Quality of life of primary caregivers of children with cerebral palsy: a comparison between mother and grandmother caregivers in <scp>Anhui</scp> province of <scp>China</scp>

Wu, Jiunn-Liang; Zhang, J.; Hong, Yongfeng

doi:10.1111/cch.12464

Cited by 21 publications

(19 citation statements)

References 21 publications

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“…The same results were confirmed during 2017 by Wu et al conducting research in China, using SF 36 questionnaires to assess the QOL of mothers of children with cerebral palsy (25). Lee et al (2019), in their study, obtained a very poor value in QOL of mothers of children with cerebral palsy (26).…”

Section: Discussionsupporting

confidence: 60%

Quality of life of mothers who have children with developmental disabilities

Mahmutović

Veladžić

Hadžiomerović

et al. 2020

JHSCI

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Introduction: The primary source of strength and support is the child’s family. A special role in caring for a child with developmental disabilities is played by his mother. The objective of this research is to find out the assessment of the quality of life (QOL) of disabled children mothers as well as to research the relation of sociodemographic variables of the respondents, as specified in this study and estimate the quality of their life and health.Methods: The cross-sectional study was performed by the use of the descriptive-analytical method. In a targeted association of families which have children and persons with difficulties was conducted this research on a sample of 100 registered mothers. The research instrument was the standardized questionnaire for QOL, the World Health Organization QOL-BREF and the users’ records of the mothers in the association.Results: The average age of the respondents was M = 48. 01 ± 11. 68. About 62% of the respondents are married, 54% have a high school diploma, 67% are not employed, 68% of the respondents did not declare to have health problems, and among those who declared to have health problems, the most common disease was diabetes mellitus. The average number of household members was M = 3. 44 members. The number of the household members was significantly and positively related to the domain of social interaction (rs = 0. 219; p < 0. 05), the domain of the environment (rs = 0. 220; p < 0. 05) and to the general QOL (rs = 0. 227; p < 0. 05). The age of the respondents was significantly and positivelyrelated only to the environmental domain (rs = 0. 205; p < 0. 05). The respondents who drive a car showed a significantly higher level of QOL in the field of mental health (p = 0. 042) and the environment (p = 0. 005). Concerning mothers with higher incomes rate, their QOL was better in the following domains: Physical health (p = 0. 030), mental health (p = 0. 002), environment (p = 0. 000001), and general QOL (p = 0. 0002).Conclusion: The respondents with a larger number of household members, those who have the support of family members, who were without health problems, and who independently use own car for transportation, consider their QOL as being better. Therefore, a promotional – preventive program for improving the life quality of mothers of children and persons with disabilities should include accessible life in the community and the ability to recognize the unique needs of the entire family of children and persons with disabilities.

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Section: Discussionsupporting

confidence: 60%

Quality of life of mothers who have children with developmental disabilities

Mahmutović

Veladžić

Hadžiomerović

et al. 2020

JHSCI

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“…Moreover, studies have shown that as a child's illness progresses, both the child and his or her caregivers experience a deterioration in QOL and a significant decrease in their physical, psychological, social, and economic well-being [14][15][16][17]. Therefore, some studies have aimed to assess the psychosocial factors associated with the QOL of family caregivers within the context of chronic diseases [8,13,[18][19][20][21].…”

Section: Introductionmentioning

confidence: 99%

Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study

et al. 2020

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Quality of life (QOL) is a key aspect of the health care process for children with chronic diseases and their families. Although clinical evidence regarding the impact of chronic disease on children exists, few studies have evaluated the effects of the interaction between sociodemographic and psychosocial factors on the family caregiver’s QOL, indicating a significant gap in the research literature. The present study aimed to identify the predictors of the QOL of parents of children with chronic diseases. Three parental sociodemographic predictors (age, schooling, and family income) and four psychosocial predictors (family functioning, social support, depression, and resilience) were examined. In this cross-sectional study, 416 parents of children with chronic diseases who were hospitalized at a National Institute of Health in Mexico City were interviewed. The participants completed a sociodemographic variables questionnaire (Q-SV) designed for research on family caregivers of children with chronic disease. The predicted variable was assessed through the World Health Organization Quality of Life Questionnaire. The four psychosocial predictors were assessed through the Family Functioning Scale, Social Support Networks Scale, Beck Depression Inventory, and Measurement Scale of Resilience. The regression model explained 42% of the variance in parents’ QOL. The predictors with positive weights included age, schooling, monthly family income, family functioning, social support networks, and parental resilience. The predictors with negative weights included depression. These findings suggest that strong social relationships, a positive family environment, family cohesion, personal resilience, low levels of depression, and a family income twice the minimum wage are variables associated with better parental QOL.

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“…Previous research showed no significant differences in work-family conflict and work-family facilitation between mothers of children with T1D and controls [38]. In the literature, when the grandmother was the primary caregiver, the QOL score was lower than that of mothers of children with other chronic conditions [39]. The QOL perceived by fathers was significantly higher than that of mothers [29].…”

Section: Discussionmentioning

confidence: 78%

Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

Uhm

Kim

2020

Children

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Quality of life of parents of children with chronic disease is important for disease self-management. This study aimed to identify predictors of quality of life among mothers of children with type 1 diabetes. A cross-sectional study was conducted. A total of 208 mothers of children with type 1 diabetes were recruited from an online health community. Online health community collective empowerment and social support, diabetes self-efficacy, diabetes-related burden, and quality of life were measured. A multiple regression analysis was conducted to determine predictive factors for quality of life. Multiple regression analysis showed that diabetes-related burden and the child’s age were predictors of quality of life, and total variance explained by the model was 64.1% using two factors. In mothers of younger children, it is important to reduce the diabetes-related burden. Factors that increase the diabetes-related burden should be identified, and strategies to reduce the diabetes-related burden must be established.

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Quality of life of primary caregivers of children with cerebral palsy: a comparison between mother and grandmother caregivers in Anhui province of China

Abstract: The quality of life is significantly unsatisfactory in both mother and grandmother primary caregivers of children with CP; this research provides evidence for the need of the monitoring of these caregivers.

Cited by 21 publications

References 21 publications

Quality of life of mothers who have children with developmental disabilities

Quality of life of mothers who have children with developmental disabilities

Predictors of Quality of Life among Parents of Children with Chronic Diseases: A Cross-Sectional Study

Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes

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