Rationed Care: Assessing the Support Needs of Informal 
Carers in English Social Services Authorities

Arksey, Hilary

doi:10.1017/s0047279402006529

Cited by 29 publications

(28 citation statements)

References 17 publications

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“…1 42 Informing carers of social security benefits, and their right to an assessment for service support, is not routine practice, while the quality, type, and availability of service support varies considerably. [43][44][45] As a consequence, many carers may have been caring for some time before getting the support they need, or may never receive it.…”

Section: Discussionmentioning

confidence: 99%

Transitions to informal care in Great Britain during the 1990s

Hirst

2002

Journal of Epidemiology &Amp; Community Health

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Objectives: To estimate annual changes and trends in the population of informal carers and to investigate transitions to caregiving by age, gender, locus of care, and level of involvement. Design: Longitudinal analysis of data from the British household panel survey, 1991 to 1998, an annual prospective survey of a nationally representative sample of more than 5000 private households in England, Scotland, and Wales. Subjects: Over 9000 adults over 16 years interviewed personally in successive waves of the survey, including around 1300 informal carers each year. Results: One third of co-resident carers and 40% of extra-resident carers start caregiving each year and similar proportions cease to provide care. Five year period rates are at least 75% higher than the one year prevalence estimates. Almost everyone is involved in caregiving at one time or another and over half are likely to provide 20 hours or more care per week at some point in their lives. Recent trends indicate that more adults are becoming heavily involved in providing longer episodes of care. Although the onset of caregiving peaks in late middle and early older age, above average incidences span three decades or more of adult life. Age variations in the start of caring relationships are driven by the changing demands for care within and between generations over the life course. There is no firm evidence that carers increase their involvement in caring activities over the first three years of a caring episode.Conclusions: The population of carers is constantly changing as some people stop providing care and others take on a caring role or vary their level of involvement. Policy measures responsive to the diversity of caring roles, and geared around key transitions, are likely to be most effective in supporting carers through changing circumstances. Recognition and support for carers who are heavily involved in caring activities from the outset should be a priority.T he market value, or replacement cost, of unpaid care provided by family members and friends to ill and disabled adults in the United States was estimated to be $196 billion in 1997. 1 The economic value of informal caregiving in Britain is reported to be around £34 billion per year, although the methodologies used to produce such estimates are contested. 1a 2 However, few would argue that state provision of care could ever replace the carers' role or that, without their contribution, community health and social care services could cope with the additional demands on their resources. On the contrary, supporting informal carers in their caring role is high on the public policy agendas of many developed countries.With mounting concern about funding the long term care needs of older people, a determined shift from institutional arrangements to community and home based provision, and uncertainty about the impact of demographic and social change on the demand for and supply of family care, government policies towards carers and the people they care for are evolving rapidly. 3 Central to policy ...

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Section: Discussionmentioning

confidence: 99%

Transitions to informal care in Great Britain during the 1990s

Hirst

2002

Journal of Epidemiology &Amp; Community Health

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“…Previous literature in particular refers, for example, to (i) the financial cost of care dependency to the extent it accrues to informal caregivers (Colombo et al, 2011) and (ii) the respite effect of work for informal caregivers (Arksey, 2002b;Carmichael and Charles, 2003b;Heitmueller, 2007). Previous literature in particular refers, for example, to (i) the financial cost of care dependency to the extent it accrues to informal caregivers (Colombo et al, 2011) and (ii) the respite effect of work for informal caregivers (Arksey, 2002b;Carmichael and Charles, 2003b;Heitmueller, 2007).…”

Section: Care-related Measuresmentioning

confidence: 99%

“Do I Stay or Do I Go?”—job Change and Labor Market Exit Intentions of Employees Providing Informal Care to Older Adults

et al. 2012

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We studied the effects of providing informal eldercare on the turnover intention of men and women in a group of workers who were also the main carers providing support to a dependent older person with substantial care needs. The intention of male and female workers to change jobs and exit the labor market is shaped by the different characteristics of informal caregiving. Time-based conflicts between informal care and paid work are associated with a higher relative risk of anticipating job changes for female workers. Flextime facilitates the job and labor market attachment of female workers with eldercare responsibilities. The intensity of personal care provided to an older relative is significantly positively related to male workers' relative risk of anticipated labor market exit. Care to an older person in need of supervision makes the labor market exit of female workers less likely, lending thus support to the idea of the respite effect of work.

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“…Our findings have important implications for service provision in the community, which has at its core, the commitment that older people should be independent for as long as possible (Arksey, 2002). It has been argued that clubs geared to responding to the health and social needs of older people provide a locus of social interaction and information which facilitates frail older men and women maintaining independence (Thewlis, 2001).…”

Section: Resultsmentioning

confidence: 82%

Older Men, Social Integration and Organisational Activities

Davidson¹,

Daly²,

Arber³

2003

Social Policy & Society

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K a t e D a v i d s o n , To m D a l y a n d S a r a A r b e rThis article investigates the influence of partnership status on older men's involvement in social organisations, drawing on qualitative research. Men are found to be highly resistant to participation in organisations that cater primarily for the needs of older people. Older divorced and never-married men are more susceptible to social isolation and poor health than married men. This could be ameliorated by membership of such establishments, yet their resistance is the greatest. Policy implications focus on identifying and responding to appropriate provision of organisational and communal activities for ageing men, particularly those who spend their later years without a partner.

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Rationed Care: Assessing the Support Needs of Informal Carers in English Social Services Authorities

Cited by 29 publications

References 17 publications

Transitions to informal care in Great Britain during the 1990s

Transitions to informal care in Great Britain during the 1990s

“Do I Stay or Do I Go?”—job Change and Labor Market Exit Intentions of Employees Providing Informal Care to Older Adults

Older Men, Social Integration and Organisational Activities

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