Racial and Ethnic Differences in the Delivery of the Resources for Enhancing Alzheimer's Caregiver Health <scp>II</scp> Intervention

Graham-Phillips, Anita L.; Roth, David L.; Huang, Jin; Dilworth‐Anderson, Peggye; Gitlin, Laura N.

doi:10.1111/jgs.14204

Cited by 24 publications

(16 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Improved tools and measures to personalize services for caregivers to maximize their benefits represent an emerging area of research 448‐454 . More studies are also needed to adapt proven interventions or develop new intervention approaches for families from different racial, ethnic and socioeconomic backgrounds and in different geographic settings 455‐469 . Additional research on interventions focused on disease stages is also needed, as well as research on specific intervention needs for LGBT caregivers 318…”

Section: Caregivingmentioning

confidence: 99%

“…[448][449][450][451][452][453][454] More studies are also needed to adapt proven interventions or develop new intervention approaches for families from different racial, ethnic and socioeconomic backgrounds and in different geographic settings. [455][456][457][458][459][460][461][462][463][464][465][466][467][468][469] Additional research on interventions focused on disease stages is also needed, as well as research on specific intervention needs for LGBT caregivers. 318…”

Section: Multicomponent Approachesmentioning

confidence: 99%

See 1 more Smart Citation

2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

2,033

653

View full text Add to dashboard Cite

This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on caregivers and society. The Special Report discusses the future challenges of meeting care demands for the growing number of people living with Alzheimer's dementia in the United States with a particular emphasis on primary care. By mid‐century, the number of Americans age 65 and older with Alzheimer's dementia may grow to 13.8 million. This represents a steep increase from the estimated 5.8 million Americans age 65 and older who have Alzheimer's dementia today. Official death certificates recorded 122,019 deaths from AD in 2018, the latest year for which data are available, making Alzheimer's the sixth leading cause of death in the United States and the fifth leading cause of death among Americans age 65 and older. Between 2000 and 2018, deaths resulting from stroke, HIV and heart disease decreased, whereas reported deaths from Alzheimer's increased 146.2%. In 2019, more than 16 million family members and other unpaid caregivers provided an estimated 18.6 billion hours of care to people with Alzheimer's or other dementias. This care is valued at nearly $244 billion, but its costs extend to family caregivers’ increased risk for emotional distress and negative mental and physical health outcomes. Average per‐person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are more than three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 23 times as great. Total payments in 2020 for health care, long‐term care and hospice services for people age 65 and older with dementia are estimated to be $305 billion. As the population of Americans living with Alzheimer's dementia increases, the burden of caring for that population also increases. These challenges are exacerbated by a shortage of dementia care specialists, which places an increasing burden on primary care physicians (PCPs) to provide care for people living with dementia. Many PCPs feel underprepared and inadequately trained to handle dementia care responsibilities effectively. This report includes recommendations for maximizing quality care in the face of the shortage of specialists and training challenges in primary care.

show abstract

Section: Caregivingmentioning

confidence: 99%

Section: Multicomponent Approachesmentioning

confidence: 99%

2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

2,033

653

View full text Add to dashboard Cite

show abstract

“…At post-evaluation, Latinos, whether spouse or adult child caregivers, made the greatest improvement on an omnibus measure of well-being, followed by Caucasians. African Americans had less overall improvement; in fact, recent reanalysis of this RCT by Graham-Phillips and colleagues [ 55 ] found that they actually completed fewer in-home sessions then and so, had less contact time. It is not clear whether certain components of the intervention had less appeal to this population.…”

Section: Effectiveness Of Psychological Interventions For Dementia Famentioning

confidence: 99%

Psychological Interventions for Dementia Caregivers: What We Have Achieved, What We Have Learned

Cheng

Losada

et al. 2019

Curr Psychiatry Rep

192

142

View full text Add to dashboard Cite

With the rising dementia population, more and more programs have been developed to help caregivers deal with the care-recipient as well as their own frustrations. Many interventions aim to enhance caregiver’s ability to manage behavior problems and other deteriorations in functioning, with less direct emphasis placed on caring for the caregivers. We argue that techniques based on psychotherapy are strategically important in assistance provided to caregivers because of their utility for promoting emotional health. This article provides a focused review of such methods used in evidence-based intervention programs, along with the mechanisms of change associated with these methods. While cognitive-behavioral therapy (CBT) has a strong evidence base, there is also a growing trend to package CBT techniques into various psychoeducational programs. These programs, which we call psychoeducation with psychotherapeutic programs, have been consistently found to be effective in reducing caregiver distress and are suited for delivery in group format, even by paraprofessionals, to lower the cost of intervention. A recent trend is the effective use of technological aids (e.g., the internet) to deliver CBT and psychoeducation, reaching more caregivers. As for therapeutic mechanisms, the use of coping skills, reduced dysfunctional thoughts, and increased self-efficacy in controlling upsetting thoughts has received support in studies. We conclude that psychotherapeutic techniques are increasingly being used effectively and efficiently to assist caregivers, aided by successful adaptation for educational or technologically advanced means of delivery. More research on therapeutic mechanisms is needed to understand how the techniques work and how they can be further refined.

show abstract

“…Research in this area has included prevalence and incidence studies with a variety of ethnically and culturally diverse groups (e.g., Warren, Shi, Young, Borenstein, & Martiniuk, 2015). Some research on culturally appropriate assessment tools (e.g., Naqvi, Haider, Tomlinson, & Alibhai, 2015) and intervention trials (e.g., Graham-Phillips, Roth, Huang, Dilworth-Anderson, & Gitlin, 2016) has also been done, but much more work is needed in both of these areas. This literature also includes case studies and small trials illustrating the particular difficulties faced by older immigrants and their families (Chua & Pachana, 2016;Lee Casado, Lee, Hong, & Hong, 2015;Leone et al, 2014).…”

Section: Editorialmentioning

confidence: 99%