Racial and Ethnic Disparities in Quality of Health Care Among Children with Autism and Other Developmental Disabilities

Magaña, Sandra; Parish, Susan L.; Rose, Roderick A.; Timberlake, Maria; Swaine, Jamie G.

doi:10.1352/1934-9556-50.4.287

Cited by 230 publications

(145 citation statements)

References 36 publications

Supporting

Mentioning

138

Contrasting

Order By: Relevance

“…25 Several recent studies have also specifically noted that a variety of patient-centered quality outcomes are lower among Latinos and other minorities than white non-Latinos with ASD. 26-28 Themes describing normalization and denial of ASD symptoms are also consistent with recent qualitative work with parents of children with ASD, 8 as well as other studies showing normalization of other mental health problems in Latino and other minority communities. 23,29 .…”

Section: Discussionsupporting

confidence: 83%

Conceptualization of Autism in the Latino Community and its Relationship With Early Diagnosis

Zuckerman

Sinche

Cobian

et al. 2014

Journal of Developmental &Amp; Behavioral Pediatrics

View full text Add to dashboard Cite

Objective Early identification of autism spectrum disorders (ASD) has been linked to improved long-term developmental outcomes. However, Latino children are diagnosed later than white non-Latino children. We aimed to qualitatively assess the understanding and conceptualization of ASD in the Latino community in order to understand potential community barriers to early diagnosis. Method We conducted 5 focus groups and 4 qualitative interviews with 30 parents of typically-developing Latino children in Oregon. Participants were asked structured questions concerning video vignettes that follow a Latina mother from the time she begins to worry about her 3-year-old son's behaviors to the time he receives an ASD diagnosis. Focus groups and interviews were audio-recorded, transcribed and independently coded. Coded data were analyzed using thematic analysis. Results Many Latino families in the study had not heard of ASD or had little information about it. Families sometimes assumed ASD red flags were normal or could be attributed to family dysfunction. Families also had concerns about provider communication and access to language services. Having a child with a developmental delay was associated with embarrassment, rejection, and family burden, making it difficult for parents to raise developmental concerns with providers. Conclusion Pediatric providers should not assume that Latino parents have heard of ASD or know its symptoms. Providers should be aware that parents may be reluctant to mention concerns due to cultural factors. The health care system needs to improve resources for Latino parents with limited English proficiency. Policies should encourage the use of developmental screening in primary care.

show abstract

Section: Discussionsupporting

confidence: 83%

Conceptualization of Autism in the Latino Community and its Relationship With Early Diagnosis

Zuckerman

Sinche

Cobian

et al. 2014

Journal of Developmental &Amp; Behavioral Pediatrics

View full text Add to dashboard Cite

show abstract

“…The nine included studies (Broder-Fingert et al 2013; Doshi et al 2017; Lin and Yu 2015; Liptak et al 2008; Magaña et al 2012; Magaña et al 2015; Parish et al 2012; Tint et al 2017; Zhang et al 2017) shared a number of methodological characteristics. Eight studies were cross-sectional (Broder-Fingert et al 2013; Lin and Yu 2015; Liptak et al 2008; Magaña et al 2012; Magaña et al 2015; Parish et al 2012; Tint et al 2017; Zhang et al 2017), and one (Doshi et al 2017) used panel data to estimate a longitudinal effect using a difference-in-difference-indifference estimation technique.…”

Section: Resultsmentioning

confidence: 99%

A Scoping Review of Health Disparities in Autism Spectrum Disorder

Bishop-Fitzpatrick

Kind

2017

J Autism Dev Disord

239

138

View full text Add to dashboard Cite

Individuals with autism spectrum disorder (ASD) experience increased morbidity and decreased life expectancy compared to the general population, and these disparities are likely exacerbated for those individuals who are otherwise disadvantaged. We conducted a review to ascertain what is known about health and health system quality (e.g., high quality care delivery, adequate care access) disparities in ASD. Nine studies met final inclusion criteria. Seven studies identified racial disparities in access to general medical services for children with ASD. No studies examined disparities in health outcomes or included older adults. We present a model of health disparities (Fundamental Causes Model) that guides future research. Additional work should examine health disparities, and their causal pathways, in ASD, particularly for older adults.

show abstract

“…8,9 Caregivers of children with ASD who are from racial or ethnic minority groups experience even greater difficulty than nonminority caregivers obtaining care. [10][11][12][13][14] Authors of these studies finding racial or ethnic differences in type and quality of care suggest that these differences may not result solely from health care system or provider factors (eg, availability of providers, sensitivity of providers) but also from parents' help-seeking behaviors. [15][16][17] Perceived need for a service precedes help-seeking behaviors.…”

mentioning

confidence: 99%

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

2016

View full text Add to dashboard Cite

OBJECTIVE: Identifying racial and ethnic differences in perceived need for treatment among families of children with autism spectrum disorder (ASD) will improve understanding of disparities in care seeking. We described racial and ethnic differences in perceived need for services that children with ASD and their families frequently use. METHODS:We conducted bivariate analyses of racial and ethnic categories and perceived need for 6 common services used by children with ASD as found in the 2005 to 2006 (n = 2123) and the 2009 to 2010 (n = 3055) National Survey of Children With Special Health Care Needs data sets. Multivariate logistic regressions within concatenated data sets were conducted to examine associations between racial and ethnic category and perceived service needs while controlling for predisposing, enabling, and child factors. RESULTS:Compared with caregivers of white non-Hispanic children with ASD, caregivers of Hispanic children reported less need for prescription medications in adjusted multivariate analyses. Caregivers of black non-Hispanic children with ASD reported less need for prescription medications and for child and family mental health services than caregivers of white non-Hispanic children. Both English-speaking Hispanic caregivers and black nonHispanic caregivers reported greater need for occupational, speech, and physical therapy than white non-Hispanic caregivers. No racial or ethnic differences were found in perceived need for specialty medical care or respite care. CONCLUSIONS:Caregivers of children with ASD from different racial and ethnic backgrounds may differentially perceive need for different types of care. Their perceptions may in turn affect how they prioritize and seek care, independent of their child's specific needs. Dr Benevides conceptualized and designed the study, analyzed the data, and drafted the initial manuscript; Dr Carretta contributed to the study design, data management, data analysis, and interpretation of the fi ndings and critically reviewed and revised the manuscript; Dr Mandell contributed to the study design and interpretation of the fi ndings and critically reviewed and revised the manuscript; and all authors approved the fi nal manuscript as submitted. [2][3][4] However, caregivers of children with ASD have reported that obtaining appropriate and timely care is often difficult and costly, 5 and many are dissatisfied with the process of obtaining care. 6,7 Caregivers of children with ASD report more unmet needs for a variety of services than caregivers of children with other emotional, developmental, or behavioral difficulties. 8,9 Caregivers of children with ASD who are from racial or ethnic minority groups experience even greater difficulty than nonminority caregivers obtaining care. [10][11][12][13][14] Authors of these studies finding racial or ethnic differences in type and quality of care suggest that these differences may not result solely from health care system or provider factors (eg, availability of providers, sensitivity of provide...

show abstract

Racial and Ethnic Disparities in Quality of Health Care Among Children with Autism and Other Developmental Disabilities

Cited by 230 publications

References 36 publications

Conceptualization of Autism in the Latino Community and its Relationship With Early Diagnosis

Conceptualization of Autism in the Latino Community and its Relationship With Early Diagnosis

A Scoping Review of Health Disparities in Autism Spectrum Disorder

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

Contact Info

Product

Resources

About