Race‐Related Differences in the Experiences of Family Members of Persons with Mental Illness Participating in the NAMI Family to Family Education Program

Smith, Melissa Edmondson; Lindsey, Michael; Williams, Crystal D.; Medoff, Deborah R.; Lucksted, Alicia; Fang, Li; Schiffman, Jason; Lewis‐Fernández, Roberto; Dixon, Lisa B.

doi:10.1007/s10464-014-9674-y

Cited by 25 publications

(14 citation statements)

References 56 publications

(112 reference statements)

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“…In addition, social expectations regarding role functioning and stigma further contributed to burden, whereas religion and spirituality served as a coping mechanism but also a possible deterrent to seeking professional support. Overall, our findings and those of other studies that have included participants from diverse racial and ethnic groups (Smith et al, 2014) underscore the critical role of the cultural context in caregiving. Family relationships are a salient component of Latino culture, and caregivers identified difficulties in interpersonal family relationships as their major source of subjective burden.…”

Section: Discussionsupporting

confidence: 74%

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Hernández

Barrio

2015

Community Ment Health J

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The purpose of this study was to explore perceptions of subjective burden among Latino family members providing care for a loved one with schizophrenia. Data were collected from outpatient community mental health centers and featured 64 Latino family members who were primarily Spanish speaking and of Mexican origin. We used qualitative methods to examine subjective burden based on an open section of the Family Burden Interview Schedule. Five salient themes emerged capturing family members’ subjective burden experience: (a) interpersonal family relationships, (b) emotional and physical health, (c) loss of role expectations, (d) religion and spirituality, and (e) stigma. Overall, findings illustrated that families perceived numerous challenges in their caregiving. Implications for research and practice among Latino family members are discussed.

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Section: Discussionsupporting

confidence: 74%

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Hernández

Barrio

2015

Community Ment Health J

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“…Individuals with serious mental illness from racial and ethnic minority groups are less likely than non‐Hispanic whites to engage in mental health treatment. The reasons for this are varied and numerous, and include system as well as social and cultural barriers. Providing culturally competent care may be one way to enhance engagement.…”

Section: Recovery‐oriented Techniques For Engagementmentioning

confidence: 99%

Treatment engagement of individuals experiencing mental illness: review and update

Dixon

Holoshitz

Nossel³

2016

World Psychiatry

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426

326

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Individuals living with serious mental illness are often difficult to engage in ongoing treatment, with high dropout rates. Poor engagement may lead to worse clinical outcomes, with symptom relapse and rehospitalization. Numerous variables may affect level of treatment engagement, including therapeutic alliance, accessibility of care, and a client's trust that the treatment will address his/her own unique goals. As such, we have found that the concept of recovery-oriented care, which prioritizes autonomy, empowerment and respect for the person receiving services, is a helpful framework in which to view tools and techniques to enhance treatment engagement. Specifically, person-centered care, including shared decision making, is a treatment approach that focuses on an individual's unique goals and life circumstances. Use of personcentered care in mental health treatment models has promising outcomes for engagement. Particular populations of people have historically been difficult to engage, such as young adults experiencing a first episode of psychosis, individuals with coexisting psychotic and substance use disorders, and those who are homeless. We review these populations and outline how various evidence-based, recovery-oriented treatment techniques have been shown to enhance engagement. Our review then turns to emerging treatment strategies that may improve engagement. We focus on use of electronics and Internet, involvement of peer providers in mental health treatment, and incorporation of the Cultural Formulation Interview to provide culturally competent, person-centered care. Treatment engagement is complex and multifaceted, but optimizing recovery-oriented skills and attitudes is essential in delivery of services to those with serious mental illness.

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“…These strategies are classified as functional and constitute positive ways of coping with problems 12 . Adopting these strategies may contribute to reducing the stress and overload of caregivers 13 .…”

Section: Discussionmentioning

confidence: 99%

Strategies for coping with family members of patients with mental disorders

Pompeo

Carvalho

Olive

et al. 2016

Rev. Latino-Am. Enfermagem

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Objective: to identify the coping strategies of family members of patients with mental disorders and relate them to family member sociodemographic variables and to the patient's clinical variables. Method: this was a descriptive study conducted at a psychiatric hospital in the interior of the state of São Paulo, with 40 family members of hospitalized patients over the age of 18, and who followed the patient before and during hospitalization. We used tools to characterize the subjects and the Folkman and Lazarus Inventory of Coping Strategies. Results: the coping strategies most often used by family members were social support and problem solving. Mothers and fathers used more functional strategies (self-control p=0.037, positive reappraisal p=0.037, and social support p=0,021). We found no significant differences between the strategies and other variables examined. Conclusion: despite the suffering resulting from the illness of a dear one, family members make more use of functional strategies, allowing them to cope with adversities in a more well-adjusted way.

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Race‐Related Differences in the Experiences of Family Members of Persons with Mental Illness Participating in the NAMI Family to Family Education Program

Cited by 25 publications

References 56 publications

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Treatment engagement of individuals experiencing mental illness: review and update

Strategies for coping with family members of patients with mental disorders

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