Quality of life: patients and doctors don't always agree: a meta-analysis

Janse, A.; Gemke, Reinoud J. B. J.; Uiterwaal, Cuno S.P.M.; Tweel, Ingeborg van der; Kimpen, Jan L. L.; Sinnema, Gerben

doi:10.1016/j.jclinepi.2003.11.013

Cited by 298 publications

(228 citation statements)

References 51 publications

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“…At 6 to 12 months followup, they found both interventions were effective in improving health-related outcomes, but THA offered patients better return to function than TKA (Table 5). Finally, our study confirms patients and doctors do not always agree on improvement in quality of life after an intervention [14]. Willingness to have surgery again is a good proxy for the patient's perception as to whether the intervention was beneficial.…”

Section: Discussionsupporting

confidence: 54%

Comparing Patient Outcomes After THA and TKA: Is There a Difference?

Bourne

Chesworth

Davis

et al. 2010

Clinical Orthopaedics &Amp; Related Research

274

145

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Both primary total hip (THA) and knee (TKA) arthroplasty relieve pain, restore function, and increase mobility. Despite these successes, there is controversy as to whether THA or TKA provides greater or similar improvement. We therefore compared primary THA and TKA patient results in terms of (1) willingness to have surgery again; (2) WOMAC change score; (3) whether expectations were met; and (4) satisfaction. Patients undergoing primary THA were more willing to undergo their surgery again (THA 96%, TKA 89%), demonstrated greater WOMAC change scores, more frequently reported their expectations were met (THA 78%, TKA 70%), and expressed greater overall satisfaction (THA 89%, TKA 81%). In addition, patients undergoing THA expressed higher satisfaction with pain reduction while performing activities (ie, walking, stairs, and sitting/lying) and their ability to perform daily activities (ie, stairs, transportation, getting up, lying in bed, and light domestic duties) when compared with patients undergoing TKA. Our data suggest primary THA offers superior short-term outcomes when compared with primary TKA.

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Section: Discussionsupporting

confidence: 54%

Comparing Patient Outcomes After THA and TKA: Is There a Difference?

Bourne

Chesworth

Davis

et al. 2010

Clinical Orthopaedics &Amp; Related Research

274

145

View full text Add to dashboard Cite

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“…These data emphases that the viewer's perception is different from the patient self-perception obtained by HRQoL assessment [36,37]. …”

Section: Discussionmentioning

confidence: 99%

Patient reported outcomes in head and neck cancer: selecting instruments for quality of life integration in clinical protocols

et al. 2010

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BackgroundHealth Related Quality of Life has been used in medical research for more than twenty years, being progressively accepted during the last decade as an important patient reported outcome. Considering the multidimensional approach involved in Health Related Quality of Life assessment, instrument applicability and cultural adaptation must be tested for each population. In order to select the most appropriate instrument for Head and Neck cancer patients, two major Health Related Quality of Life specific questionnaires for Head and Neck cancer patients were compared. Conceptual differences, psychometric characteristics, scores, reliability, construct validity and sensitivity to symptomatology, tumour location, tumour size were analyzed.Methods102 consecutive Head and Neck cancer patients completed two different Health Related Quality of Life questionnaires: EORTC QLQ-C30 and its specific head and neck module QLQ-H&N35 and the Functional Assessment of Cancer Therapy Scales (FACT-H&N). Patients completed the questionnaires, immediately before consultation as a part of the routine evaluation.ResultsA greater variability was always found in the EORTC QLC-C30 questionnaire's scores for all comparable domains. Both instruments revealed a good internal consistency and demonstrated to be good tools to distinguish symptomatic patients. The EORTC questionnaires still demonstrated sensitivity to distinguish T3 and T4 staging. Conceptual differences and the psychometric characteristics are discussed. Our results suggest that these two instruments assess different aspects of Health Related Quality of Life - the questionnaires should be used separately and chosen according to the study objectives and methodology.ConclusionsThis study emphases the importance in selecting the appropriate tool as a critical success factor in implementing routine Health Related Quality of Life assessment in clinical practice. This decision assumes particularly importance when utilization of results in real time and integration into clinical protocols are considered.

