Quality of life perspectives in long‐term care: staff and patient perceptions

Thapa, Komilla; Rowland, Linda

doi:10.1111/j.1600-0447.1989.tb01336.x

Cited by 44 publications

(15 citation statements)

References 13 publications

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“…These differences, if replicated among other groups of service users, have implications for the design and organization of therapeutic work provision. It should not be assumed that users and providers will share the same views about what is helpful (Thapa & Rowland, 1989). If work is to be provided on the basis of what users value, services should be shaped towards programmes which enhance self-esteem and self-confidence.…”

Section: Service and Policy Implicationsmentioning

confidence: 99%

The psychosocial benefits of work for people with severe and enduring mental health problems

Goodwin

Kennedy²

2005

CCWF

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Perceptions of the value of work for people with severe and enduring mental health problems have changed frequently over the last two decades. With the new social inclusion agenda manifest in the Disability Discrimination Act and in the NHS modernization agenda, work is once again in vogue. There is a need for a way of evaluating work which draws on its potential contribution to psychological well-being as well as its provision of a valued social role and which is less susceptible to fluctuations in health and social policy. Jahoda's work on the psychosocial functions of work provides such a framework and this study sets out to explore its utility among workers who are severely disabled by mental health problems. Twelve of the psychosocial functions of work were rated by 50 people attending two sheltered work placements according to how important they were perceived to be and the extent to which the functions were fulfilled through their attendance. Satisfaction of the psychosocial functions through work was compared with their satisfaction through other aspects of the respondents' lives. All functions were perceived as important, but self-confidence/self-esteem was rated as more important than most of the others. Structure to the day, self-confidence and social contact were better satisfied through work than were decision making, practising old skills and having goals to aim for. In general, the results showed that the functions were fulfilled better by work than by other aspects of the respondents' lives. The study supports the notion that work is of value in the rehabilitation of people with severe and enduring mental health problems and offers a possible framework for the further exploration of this theme, both within mental health services and the community at large.Keywords therapeutic work; severe and enduring mental health problems; psychiatric rehabilitation; psychosocial benefits Percepciones del valor del trabajo para personas con problemas de salud mental graves y duraderos han cambiado con frecuencia durante las u´ltimas dos decadas. Con la nueva agenda de inclusio´n social manifiesta en la Disability Discrimination Act y en el agenda de modernizacio´n del National Health Service, el trabajo esta´otra vez en boga. Se necesita una manera de evaluar el trabajo que recurre a su posible contribucio´n tanto a bienestar psico´logico como a su prestacio´n de un valioso rol social, y que es menos sensible a las fluctuaciones del político social y de salud. El trabajo de Jahoda sobre las funciones psicosociales de trabajo nos proporciona un tal marco y este estudio intenta explorer su utilidad entre trabajadores gravamente descapacitados por problemas de salud mental. Cinquenta personas que asistían a dos centros de colocacio´n vigilada dieron puntuaciones a doce de las funciones psicosociales de trabajo segun su importancia percibida y hasta qué punto las funciones fueron realizadas por su asistencia a los centros. Se comparo´la satisfaccio´n de las funciones psicosociales por mediacio´n del trabajo con su s...

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Section: Service and Policy Implicationsmentioning

confidence: 99%

The psychosocial benefits of work for people with severe and enduring mental health problems

Goodwin

Kennedy²

2005

CCWF

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“…Proxy responders have often been noted to be biased, overestimating cognitive abilities, underestimating emotional well-being, and accurately estimating physical abilities (e.g. Thapa and Rowland 1989, Berlowitz et al 1995, Hays et al 1995, Dorman et al 1997, Sneeuw et al 1997, Wu et al 1997. It is important to keep in mind that some elderly family members may not be good proxy raters because of their own health status, educational level, or ability to understand the questions.…”

Section: Methodological Issuesmentioning

confidence: 97%

Health-related quality of life (HR-QOL) in nursing home residents with dementia: Stability and relationships among measures

Hickey¹,

Bourgeois²

2000

Aphasiology

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Assessing QOL in nursing home residents with dementia is potentially unreliable or invalid due to their reduced ability to understand and respond to test items. This study measured aspects of health-related QOL (cognition, activities of daily living [ADLs], pain, depression, frequency of problem behaviours, and nursing home satisfaction) in nursing home residents with dementia. The purpose of this analysis was to examine the stability of the measures over time, possible relationships between the measures, and possible differences among proxy and resident responses. Six nursing homes provided the setting for the testing. A total of 105 residents with dementia and 90 nursing assistants participated. Results showed stability over time for all measures. Cognition was positively correlated with ADL ability, and negatively correlated with problem behaviours. Nursing assistants' reports of resident depressive symptoms were positively correlated with their reports of resident problem behaviours. Residents' own reports of depressive symptoms were negatively correlated with nursing home satisfaction. There was no relationship between resident self-reports and nursing assistant proxy reports of depressive symptoms at either testing period.

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“…Research among patients with an enduring psychiatric disorder frequently reveals a discrepancy between the subjective and objective quality of life: these patients are more satisfied with their lives (subjectively) than might be expected in light of their (objective) living conditions (Thapa & Rowland 1989). This observation is one of the reasons why there is a growing awareness that subjective and objective quality of life are two different concepts with only a limited connection.…”

Section: Quality Of Lifementioning

confidence: 99%

“…Conflicts, feelings of loneliness and receiving little or no visitors were regarded as negatively affecting their quality of life. Thapa & Rowland (1989) had a number of patients list and order factors according to the degree in which they contributed to their quality of life. Living conditions ranked highest by these patients, followed by social contacts and physical health.…”

Section: Quality Of Lifementioning

confidence: 99%

Quality of life for long‐stay patients of psychiatric hospitals: a literature study

Megens

Meijel

2006

Psychiatric Ment Health Nurs

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The aim of this literature review is to provide an answer to the following questions: (1) What is known about the quality of life and quality of care for long-stay psychiatric patients? (2) What does literature say about possible contributions that health-care professionals may make to the quality of life for this target group? We conducted an open literature search across national and international databases, and added relevant literature by using cross-references. The quality of life and quality of care for long-stay psychiatric patients has been the subject of research on a limited scale only. Publications in this field provide a picture of patients with wishes and requirements that are generally basic and modest in nature. They also show that patients greatly value good relations with their care providers. This literature review shows that little is known about the quality of life of long-stay psychiatric patients and this review also shows that the relational aspects of care provide an eminent opportunity for care providers to contribute to the quality of life of their patients. Long-stay patients need care providers who are capable of developing and maintaining a caring relationship of the highest quality that will endure for many years. In their daily work, nurses have good opportunities to develop and maintain meaningful and reciprocal relationships with severely ill people, but this is a task that makes great demands on nurses in terms of both knowledge and interhuman skills. These skills should be given special attention both in nurse education and by supervisors.

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Quality of life perspectives in long‐term care: staff and patient perceptions

Cited by 44 publications

References 13 publications

The psychosocial benefits of work for people with severe and enduring mental health problems

The psychosocial benefits of work for people with severe and enduring mental health problems

Health-related quality of life (HR-QOL) in nursing home residents with dementia: Stability and relationships among measures

Quality of life for long‐stay patients of psychiatric hospitals: a literature study

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