Randomized pilot of a self-guided internet coping group for women with early-stage breast cancer

Owen, Jason E.; Klapow, Joshua C.; Roth, David L.; Shuster, John L.; Bellis, Jeff; Meredith, Ron L.; Tucker, Diane C.

doi:10.1207/s15324796abm3001_7

Cited by 176 publications

(212 citation statements)

References 38 publications

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“…Thus far, positive outcomes have been reported in RCTs of Internet interventions across a wide range of clinical outcomes, including asthma management (20,30,59,74,111), caregiving stress (84,85), breast cancer coping (104,157), chronic pain (13,14,15,45,54), congestive heart failure symptom monitoring (4,64,117), diabetes self management (5, 8, 11, 21, 50, 65-68, 75, 89-91), problem drinking (77,86,148), falls prevention (160), headache management (31,125,132), multiple risk behavior change (76), cardiac rehabilitation (126), HIV prevention (12,63,141), medical decision making (7,16,72), cognitive stimulation in Alzheimer's (136) (32,151), tinnitus distress (3), and weight loss (44, 56, 58, 92, 118, 121, 137-139, 152, 154, 155).…”

Section: Do Internet Interventions Work?mentioning

confidence: 99%

The Delivery of Public Health Interventions via the Internet: Actualizing Their Potential

Bennett

Glasgow

2009

Annu. Rev. Public Health

730

655

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The Internet increasingly serves as a platform for the delivery of public health interventions. The efficacy of Internet interventions has been demonstrated across a wide range of conditions. Much more work remains, however, to enhance the potential for broad population dissemination of Internet interventions. In this article, we examine the effectiveness of Internet interventions, with particular attention to their dissemination potential. We discuss several considerations (characterizing reach rates, minimizing attrition, promoting Web site utilization, use of tailored messaging and social networking) that may improve the implementation of Internet interventions and their associated outcomes. We review factors that may influence the adoption of Internet interventions in a range of potential dissemination settings. Finally, we present several recommendations for future research that highlight the potential importance of better understanding intervention reach, developing consensus regarding Web site usage metrics, and more broadly integrating Web 2.0 functionality.

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Section: Do Internet Interventions Work?mentioning

confidence: 99%

The Delivery of Public Health Interventions via the Internet: Actualizing Their Potential

Bennett

Glasgow

2009

Annu. Rev. Public Health

730

655

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“…Other recent studies with breast cancer patients have shown mixed or negative results. (Edelman et al, 1999;Edmonds et al, 1999;Scholten et al, 2001;Owen et al, 2005). However, none of these trials used a specialised breast nurse.…”

Section: Previous Research On Psycho-educational Interventions With Pmentioning

confidence: 99%

Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial

et al. 2006

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Addressing psychosocial and quality of life needs is central to provision of excellent care for people with advanced cancer. This study tested a brief nurse-delivered intervention to address the needs of urban women with advanced breast cancer. This study was conducted at four large urban hospitals in Australia. One hundred and five women with advanced breast cancer were recruited and randomised to receive the intervention or usual care, then asked to complete the European Organisation of Research and Treatment of Quality of life Q-C30 version (2.0) (EORTC Q-C30) (version 2) and Supportive Care Needs Survey (SCNS) at 1 month and 3 months postrecruitment. No significant differences were detected between intervention and usual care groups in the SCNS or the EORTC Q-C30 subscale scores. However, when the groups were divided into high needs (score of above 50) and low baseline needs (score of 50 or below) for each SCNS subscale, a significant difference between intervention and usual care groups was found in the psychological/emotional subscale among women with high baseline needs. In conclusions, this study demonstrated that a faceto-face session and follow-up phone call with a breast care nurse significantly reduced the psychological and emotional needs of those with high initial needs. There was no evidence of the intervention influencing the quality of life; or perceived needs of women with low initial psychological/emotional needs or perceived needs in other domains. Possibly, the intervention was not sufficiently intense to achieve an effect. British Journal of Cancer (2006) Advanced breast cancer is the most common cause of cancer death in women from developed countries (Stewart and Kleihues, 2003). When a person has incurable disease, optimising quality of life and meeting the woman's psychosocial and information needs must be central to excellent care . Extending survival time with aggressive treatments without considering these issues may do more harm than good. It is critical to address the substantial psychosocial and informational needs of people with advanced cancer Aranda et al, 2005). This study reports a trial of a brief, structured, nurse-delivered intervention designed to meet the psychosocial, informational and self-care needs of women with advanced breast cancer. Previous research on psycho-educational interventions with people with cancerIn a systematic review (Newell et al, 2002) of psychological interventions for cancer patients, it was concluded that a range of interventions including group-based and individual therapies, informational and educational interventions, guided imagery and cognitive behavioural therapies showed promise for improving patient outcomes and warranted further rigorous research.Many studies involving psycho-educational interventions for women with breast cancer have demonstrated positive results; however, the majority of them were delivered by a trained psychologist or psychiatrist (Newell et al, 2002). Another recent systematic review of psychological group intervent...

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“…21 In a large sample of the impact of social networking on breast cancer survivors, each additional member in a given person's social network independently predicted higher quality of life. 22 Social networking components are likely to motivate those with cancer to participate in online communities [23][24][25] and have been linked with positive health outcomes. 26,27 Given the popularity of sites, such as Facebook, there is a high level of user demand for social networking features in eHealth interventions, and understanding how to marry these features with established eHealth intervention components has substantial promise for increasing the efficacy of these kinds of interventions.…”

mentioning

confidence: 99%

Characterizing Social Networks and Communication Channels in a Web-Based Peer Support Intervention

Owen

Curran

Bantum

et al. 2016

Cyberpsychology, Behavior, and Social Networking

Self Cite

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Web and mobile (mHealth) interventions have promise for improving health outcomes, but engagement and attrition may be reducing effect sizes. Because social networks can improve engagement, which is a key mechanism of action, understanding the structure and potential impact of social networks could be key to improving mHealth effects. This study (a) evaluates social network characteristics of four distinct communication channels (discussion board, chat, e-mail, and blog) in a large social networking intervention, (b) predicts membership in online communities, and (c) evaluates whether community membership impacts engagement. Participants were 299 cancer survivors with significant distress using the 12-week health-space.net intervention. Social networking attributes (e.g., density and clustering) were identified separately for each type of network communication (i.e., discussion board, blog, web mail, and chat). Each channel demonstrated high levels of clustering, and being a community member in one communication channel was associated with being in the same community in each of the other channels (u = 0.56-0.89, ps < 0.05). Predictors of community membership differed across communication channels, suggesting that each channel reached distinct types of users. Finally, membership in a discussion board, chat, or blog community was strongly associated with time spent engaging with coping skills exercises (Ds = 1.08-1.84, ps < 0.001) and total time of intervention (Ds = 1.13-1.80, ps < 0.001). mHealth interventions that offer multiple channels for communication allow participants to expand the number of individuals with whom they are communicating, create opportunities for communicating with different individuals in distinct channels, and likely enhance overall engagement.

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Randomized pilot of a self-guided internet coping group for women with early-stage breast cancer

Abstract: These results demonstrate the potential efficacy of self-guided Internet coping groups while highlighting the limitations of such groups.

Cited by 176 publications

References 38 publications

The Delivery of Public Health Interventions via the Internet: Actualizing Their Potential

The Delivery of Public Health Interventions via the Internet: Actualizing Their Potential

Meeting the support and information needs of women with advanced breast cancer: a randomised controlled trial

Characterizing Social Networks and Communication Channels in a Web-Based Peer Support Intervention

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