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“…Improvements in this dimension have become as important as clinical and laboratory responses to interventions, since in addition to providing information on the impact of the disease, they act as an independent predictor of survival and therapeutic Evaluation of QoL plays a crucial role in assessing the changes occurring in the patient and their disease during therapy and this comprehension may make treatment more effective. 28 Since it includes both subjective and objective criteria, it may enable clinical management guidelines to be developed that would reflect a more accurate picture of the costs and benefits of treatment. 28 In a study performed in 2006 with patients with cancer of the head and neck using the FACT-G instrument, scores ranged from 35 to 107, with a median of 86.…”

Section: Discussionmentioning

confidence: 99%

“…28 Since it includes both subjective and objective criteria, it may enable clinical management guidelines to be developed that would reflect a more accurate picture of the costs and benefits of treatment. 28 In a study performed in 2006 with patients with cancer of the head and neck using the FACT-G instrument, scores ranged from 35 to 107, with a median of 86. In the present study, FACT-G scores ranged from 23 to 98, with a mean of 79.2; therefore, patients with melanoma had a lower mean QoL score compared to patients with cancer of the head and neck.…”

Section: Discussionmentioning

confidence: 99%

Preditores de qualidade de vida em pacientes com melanoma cutâneo no serviço de dermatologia do Hospital de Clínicas de Porto Alegre

Barbato

Bakos

Bakos³

et al. 2011

An. Bras. Dermatol.

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BACKGROUNDS: Some symptoms present in melanoma patients are directly related to psychological stress, which emphasizes the need to evaluate quality of life (QoL) in these patients at all the stages of their disease. Objectives: The objective of this study was to evaluate quality of life in a sample of patients diagnosed with melanoma, using the Functional Assessment of Cancer Therapy-General (FACT-G) questionnaire. METHODS: A descriptive, cross sectional study was conducted between July and December, 2006 with all patients with skin melanoma receiving follow-up care at the Department of Dermatology of the Porto Alegre Teaching Hospital, Federal University of Rio Grande do Sul. RESULTS: Sixty patients were included in the study. Mean age was 55.6 years. Poor education level (primary school or less) was associated with a poorer FACT-G score. Patients with a family history of the disease had higher QoL scores in 3 of the 4 categories evaluated: physical, emotional and functional wellbeing (p<0.01). QoL scores were higher in married patients (82.42) compared to single patients (70.28) (p<0.01). Patients with metastases had lower scores in the functional wellbeing category and this difference was statistically significant. CONCLUSIONS: Factors related to the tumor, as well as gender, age and employment status, were not found to be predictive of quality of life in this sample. Quality of life scores were lower in the functional wellbeing domain in patients with metastases. Married patients are able to count on greater comfort and emotional support to help them deal with the diagnosis of melanoma. Patients with a family history of melanoma had significantly higher quality of life scores, while those with poor education levels had lower scores. Keywords: Dermatology; Quality of life indicators; Oncology; Melanoma; Quality of life; Resumo: FUNDAMENTOS: Alguns sintomas presentes nos pacientes com melanoma estão diretamente relacionados à tensão psicoló-gica, o que reforça a necessidade de avaliar a qualidade de vida em todas as fases da doença. OBJETIVOS: Avaliar a qualidade de vida dos pacientes diagnosticados com melanoma por meio do questionário Fact-G. MÉTODOS: Estudo descritivo transversal que incluiu todos os pacientes em seguimento no serviço de dermatologia do Hospital de Clínicas de Porto Alegre entre julho e dezembro de 2006. RESULTADOS: Sessenta pacientes foram incluídos. A idade média foi de 55,6 anos. O nível de escolaridade até primeiro grau foi correlacionado a escores mais baixos no Fact-G. Os pacientes com história familiar apresentaram maiores escores de QoL em três das quatro categorias avaliadas: bem-estar físico, emocional e funcional (P < 0,01). Pacientes casados mostraram melhor qualidade de vida (82,42) que os solteiros (70,28; P < 0,01). Os pacientes com metástase obtiveram uma menor pontuação no questionário no domínio bem-estar funcional. CONCLUSÕES: Os fatores relacionados ao tumor, assim como o sexo, a idade e a situação de emprego, não foram preditores de qualidade de vida. Pacient...

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Quality of life: patients and doctors don't always agree: a meta-analysis

Cited by 298 publications

References 51 publications

Comparing Patient Outcomes After THA and TKA: Is There a Difference?

Comparing Patient Outcomes After THA and TKA: Is There a Difference?

Patient reported outcomes in head and neck cancer: selecting instruments for quality of life integration in clinical protocols

Preditores de qualidade de vida em pacientes com melanoma cutâneo no serviço de dermatologia do Hospital de Clínicas de Porto Alegre

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