Questionnaires measuring quality of life and satisfaction of patients and their relatives in a palliative care setting—German translation of FAMCARE-2 and the palliative care subscale of FACIT-Pal

Sewtz, Corinna; Muscheites, Wiebke; Kriesen, Ursula; Große-Thie, Christina; Kragl, Brigitte; Panse, Jens; Aoun, Samar; Cella, David; Junghanß, Christian

doi:10.21037/apm.2018.03.17

Cited by 17 publications

(8 citation statements)

References 13 publications

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“…Following cultural adaptation, the concurrent validity of the FACIT-Pal-TR was tested by performing correlation analysis between the FACIT-Pal-TR and the KPS and ESAS scales. Similar to previous studies of the psychometric properties of the FACIT-Pal in different cultures, 8,11,12 we found that patients who had better performance status and lower symptom severity had better QoL, thus verifying concurrent validity of FACIT-Pal-TR. For the construct validity of FACIT-Pal-TR, EFA and CFA were performed.…”

Section: Discussionsupporting

confidence: 89%

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Reliability and Validity of the Turkish Version of the FACIT-PAL Quality of Life Instrument

Bağçıvan

Bredle

Bakitas

et al. 2019

Journal of Pain and Symptom Management

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Context. The accurate measurement of quality of life (QoL) among people with chronic and incurable illnesses is essential for evaluating service delivery, understanding the impact of illness and treatment effects, and testing intervention effectiveness. Palliative care interventions are relatively new in Turkey; therefore, it is important that reliable and valid QoL instruments are available to evaluate palliative care effectiveness in Turkish speakers. Objectives. The purpose of this study was to translate, linguistically validate, and determine the psychometric properties of the newly translated Functional Assessment of Chronic Illness TherapyePalliative Care (FACIT-Pal) scale (FACIT-Pal-TR) for Turkish-speaking cancer patients. Methods. We used standard multilingual translation and validation methods for the initial translation of the FACIT-Pal-TR and then assessed the psychometric properties of reliability and validity of the translated scale. We used the Karnofsky Performance Scale and Edmonton Symptom Assessment Scale to assess concurrent and construct validity. Results. A convenience sample of 232 cancer patients participated in this study. The Cronbach's alpha coefficient of FACIT-Pal-TR was 0.932 (between 0.732 and 0.860 for subscales). There was a statistically significant relationship between test and retest scores (r ¼ 0.877, P < 0.001). The factor loadings of FACIT-Pal-TR were between 0.205 and 0.815. FACIT-Pal-TR construct validity was acceptable with 45 items and five subscales. There were statistically significant relationships between FACIT-Pal-TR scores and Edmonton Symptom Assessment Scale (P < 0.001) and Karnofsky Performance Scale (r ¼ 0.656; P < 0.001) scores. Conclusions. The FACIT-Pal-TR demonstrates strong reliability and validity for evaluating palliative careespecific QoL in Turkish cancer patients.

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Section: Discussionsupporting

confidence: 89%

“…The FACIT-Pal psychometrics have been examined in a sample of 256 U.S. advanced cancer patients, 11 in three African countries with patients have HIV and/or cancer diagnosis, 8 and in a German sample. 12 Others 13,14 have evaluated the psychometric properties of FACIT-Pal shortened version.…”

Section: Introductionmentioning

confidence: 99%

Reliability and Validity of the Turkish Version of the FACIT-PAL Quality of Life Instrument

Bağçıvan

Bredle

Bakitas

et al. 2019

Journal of Pain and Symptom Management

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“…All raters are certified for the applicable scores (mRS, NIHSS, MOCA). Patient-reported outcomes (measured by questionnaires) are the following: EQ-5D-5L and EQ-VAS (generic evaluation of QoL in 5 domains and overall on a visual analog scale) 83 , HADS-D (evaluation of anxiety and depression) 84 , WHODAS 2.0 (WHO Disability Assessment Schedule) 85 , and, for patients with PDAC, FACIT-Pal (evaluating QoL with focus on palliative symptoms and needs) 86 , 87 . All questionnaires are administered following the suppliers’ instructions.…”

