Race/ethnic–based opinions on organ donation and transplantation among teens: preliminary results

Spigner, Clarence; Weaver, Marcia R.; Pineda, Michele; Rabun, Kimi; French, Lynn; Taylor, Lynne; Allen, Margaret D.

doi:10.1016/s0041-1345(98)02022-3

Cited by 29 publications

(18 citation statements)

References 6 publications

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“…Topic guides were generated following a literature review and were used to facilitate group discussion. Focus groups were created to be homogeneous in terms of both ethnicity and gender because there is evidence that participants feel more comfortable expressing intimately held opinions in same gender and ethnic groups (23)(24)(25). In total, nine focus groups were conducted at which point we were confident theoretical saturation had been reached.…”

Section: Fieldworkmentioning

confidence: 99%

The factors that influence attitudes toward organ donation for transplantation among UK university students of Indian and Pakistani descent

Gauher

Khehar

Rajput

et al. 2013

Clinical Transplantation

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Section: Fieldworkmentioning

confidence: 99%

The factors that influence attitudes toward organ donation for transplantation among UK university students of Indian and Pakistani descent

Gauher

Khehar

Rajput

et al. 2013

Clinical Transplantation

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“…For example, African Americans make up 26.5% of the Alabama population,(4) yet comprise 67.6% (2244/3320) of the renal transplant waiting list at the University of Alabama at Birmingham (UAB). (5) During 2011, 143 deceased donor kidney transplants were performed at UAB of which African Americans accounted for 59.4% of transplant recipients yet only 16.8% of donor organs originated in African Americans. (5) A recent review of all requests for organ donation in the Alabama donor service area demonstrated a four-fold increase in donor authorization in Caucasians compared to African Americans.…”

Section: Introductionmentioning

confidence: 99%

African American Organ Donor Registration: A Mixed Methods Design Using the Theory of Planned Behavior

et al. 2014

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Context A large racial disparity exists in organ donation. Objective The purpose of this study was to identify factors associated with becoming a registered organ donor in among African Americans in Alabama. Methods The study utilized a concurrent mixed methods design guided by the Theory of Planned Behavior to analyze African American’s decisions to become a registered organ donor using both qualitative (focus groups) and quantitative (survey) methods. Results The sample consisted of 22 registered organ donors (ROD) and 65 non-registered participants (NRP) from six focus groups completed in urban (n=3) and rural (n=3) areas. Participants emphasized the importance of the autonomy to make one’s own organ donation decision and have this decision honored posthumously. One novel barrier to becoming a ROD was the perception that organs from African Americans were often unusable due to high prevalence of chronic medical conditions such as diabetes and hypertension. Another novel theme discussed as an advantage to becoming a ROD was the subsequent motivation to take responsibility for one’s health. Family and friends were the most common groups of persons identified as approving and disapproving of the decision to become a ROD. The most common facilitator to becoming a ROD was information, while fear and the lack of information were the most common barriers. In contrast, religious beliefs, mistrust and social justice themes were infrequently referenced as barriers to becoming a ROD. Discussion Findings from this study may be useful for prioritizing organ donation community-based educational interventions in campaigns to increase donor registration.

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“…Some of the reasons that African Americans are reluctant to donate include medical mistrust (Lange, 1992;Sanner, 1994;Siminoff, Burant, & Ibrahim, 2007), fear of bodily mutilation (Sanner;Spigner, Weaver, & Pineda, 1999), lack of knowledge (Morgan, 2006;Morgan & Cannon, 2003;Morgan & Miller, 2002), lack of understanding of brain death (Siminoff & Chillag, 1999), perceived social norms against organ donation (Morgan, 2004;Morgan, Miller, & Arasaratnam, 2003), and perceived inequalities in the organ allocation system (Arriola, Perryman, Doldren, Warren, & Robinson, 2007;Siminoff et al, 2007). These fears and beliefs seem to manifest themselves through significantly lower rates of declaring intentions to become an organ donor (Siminoff et al, 2007).…”

mentioning

confidence: 99%

Saving Lives Branch by Branch: The Effectiveness of Driver Licensing Bureau Campaigns to Promote Organ Donor Registry Sign-Ups to African Americans in Michigan

Harrison

Morgan

King

et al. 2011

Journal of Health Communication

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African Americans are disproportionately represented on the national waiting list for organ transplantation. Promoting organ donor registries is one way to improve the possibility that those on the waiting list can receive a life saving transplant. Driver licensing bureaus have been suggested as an efficient site for campaigns aimed at increasing state-based registry sign-ups. Previous research has suggested these campaigns work well for Caucasian populations, but there is less evidence supporting this approach in more diverse populations. To determine whether more diverse populations demonstrate similar sign-up rates when receiving a driver licensing bureau campaign, the present study used a previously successful strategy as the basis for designing and disseminating materials that would appeal to African Americans and Caucasians in two diverse counties in the state of Michigan (Wayne and Oakland Counties). Communication design and media priming served as the theoretical foundations of a three-prong campaign that used mass media, point-of-decision, and interpersonal components. Results from countywide and zip code data indicate that the campaign greatly increased sign-ups among African American residents (700% increase above baseline). Although more Caucasians still signed up than did African Americans, the inclusion of an interpersonal component resulted in similar numbers of registry sign-ups during 2 intervention months. The study provides evidence supporting the use of driver licensing bureau campaigns to promote organ donation registries to diverse audiences.

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Race/ethnic–based opinions on organ donation and transplantation among teens: preliminary results

Cited by 29 publications

References 6 publications

The factors that influence attitudes toward organ donation for transplantation among UK university students of Indian and Pakistani descent

The factors that influence attitudes toward organ donation for transplantation among UK university students of Indian and Pakistani descent

African American Organ Donor Registration: A Mixed Methods Design Using the Theory of Planned Behavior

Saving Lives Branch by Branch: The Effectiveness of Driver Licensing Bureau Campaigns to Promote Organ Donor Registry Sign-Ups to African Americans in Michigan

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