Quality of life protocol in the early asthma diagnosis in children

Abstract

IntroductionAsthma is considered an important problem in children and influences on their everyday functioning. This study was concerned with the impact of asthma on the health‐related quality of life (HRQOL) of newly recognized pediatric asthma patients and their parents.MethodsPatients were identified by a general respiratory survey. HRQOL was assessed by self‐report measures: disease‐specific questionnaire for children, the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) and generic for parents—the Quality of Life in Child's Chronic Disease Questionnaire (QLCCDQ).ResultsTwenty‐nine newly diagnosed asthmatic children aged 7–11 years (mean age = 8.6; SD = 1.4) were identified from a population‐based respiratory health survey. The most impaired HRQOL domains differed in parents and children. In children, activity limitation was the most impaired; however in parents, emotional functioning and symptom perception domains were most impaired. There were no statistically significant differences in patient and parental HRQOL observed in either the group where symptoms were present or in the group were symptoms were not present. Baseline spirometry showed correlation for FEV1%FVC and PAQLQ symptom domain (r = 0.42). Exercise test showed correlations between FEV1%FVC and QLCCDQ emotional domain (r = 0.7); MEF 25–75% and family roles (r = 0.81), as well as social functioning (r = 0.81). Activity limitation on the PAQLQ correlated with the MEF 25–75% (r = 0.44) and PEF (r = 0.55).ConclusionsHRQOL newly recognized children with asthma and their parents does not correlate closely with clinical status. Patient and parental HRQOL should be considered as independent dimensions. Pediatr Pulmonol. 2010;45:1095–1102. © 2010 Wiley‐Liss, Inc.

Pediatric Asthma Caregiver’s Quality of Life Questionnaire is a useful tool for monitoring asthma in children

“…However, Merikallio et al [6] demonstrated in their study that a short-time QOL can be obtained from children, but for longitudinal observation parents’ information seems to be more adequate. In opposite to the study of Farnik et al [7], we found significant positive correlation between PAQLQ and PACQLQ in all domains. We did not observe any significant correlation between clinical parameters in children and asthma quality of life in parents, which stay in accordance with previous studies [7].…”

“…In opposite to the study of Farnik et al [7], we found significant positive correlation between PAQLQ and PACQLQ in all domains. We did not observe any significant correlation between clinical parameters in children and asthma quality of life in parents, which stay in accordance with previous studies [7]. We interpret these results as clinical parameters such as FEV1 and FeNO being weak indicators of disease severity especially in short-time observation of mild asthma.…”

The Impact of Atopic Dermatitis on Quality of Life

“…For the impact of infantile asthma on QoL, for example, studies have shown that providers should ask both children and their caregivers about the effects of asthma on the child's QoL, especially with regard to disease effect on activity limitation [18,19]. These data further contribute to increasing evidence that caregiver reports cannot be used in place of a child's report about disease-specific QoL [20].…”

Evaluation of Health-Related Quality of Life among Children Attending Asthma Clinic in Alexandria University Children's Hospital

“…The same result was found on two studies, one done to validate the Arabic version of the PAQLQ (20) and another at Ain Shams University. (23) On the other hand, another studies carried on asthmatic children at Sweden, (25) Poland, (31) Brazil (22) and Jordon (26) that the score of activity limitation was the most affected one. Our study showed that there was a significant positive correlation between FEV1 and overall PAQLQ score.…”