Reaching beyond the white middle classes

Boynton, Petra; Wood, Gary W.; Greenhalgh, Trisha

doi:10.1136/bmj.328.7453.1433

Cited by 63 publications

(49 citation statements)

References 14 publications

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“…This may reflect difficulties in prognostication or differing levels of support and the reasons behind these differences need further exploration. Additionally, ethnic minority groups are often under-represented in research studies33 and all of our participants described themselves as ‘white’ ethic origin. Previous work with VOICES suggests that having direct involvement and engagement with representatives from the local communities can aid in response rate rather than simply having translators available or directly translating the survey instrument 34…”

Section: Discussionmentioning

confidence: 94%

Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives

Mayland

Lees

Germain

et al. 2014

BMJ Support Palliat Care

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BackgroundAs well as facilitating patients’ wish to die at home, evaluating quality of care in this setting is essential. Postbereavement surveys with family members represent one assessment method. ‘Care Of the Dying Evaluation’ (CODE) is a 40-item self-completion postbereavement questionnaire, based on the key components of best practice for care of the dying.AimTo assess the validity and reliability of CODE by conducting: cognitive ‘think aloud’ interviews; test–retest analysis; and assessing internal consistency and construct validity of three key composite scales.DesignPostbereavement survey to next-of-kin (NOK).Setting/participants291 NOK to patients who died at home in Northwest England from an advanced incurable illness were invited to complete the CODE questionnaire. Additionally, potential participants were asked to undertake a cognitive interview and/or complete CODE for a second time a month later.Results72 bereaved relatives (24.7% response rate) returned the completed CODE questionnaire, and 25 completed CODE for a second time. 15 cognitive interviews were undertaken. All interviewees found CODE sensitively worded and easy to understand. Minor revisions were suggested to provide additional clarity. Test–retest analysis showed all except one question had moderate or good stability. Although the ENVIRONMENT scale was not as relevant within the home setting, all three key composite scales showed good internal consistency and construct validity.Conclusions‘CODE’ represents a user-friendly, comprehensive outcome measure for care of the dying and has been found to be valid and reliable. CODE could potentially be used to benchmark individual organisations and identify areas for improvement.

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Section: Discussionmentioning

confidence: 94%

Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives

Mayland

Lees

Germain

et al. 2014

BMJ Support Palliat Care

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show abstract

“…Sociodemographic factors may have an impact on response rates. 15 Last, it is possible that these factors would lead to less variability in responses in surveys distributed within the workplace, rather than outside of the workplace.…”

Section: Resultsmentioning

confidence: 98%

A Comparison of Two Distribution Methods on Response Rates to a Patient Safety Questionnaire in Nursing Homes

Lapane

Quilliam

Hughes

2007

Journal of the American Medical Directors Association

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“…In collecting information about people's knowledge, beliefs, attitudes, and behaviour, questionnaire studies are widely used [23,24]. Often a qualitative approach is used beforehand to explore the territory and map key areas for further study [24].…”

Section: Methodsological Issues In Research Education and Quality Immentioning

confidence: 99%

“…Often a qualitative approach is used beforehand to explore the territory and map key areas for further study [24]. However, discussion is needed about questionnaire research methods and the validity of scales and end-points in trials [25].…”

Section: Methodsological Issues In Research Education and Quality Immentioning

confidence: 99%

Addressing the future role of general practice at the 16th Nordic Congress in Copenhagen 2009: How can we ensure sustainable care in a complex world of evidence, context, organization, and personal care?

Reventlow¹,

Sångren²,

Brodersen³

et al. 2008

Scandinavian Journal of Primary Health Care

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Reaching beyond the white middle classes

Cited by 63 publications

References 14 publications

Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives

Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives

A Comparison of Two Distribution Methods on Response Rates to a Patient Safety Questionnaire in Nursing Homes

Addressing the future role of general practice at the 16th Nordic Congress in Copenhagen 2009: How can we ensure sustainable care in a complex world of evidence, context, organization, and personal care?

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