Randomized Controlled Trial of a Prompt List to Help Advanced Cancer Patients and Their Caregivers to Ask Questions About Prognosis and End-of-Life Care

Clayton, Josephine M.; Butow, Phyllis; Tattersall, Martin H. N.; Devine, Rhonda; Simpson, Judy M.; Aggarwal, Ghauri; Clark, Katherine; Currow, David C.; Elliott, Louise; Lacey, Judith; Lee, Philip G.; Noel, Michael

doi:10.1200/jco.2006.06.7827

Cited by 331 publications

(342 citation statements)

References 25 publications

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“…95 Provision of a question prompt list before a palliative medicine consultation results in patients asking twice as many questions and more discussion of prognostic and end-of-life issues, although may not lower patient anxiety levels or improve their satisfaction scores. 96 Alternative sources of information, such as books, pamphlets, broadcast media, telephone services, and the Internet, have been found to decrease uncertainty and give some sense of control, particularly for younger patients or when communication with the health professional was felt to be unsatisfactory. 40,70 Immigrants appreciate these resources when available in their native language.…”

Section: Style Of Delivery: Verbal and Nonverbal Aspectsmentioning

confidence: 99%

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

Ward¹,

Russell²

2011

CMAR

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Abstract:Communicating effectively with patients who have advanced cancer is one of the greatest challenges facing physicians today. Whilst guiding the patient through complex diagnostic and staging techniques, treatment regimens and trials, the physician must translate often imprecise or conflicting data into meaningful personalized information that empowers the patient to make decisions about their life and body. This requires understanding, compassion, patience, and skill. This narrative literature review explores current communication practices, information preferences of oncology patients and their families, and communication strategies that may assist in these delicate interactions. Overwhelmingly, the literature suggests that whilst the majority of patients with advanced cancer do want to know their diagnosis and receive detailed prognostic information, this varies not only between individuals but also for a given individual over time. Barriers to the delivery and understanding of information exist on both sides of the physician-patient relationship, and family dynamics are also influential. Despite identifiable trends, the information preferences of a particular patient cannot be reliably predicted by demographic, cultural, or cancer-specific factors. Therefore, our primary recommendation is that the physician regularly asks the patient what information they would like to know, who else should be given the information and be involved in decision making, and how that information should be presented.

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Section: Style Of Delivery: Verbal and Nonverbal Aspectsmentioning

confidence: 99%

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

Ward¹,

Russell²

2011

CMAR

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“…Interactivity was calculated from the RIAS codes as the average number of turns per minute. 27 Additionally, the QPS endorsement by the counselor was coded as absent, basic (counselor refers to QPS and introduces questions on QPS), or extended (counselor invites counselee to interrupt and ask any other questions, reviews questions, explains importance of asking questions), as was performed previously by Clayton et al 32 Coders rated whether the counselor introduced and answered the questions written on the QPS and invited further questions, and whether the QPS questions were reviewed at the end of the consultation. Coding was conducted by three trained coders.…”

Section: Coding Of Videotapesmentioning

confidence: 99%

A pre-visit website with question prompt sheet for counselees facilitates communication in the first consultation for breast cancer genetic counseling: findings from a randomized controlled trial

Albada

Dulmen

Ausems

et al. 2012

Genetics in Medicine

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original research article 535 Purpose: The initial breast cancer genetic counseling visit is mainly educational, with large amounts of relatively standard information and little counselee participation. Counselors might provide more counselee-specific information if counselees would participate more. A pre-visit website providing computer-tailored information and a question prompt sheet (QPS) might help counselees to pursue a more active role. methods:Counselees were randomized to receive usual care (UC) or UC plus the pre-visit website. The QPS questions were sent to the counselor before the visit. All counselees completed a baseline questionnaire, and visits were videotaped.Results: Intervention-group counselees (n = 102) did not ask more questions than UC-group counselees (n = 90). However, counselees in the intervention group more often shared their agenda (B = 10.37; confidence interval (CI) 2.68-18.06; P = 0.01), directed the communication (B = 0.41; CI 0.28-0.53; P = 0.01), and paraphrased the counselors' words (B = 5.18; CI 0.43-9.92; P = 0.03). Counselors introduced and answered the QPS questions. As a result, they provided more information about the topics of these questions, and the information provided was more specific to whether there was an indication for DNA testing.conclusion: A pre-visit website with QPS helped counselees to communicate more assertively. As a result, the information provided was more counselee specific, without affecting the visit duration.Genet Med 2012:14(5):535-542

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“…After extensive work in academic settings [5][6][7]9, 10], Dimoska et al published an account of a limited-term implementation in a community clinic in Australia [11]. Belkora and colleagues have reported on long-term implementations in academic and community settings with a regional reach around Northern California [12][13][14][15][16][17].…”

Section: Introductionmentioning

confidence: 99%

Evaluation of question-listing at the Cancer Support Community

Belkora

Miller

Crawford

et al. 2013

Behav. Med. Pract. Policy Res.

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The Cancer Support Community (CSC) provides psychosocial support to people facing cancer in community settings. The purpose of this study was to evaluate the compatibility, effectiveness, and fidelity of the Situation-Choices-Objectives-People-EvaluationDecisions (SCOPED) question-listing intervention at three CSC sites. Between August 2008 and August 2011, the Program Director at each CSC site implemented question-listing, while measuring patient distress, anxiety, and self-efficacy before and after each intervention. We analyzed the quantitative results using unadjusted statistical tests and reviewed qualitative comments by patients and the case notes of Program Directors to assess compatibility and fidelity. Program Directors implemented question-listing with 77 blood cancer patients. Patients reported decreased distress (p00.009) and anxiety (p00.005) and increased self-efficacy (p<0.001). Patients and Program Directors endorsed the intervention as compatible with CSC's mission and approach and feasible to implement with high fidelity. CSC effectively translated SCOPED question-listing into practice in the context of its community-based psychosocial support services at three sites.

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Randomized Controlled Trial of a Prompt List to Help Advanced Cancer Patients and Their Caregivers to Ask Questions About Prognosis and End-of-Life Care

Abstract: Providing a QPL and physician endorsement of its use assists terminally ill cancer patients and their caregivers to ask questions and promotes discussion about prognosis and end-of-life issues, without creating patient anxiety or impairing satisfaction.

Cited by 331 publications

References 25 publications

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

A pre-visit website with question prompt sheet for counselees facilitates communication in the first consultation for breast cancer genetic counseling: findings from a randomized controlled trial

Evaluation of question-listing at the Cancer Support Community

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