Section: Methodsmentioning

confidence: 99%

Towards biomarkers for outcomes after pancreatic ductal adenocarcinoma and ischemic stroke, with focus on (co-)morbidity and aging / cellular senescence (SASKit): protocol for a prospective cohort study

Henze

Walter

Escobar

et al. 2020

Preprint

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Aging-related processes such as cellular senescence are believed to underlie the accumulation of diseases in time, causing (co-)morbidity, including cancer, thromboembolism and stroke. Intervening into these processes may delay, stop or reverse morbidity. To study the link between (co-)morbidity and aging, by exploring biomarkers and molecular mechanisms of disease-triggered deterioration, we will recruit 50 patients with pancreatic ductal adenocarcinoma, 50 patients with (thromboembolic) ischemic stroke and 50 controls, at Rostock University Medical Center. We will gather routine blood data, clinical performance measurements and patient-reported outcomes at up to 9 points in time, and in-depth transcriptomics & proteomics at two early time points. Aiming for clinically relevant biomarkers, the primary outcome is a composite of probable sarcopenia, clinical performance (described by ECOG Performance Status for patients with pancreatic ductal adenocarcinoma and the Modified Rankin Scale for patients with stroke) and quality of life. Further outcomes cover other aspects of morbidity such as cognitive decline, and of comorbidity such as vascular or cancerous events. The data analysis is comprehensive in that it includes biostatistics & machine learning, both following standard role models & additional explorative approaches. Predictive biomarkers for interventions addressing senescence may become available if the biomarkers that we find are predominantly related to aging / cellular senescence. Similarly, diagnostic biomarkers will be explored for their relationship to aging / cellular senescence. Our findings will require validation in independent studies, and our dataset shall be useful to validate the findings of other studies. In some of the explorative analyses, we shall include insights from systems biology modeling as well as insights from preclinical animal models. We humbly suggest that our detailed study protocol and data analysis plan may also guide other biomarker exploration trials.

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“…These HRQOL measures are not primarily designed to estimate the patient's views of their HRQOL status under specific conditions such as cancer condition, WHOQOL-BREF and EQ-5D measures have been applied to cancer survivor groups and cross-culturally adapted with many other languages [8,10,21,22]. Although there is a little consensus on how to maintain psychometric properties of their original version when creating cross-culturally adapted versions of it, these two instruments are increasingly being used in other disease groups [23][24][25][26]. While originally designed to approximate HRQOL status for being applicable cross culturally, versions of it often fail to maintain optimal psychometric properties such as dimensionality [8,23,24,26,27].…”

Section: Introductionmentioning

confidence: 99%

“…Although there is a little consensus on how to maintain psychometric properties of their original version when creating cross-culturally adapted versions of it, these two instruments are increasingly being used in other disease groups [23][24][25][26]. While originally designed to approximate HRQOL status for being applicable cross culturally, versions of it often fail to maintain optimal psychometric properties such as dimensionality [8,23,24,26,27].…”

Section: Introductionmentioning

confidence: 99%

Exploring Concurrent Validity and Item Level Analysis for Two Korean Versions of Health-Related Quality of Life Instrument: EQ-5D vs. WHOQOL-BREF

Choi

2020

Physical Therapy Korea

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Questionnaires measuring quality of life and satisfaction of patients and their relatives in a palliative care setting—German translation of FAMCARE-2 and the palliative care subscale of FACIT-Pal

Abstract: The final versions of the German translations have been authorized by the scale developers. The FAMCARE-2 and the FACIT-Pal are now available in German and can be used for research and quality control purposes.

Cited by 17 publications

References 13 publications

Reliability and Validity of the Turkish Version of the FACIT-PAL Quality of Life Instrument

Reliability and Validity of the Turkish Version of the FACIT-PAL Quality of Life Instrument

Towards biomarkers for outcomes after pancreatic ductal adenocarcinoma and ischemic stroke, with focus on (co-)morbidity and aging / cellular senescence (SASKit): protocol for a prospective cohort study

Exploring Concurrent Validity and Item Level Analysis for Two Korean Versions of Health-Related Quality of Life Instrument: EQ-5D vs. WHOQOL-BREF

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