such as social rejection, although this finding was attenuated after controlling for depression.…”

Section: Key Pointsmentioning

confidence: 99%

“…40 Receiving support from their family helped make people living with Parkinson's feel more secure and motivated to maintain their treatment regimen. 23,42,58 Additionally, for some people living with Parkinson's who were unable to work, parenting or family relationships became a higher priority. Eleanor Singer compared people living with Parkinson's to age-matched controls and found no difference in parental role satisfaction.…”

Section: Family Rolementioning

confidence: 99%

“…59 Soleimani et al revealed that people living with Parkinson's were concerned about losing social connectedness because of their disease (preventing them from leaving the house or increasing their desire to remain isolated to conceal symptoms). 23,61 Fleming et al reported a divide in how friendships changed with PD. 23,61 Fleming et al reported a divide in how friendships changed with PD.…”

Section: Friendship Rolementioning

confidence: 99%

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Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Perepezko

Hinkle

Shepard

et al. 2019

Int J Geriat Psychiatry

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Objectives Parkinson's disease (PD) is a progressive neurodegenerative disease that often impedes activities of daily living (ADL) and social functioning. Impairment in these areas can alter social roles by interfering with employment status, household management, friendships, and other relationships. Understanding how PD affects social functioning can help clinicians choose management strategies that mitigate these changes. Methods We conducted a mixed‐methods systematic review of existing literature on social roles and social functioning in PD. A tailored search strategy in five databases identified 51 full‐text reports that fulfilled the inclusion criteria and passed the quality appraisal. We aggregated and analyzed the results from these studies and then created a narrative summary. Results Our review demonstrates how PD causes many people to withdraw from their accustomed social roles and experience deficits in corresponding activities. We describe how PD symptoms (eg, tremor, facial masking, and neuropsychiatric symptoms) interfere with relationships (eg, couple, friends, and family) and precipitate earlier departure from the workforce. Additionally, several studies demonstrated that conventional PD therapy has little positive effect on social role functioning. Conclusions Our report presents critical insight into how PD affects social functioning and gives direction to future studies and interventions (eg, couple counseling and recreational activities).

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Section: Key Pointsmentioning

confidence: 99%

Section: Family Rolementioning

confidence: 99%

Section: Friendship Rolementioning

confidence: 99%

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Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Perepezko

Hinkle

Shepard

et al. 2019

Int J Geriat Psychiatry

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“…Factors found to affect communication, and consequently quality of life, are impairment of speech function (e.g., vocal loudness) and also changes in cognition (e.g., reduced verbal fluency and memory problems) [8]. In a systematic review, Barnish et al [9] found a positive correlation between greater cognitive impairment and more pronounced communication difficulties in 9 of 10 studies.…”

Section: Introductionmentioning

confidence: 99%

Speech and Communication Changes Reported by People with Parkinson’s Disease

Schalling

Johansson

Hartelius

2017

Folia Phoniatr Logop

108

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Background: Changes in communicative functions are common in Parkinson’s disease (PD), but there are only limited data provided by individuals with PD on how these changes are perceived, what their consequences are, and what type of intervention is provided. Aim: To present self-reported information about speech and communication, the impact on communicative participation, and the amount and type of speech-language pathology services received by people with PD. Methods: Respondents with PD recruited via the Swedish Parkinson’s Disease Society filled out a questionnaire accessed via a Web link or provided in a paper version. Results: Of 188 respondents, 92.5% reported at least one symptom related to communication; the most common symptoms were weak voice, word-finding difficulties, imprecise articulation, and getting off topic in conversation. The speech and communication problems resulted in restricted communicative participation for between a quarter and a third of the respondents, and their speech caused embarrassment sometimes or more often to more than half. Forty-five percent of the respondents had received speech-language pathology services. Conclusions: Most respondents reported both speech and language symptoms, and many experienced restricted communicative participation. Access to speech-language pathology services is still inadequate. Services should also address cognitive/linguistic aspects to meet the needs of people with PD.

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“…A quantitative study [30] reported motor signs as a significant predictor of communication in the PDQ-39. In addition, much qualitative research [31–33] has vividly described how patients with PD perceived their movement and communication difficulties to be distressing and socially embarrassing. Such stigmatized feelings might subsequently lead to decreased social interaction.…”

Section: Discussionmentioning

confidence: 99%

Responsiveness of the short-form health survey and the Parkinson’s disease questionnaire in patients with Parkinson’s disease

Hwang

Hsu

et al. 2017

Health Qual Life Outcomes

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BackgroundThe responsiveness of a measurement instrument is important for understanding its ability to detect changes in the progression of a disease. We examined and compared the internal and external responsiveness of the 36-item Short-Form Health Survey (SF-36) and the 39-item Parkinson’s Disease Questionnaire (PDQ-39) in patients with Parkinson’s Disease (PD).MethodsSeventy-four patients with PD were evaluated using the SF-36 and PDQ-39 at baseline and again after one year. In addition, their motor signs, motor difficulties of daily living, and depressive symptoms were assessed as external criteria. The internal responsiveness was examined using effect size, standardized response mean, and the Wilcoxon signed rank test. The external responsiveness was examined using receiver operating characteristic curves, correlation analyses, and regression models.ResultsBoth instruments were partially sensitive to changes during the 1-year follow-up and able to discriminate between patients with improved versus deteriorated motor signs. In addition, both were similarly responsive to changes in the motor difficulties of daily living; the SF-36 appeared to be more sensitive than the PDQ-39 to changes in depressive symptoms.ConclusionsThe SF-36 and the PDQ-39 were acceptably internally and externally responsive during the 1-year follow-up.Electronic supplementary materialThe online version of this article (doi:10.1186/s12955-017-0642-8) contains supplementary material, which is available to authorized users.

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Quality-of-life of patients with Parkinson’s disease

Cited by 19 publications

References 31 publications

Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Social role functioning in Parkinson's disease: A mixed‐methods systematic review

Speech and Communication Changes Reported by People with Parkinson’s Disease

Responsiveness of the short-form health survey and the Parkinson’s disease questionnaire in patients with Parkinson’s disease

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