Que nous disent les outils de mesure sur la somnolence et l’hypersomnolence chez l’adulte ? Approches historiques et perspectives futures

Match and Mismatch between Lived Experiences of Daytime Sleepiness and Diagnostic Instruments: A Qualitative Study amongst Patients with Sleep Disorders

“…We saw similarities with the consequences of sleep inertia (namely irritability and automatic behavior) as introduced by Gandhi et al [ 27 ]. However, we mostly noted parallels with the sleepiness dimensions introduced by Kim and Young [ 17 ] or with the conception and overview of hypersomnolence offered by Lopez et al [ 11 ] and Martin et al [ 18 , 19 ]. According to Lopez et al and Martin et al, EDS is not only related to past or impending sleep episodes but also includes sensations and behavioral disturbances throughout the day.…”

“…According to Lopez et al and Martin et al, EDS is not only related to past or impending sleep episodes but also includes sensations and behavioral disturbances throughout the day. Taken together, our participants experienced a complex network of daytime complaints, with links to perturbations upon awakening and other aspects or repercussions of hypersomnolence [ 11 , 18 , 19 , 27 ]. This network is illustrated by the wide array of descriptors and consequences described by our participants.…”

“…Many have defined daytime sleepiness as the propensity to fall asleep during the day, sometimes in inappropriate contexts [ 16 ], much like in narcolepsy or idiopathic hypersomnia. Other definitions also encapsulate perceived sleepiness and the consequences of daytime sleepiness [ 11 , 17 , 18 , 19 ]. This conceptualization relates partly to the definition of hypersomnolence proposed in recent reviews [ 11 , 18 , 19 ]: a disabling symptom which includes EDS, an excessive need for sleep, and disturbances upon awakening.…”

“…Other definitions also encapsulate perceived sleepiness and the consequences of daytime sleepiness [ 11 , 17 , 18 , 19 ]. This conceptualization relates partly to the definition of hypersomnolence proposed in recent reviews [ 11 , 18 , 19 ]: a disabling symptom which includes EDS, an excessive need for sleep, and disturbances upon awakening. According to their model, EDS is sub-defined by three categories of symptoms, as follows: continuous non-imposing drowsiness, sleep propensity with voluntary or involuntary bouts of sleep, and automatic behaviors [ 20 ].…”

“…In order to further advance our understanding of daytime sleepiness [ 11 , 18 , 19 ], we argue that a bottom–up approach could be helpful. Through the perspective of patients, we can evaluate to what extent patients’ experiences and descriptions of their complaints align with current conceptualizations of sleepiness and with common subjective scales.…”