Reaktive Veränderungen in Befinden und Verhalten von Kindern bei elterlicher Krebserkrankung – Ergebnisse einer epidemiologischen Patientenbefragung

Bergelt, Corinna; Ernst, Johanna; Beierlein, Volker; Inhestern, Laura; Holes, Sarah; Möller, Birgit; Romer, Georg; Koch, Uwe

doi:10.13109/prkk.2012.61.6.378

Cited by 10 publications

(3 citation statements)

References 18 publications

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“…Children may have undergone posttraumatic growth (PTG), a well‐known concept in psycho‐oncology that highlights positive development as a result of the struggling with challenging life crises. This finding is supported by studies indicating that the majority of children derived both negative changes and benefits from the experience of parental cancer . A qualitative study with adolescents currently experiencing parental breast cancer confirms the finding that children not only adjust back to baseline functioning (resilience) but report PTG, such as greater appreciation for life and a sense of increased personal strength …”

Section: Discussionsupporting

confidence: 60%

“…This finding is supported by studies indicating that the majority of children derived both negative changes and benefits from the experience of parental cancer. 31,32 A qualitative study with adolescents currently experiencing parental breast cancer confirms the finding that children not only adjust back to baseline functioning (resilience) but report PTG, such as greater appreciation for life and a sense of increased personal strength. 33 However, a minority of children becomes highly distressed and develops psychosocial problems 7,34,35 and must be identified by health care professionals.…”

Section: Discussionmentioning

confidence: 80%

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Parental cancer: Health‐related quality of life and current psychosocial support needs of cancer survivors and their children

Bultmann

Beierlein

Romer

et al. 2014

Intl Journal of Cancer

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The presence of cancer and additional parental responsibilities can increase strain for individual patients as well as for their children. The construct of health‐related quality of life (HRQL) is appropriate to measure a combination of physical, mental and social consequences as a result of disease. However, previous research has merely focused on symptom checklists. This study addresses the following questions: (i) does HRQL in children and their parents with cancer differ compared to the general population? (ii) Are there any variables that are associated with HRQL in children? (iii) What are current psychosocial support needs? A population‐based survey of 976 survivors (<6 years post diagnosis) with minor children between 6 and 18 years (n = 1,449) was conducted with two German cancer registries. HRQL was assessed using SF‐8 (survivors) and Kidscreen (children). The results were compared to normative populations, and predictors associated with HRQL in children were evaluated within a multilevel model. We found that the HRQL in children was better compared to the norm. Only children with support needs had worse HRQL. Older age, having a mother with cancer, having a parent not living together with a partner, and worse parental physical and mental health influenced HRQL in children. Illness characteristics were irrelevant. Even with a mean of 3.5 years after diagnosis, survivors had lower physical and mental health compared to the norm. Our findings reinforce the need for health professionals to pay attention to younger patients and their children. Even years after diagnosis, life might not have returned to normal.

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Section: Discussionsupporting

confidence: 60%

Section: Discussionmentioning

confidence: 80%

Parental cancer: Health‐related quality of life and current psychosocial support needs of cancer survivors and their children

Bultmann

Beierlein

Romer

et al. 2014

Intl Journal of Cancer

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“…Parental burden and changes in daily routines substantially impact children of parents with cancer. 14 , 15 About half of the underage children living in families with parental cancer are considered to be substantially distressed 16 and develop behavioral problems, with about a third developing psychological symptoms. 15 , 17 , 18 , 19…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of a comprehensive support program for families with parental cancer (Family-SCOUT): results of a multicenter non-randomized controlled trial

Petermann-Meyer,

Panse,

Bremen

et al. 2024

ESMO Open

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Impact of family‐oriented rehabilitation and prevention: an inpatient program for mothers with breast cancer and their children

2013

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Data suggest that the family-oriented intervention 'getting well together' seems to be beneficial to mothers' and children's quality of life and psychological well-being. Combining oncological rehabilitation and preventive child-centered interventions might be a feasible approach to supporting breast cancer patients and their children and improving their emotional state. Further research is warranted.

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Reaktive Veränderungen in Befinden und Verhalten von Kindern bei elterlicher Krebserkrankung – Ergebnisse einer epidemiologischen Patientenbefragung

Cited by 10 publications

References 18 publications

Parental cancer: Health‐related quality of life and current psychosocial support needs of cancer survivors and their children

Parental cancer: Health‐related quality of life and current psychosocial support needs of cancer survivors and their children

Effectiveness of a comprehensive support program for families with parental cancer (Family-SCOUT): results of a multicenter non-randomized controlled trial

Impact of family‐oriented rehabilitation and prevention: an inpatient program for mothers with breast cancer and their children

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