Quality of Life of People with Dementia in Nursing Homes

Dichter, Martin N.; Meyer, Gabriele

doi:10.1007/978-3-319-49832-4_11

Cited by 5 publications

(3 citation statements)

References 78 publications

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“…A higher score indicates better QoL. Due to normalisation of the QUALIDEM total score for all severities of dementia, all patients’ scores are consistent and comparable 28…”

Section: Methodsmentioning

confidence: 81%

Quality of life of patients with dementia in acute hospitals in Germany: a non-randomised, case–control study comparing a regular ward with a special care ward with dementia care concept

et al. 2019

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ObjectivesTo identify factors that predict the quality of life (QoL) of patients with dementia in acute hospitals and to analyse if a special care concept can increase patients’ QoL.DesignA non-randomised, case–control study including two internal medicine wards from hospitals in Hamburg, Germany.Setting and participantsIn all, 526 patients with dementia from two hospitals were included in the study (intervention: n=333; control: n=193). The inclusion criterion was an at least mild cognitive impairment or dementia. The intervention group was a hospital with a special care ward for internal medicine focusing on patients with dementia. The control group was from a hospital with a regular care ward without special dementia care concept.Outcome measuresOur main outcome was the QoL (range 0–100) from patients with dementia in two different hospitals. A Bayesian multilevel analysis was conducted to identify predictors such as age, dementia, agitation, physical and chemical restraints, or functional limitations that affect QoL.ResultsQoL differs significantly between the control (40.7) and the intervention (51.2) group (p<0.001). Regression analysis suggests that physical restraint (estimated effect: −4.9), psychotropic drug use (−4.4) and agitation (−2.9) are negatively associated with QoL. After controlling for confounders, the positive effect of the special care concept remained (5.7).ConclusionsA special care ward will improve the quality of care and has a positive impact on the QoL of patients with dementia. Health policies should consider the benefits of special care concepts and develop incentives for hospitals to improve the QoL and quality of care for these patients.

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“…A higher score indicates better QoL. Due to normalisation of the QUALIDEM total score for all severities of dementia, all patients’ scores are consistent and comparable 28…”

Section: Methodsmentioning

confidence: 81%

Quality of life of patients with dementia in acute hospitals in Germany: a non-randomised, case–control study comparing a regular ward with a special care ward with dementia care concept

et al. 2019

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“…To address gaps in the MDS left by these, that could not be addressed through routine NHS and social care data, additional measures were added to each software system. These included seven validated measures of: delirium (I-AGeD) [19]; cognitive impairment (MDS Cognitive Performance Scale (MDSCPS)) [22]; functional independence (Barthel index)[23]; and Quality of Life (QoL) from the Adult Social Care Outcomes Tool Proxy (ASCOT-Proxy-Resident) [24,25], EuroQol 5 domain 5 level proxy version (EQ-5D-5L Proxy 2) (EuroQol)[26], ICECAP-O [27], and QUALIDEM [28].…”

Section: Methodsmentioning

confidence: 99%

Piloting a minimum data set for older people living in care homes in England: a developmental study

Gordon,

Rand,

Crellin

et al. 2024

Preprint

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BackgroundWe developed a prototype minimum data set (MDS) for English care homes, assessing feasibility of extracting data directly from digital care records (DCRs) with linkage to health and social care data.MethodsThrough stakeholder development workshops, literature reviews, surveys and public consultation we developed an aspirational MDS. We identified ways to extract this from existing sources including DCRs and routine health and social care datasets. To address gaps we added validated measures of delirium, cognitive impairment, functional independence and Quality of Life to DCR software. Following routine health and social care data linkage to DCRs, we compared variables recorded across multiple data sources, using a hierarchical approach to reduce missingness where appropriate. We reported proportions of missingness, mean and standard deviation (SD) or frequencies (%) for all variables.ResultsWe recruited 996 residents from 45 care homes in three English Integrated Care Systems. 727 residents had data included in the MDS. Additional data were well completed (<35% missingness at wave 1). Competition for staff time, staff attrition, and software-related implementation issues contributed to missing DCR data. Following data linkage and combining variables where appropriate, missingness was reduced (<=4% where applicable).DiscussionIntegration of health and social care is predicated on access to data and interoperability. Despite governance challenges we safely linked care home DCRs to statutory health and social care datasets to create a viable prototype MDS for English care homes. We identified issues around data quality, governance, data plurality and data completion essential to MDS implementation going forward.Key pointsThere is a range of resident information across DCRs, health and social care datasets, which can be combined to provide a more complete picture of residents.We developed and implemented a Minimum Dataset linking care home digital care records to statutory health and social care records.Information governance for linking data across multiple data owners and data processors is complex and time consuming.Standardisation across Digital Care Records Systems would enable data to be used more effectively across the care home sector.Establishing shared priorities across key stakeholders interested in care home data is essential for effective MDS implementation.

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“…HRQoL is a dynamic and multidimensional construct that refers to how health affects the ability of a person to function, as well as their self‐perceived physical, mental, and social well‐being (Ruano et al, 2013) and is a key measurement in the evaluation of patient‐based health outcomes. Therefore, HRQoL is one of the most important measures used to study the effectiveness of pharmacological and psychosocial interventions (Bárrios et al, 2013; Dichter & Meyer, 2017). In general, researchers in the few studies designed to examine HRQoL and MCI (Chang et al, 2017; Samy et al, 2019; Stites, Harkins, Rubright, & Karlawish, 2018) have shown that older people with this pathology have a lower HRQoL compared with older people who are cognitively healthy.…”

Section: Introductionmentioning

confidence: 99%

Psychometric properties of the Spanish version of the mild cognitive impairment questionnaire

Clement‐Carbonell

Cabañero‐Martínez

Fernández‐Alcántara

et al. 2020

Research in Nursing & Health

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The prevalence of mild cognitive impairment (MCI) has significantly increased in recent years. No specific instruments are available in Spanish for assessing health-related quality of life (HRQoL) in people with MCI. The aim of this study was to adapt transculturally and validate the mild cognitive impairment questionnaire (MCQ) in Spanish people with MCI.A standardized transcultural adaptation process was carried out, and the structural equivalence of the Spanish version of the scale was examined. In addition, we studied the reliability and construct validity of the instrument. The sample comprised 100 people with MCI, with a mean age of 79.5 years. In a confirmatory factor analysis, we found the instrument had a one-factor structure and adequate internal consistency. Related to the construct validity, we found meaningful relationships with measures of HRQoL and depression. Our results indicate that the Spanish version of the MCQ is a reliable and valid tool for measuring HRQoL in Spanish patients with MCI. The availability of specific tools, such as the MCQ allows nurses to evaluate new intervention strategies to improve the HRQoL of these patients. Furthermore, this scale can be used by researchers and clinicians to improve the standards of care provided to this population. K E Y W O R D S linguistic validation, mild cognitive impairment, psychometric properties, quality of life

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Quality of Life of People with Dementia in Nursing Homes

Cited by 5 publications

References 78 publications

Quality of life of patients with dementia in acute hospitals in Germany: a non-randomised, case–control study comparing a regular ward with a special care ward with dementia care concept

Quality of life of patients with dementia in acute hospitals in Germany: a non-randomised, case–control study comparing a regular ward with a special care ward with dementia care concept

Piloting a minimum data set for older people living in care homes in England: a developmental study

Psychometric properties of the Spanish version of the mild cognitive impairment questionnaire

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