Quelle prise en charge psychologique dans l’après-cancer ?

Dauchy, Sarah; Ellien, F.; Lesieur, A.; Bézy, Olivier; Boinon, Diane; Chabrier, M.; Dolbeault, Sylvie; Joly, Florence; Heuguerot, A.; Lemaître, L.; Machavoine, Jean-Luc; Marx, E.; Marx, G; Piollet-Calmette, I.; Pucheu, Sylvie; Reich, M.; Seigneur, É.

doi:10.1007/s11839-013-0409-3

Cited by 12 publications

(4 citation statements)

References 96 publications

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“…Selon les recommandations de la Société française de psychooncologie (SFPO ; congrès de 2012), le psychologue, en cancé-rologie, doit être le garant d'une continuité dans la prise en charge pendant et après le traitement, en assurant une évalua-tion régulière de l'état psychologique, en partenariat étroit avec les équipes soignantes [11]. Par ailleurs, ce suivi à long terme a comme spécificité de concerner des patients devenus adultes, dans le service pédiatrique où ils ont été pris en charge enfant.…”

Section: Resultsunclassified

La consultation psychologique de suivi à long terme en oncologie : état des lieux et perspectives

2015

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Section: Resultsunclassified

La consultation psychologique de suivi à long terme en oncologie : état des lieux et perspectives

2015

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“…The need for psychological support was still expressed five years after the initial diagnosis. There may be a delay between the diagnosis and the onset of psychological disturbances ( Dauchy et al, 2013 ). The absence of psychological support, its unavailability or its inadequacy ( Barrett et al, 2020 ) may be one manifestation among others of the lack of a systematically continuous care pathway or the difficulty to find a health professional once a patient has been discharged from hospital.…”

Section: Discussionmentioning

confidence: 99%

“…The healthcare pathway of AYA cancer survivors being made of disruptions (e.g., end of treatment, end of surveillance, transition between pediatric and adult units), regular screening is important. The challenges of long-term follow-up should be clearly explained to these survivors on an ongoing basis, since their developmental status is constantly evolving ( Dauchy et al, 2013 ). For these reasons, the systematic evaluation of the supportive care needs of AYA after treatment seems crucial.…”

Section: Discussionmentioning

confidence: 99%

Supportive care needs of adolescents and young adults 5 years after cancer: a qualitative study

Baudry,

Girodet,

Lochmann

et al. 2024

Front. Psychol.

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IntroductionAdolescent and young adult (AYA) survivors who have been treated for cancer during childhood and adolescence are at great risk of the physical, psychological, and social consequences of cancer and its associated treatments. However, compliance with long-term follow-up is low. One possible explanation is that follow-up care fails to meet the expectations of AYA survivors. This study explored the specific supportive care needs of AYA survivors of childhood and adolescent cancer five years post-diagnosis.MethodsSemi-structured interviews were conducted with 15 AYA aged 15 to 25 years old. Thematic analyses were conducted to establish categories of supportive care needs and classify them as being met or unmet.ResultsParticipants reported between 2 and 20 specific needs (M = 11), including needs concerning fertility issues and reassurance regarding relapse (each mentioned by 67% of AYA), followed by the need for locomotor care, follow-up coordination and multidisciplinary care (60% of AYA for each). Participants also reported needs regarding social relationships, administration and finance, and academic and professional domains. Most (69%) of these needs were reportedly unmet, including need of information about cancer repercussions and follow-up, support in managing fatigue and sleep problems, psychological assistance, and support from peers.DiscussionThe supportive care needs are still considerable and varied in AYA survivors of childhood and adolescent cancer 5 years post-diagnosis and are largely unmet. As unmet supportive care needs highlight the gap between available care in follow-up and the real needs of AYA survivors, a better understanding of their supportive care needs and unmet needs, thanks to systematic needs assessment, would enable long-term follow-up care to be adapted, thereby improving compliance and quality of life.

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“…Ainsi, malgré la rémission voire la guérison, beaucoup de personnes gardent les stigmates de cette maladie. Les conséquences de la prise en charge et de cette expérience du cancer se retrouvent aussi sur la santé mentale du patient, qui peut être confronté à de nouvelles difficultés dans son retour au travail, son insertion sociale ou encore sa vie privée (Dauchy et al, 2013 ;Le Corroller-Soriano, Malavolti, & Mermilliod, 2008). Ces nouveaux obstacles liés à l'après-cancer ne sont pas relatifs à l'état de santé du patient, mais à différents aspects de sa vie sociale.…”

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