Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics – By Hans S. Reinders

Graves, Thomas H.

doi:10.1111/j.1748-0922.2009.01341_32.x

Cited by 5 publications

(6 citation statements)

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“…These statements correspond with the outcome of a previous study in which family members of children with profound intellectual and multiple disabilities mentioned that their child or sibling, according to them, is not able to make friends (Lahaije et al, 2023). Other studies, on the other hand, indicate that, despite the severity of their disabilities, persons with profound intellectual and multiple disabilities are capable of building and maintaining meaningful relationships that are essential for them to express their needs and feelings and gain control over their daily lives (Hauwert, 2018;Reinders, 2008;Vlaskamp & van der Putten, 2009). These relationships could also be advantageous for others, for example, in valuing vulnerability and dependency (Hughes et al, 2011;Reinders, 2008).…”

Section: Discussionmentioning

confidence: 99%

“…Other studies, on the other hand, indicate that, despite the severity of their disabilities, persons with profound intellectual and multiple disabilities are capable of building and maintaining meaningful relationships that are essential for them to express their needs and feelings and gain control over their daily lives (Hauwert, 2018; Reinders, 2008; Vlaskamp & van der Putten, 2009). These relationships could also be advantageous for others, for example, in valuing vulnerability and dependency (Hughes et al, 2011; Reinders, 2008). Moreover, our study also showed that adding multiple and varied practical examples to the instrument helped to formulate concepts that initially seemed unfeasible.…”

Section: Discussionmentioning

confidence: 99%

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Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU‐PIMD to support families

Luitwieler,

Luijkx,

van der Stege

et al. 2023

Research Intellect Disabil

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BackgroundFor families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition process of these adolescents, we adapted the Canadian skills for growing up (SGU) into the skills for growing up‐profound intellectual and multiple disabilities (SGU‐PIMD). The aim of this study is to determine its content validity.MethodA Delphi study with family members and healthcare professionals was conducted.ResultsResults showed good content validity. However, the Delphi panel suggested minor adjustments to improve relevance, comprehensibility and comprehensiveness.ConclusionsThe current SGU‐PIMD can be used in practice for supporting adolescents with profound intellectual and multiple disabilities. However, there are also recommendations for research into the feasibility and acceptability of the instrument.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU‐PIMD to support families

Luitwieler,

Luijkx,

van der Stege

et al. 2023

Research Intellect Disabil

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“…Euro-American ideals of individual autonomy and self-determination, alongside cultural celebrations of achievement, can abrasively rub up against the lived realities of those with disabilities and relationships marked by profound interdependence (Landsman, 2009), where a child might require a high level of care for the rest of their lives. As Hans S. Reinders (2008) points out, our view of life's worth depends very much on our interpretation of a good life and how we understand our own being as humans.…”

Section: The Emotional Distribution Of Disability and Facilitated Dec...mentioning

confidence: 99%

Between us: Facilitated decision‐making in the relational experience of profound intellectual disability

Jackson

2023

Ethos

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This article situates an analysis of facilitated decision‐making in the lived relational experience of caring for someone with a profound intellectual disability. Drawing from the experiences of a father and daughter residing in Boston, Massachusetts, I highlight the emotional dynamics and expressions of ableism that reverberate through social institutions and intersubjective relationships in shaping actions and practices around decision‐making support. These ubiquitous encounters, rooted in shared relational histories, bring into focus the affective grounds and embodied motivations that inform the practice of facilitated decision‐making within public spaces and systems. In the context of this article, these decisions are geared toward carving out a place of belonging, a goal beset with uncertainty. By demonstrating that disability is a relational experience and that decision‐making is an embodied evaluative process, deeply entwined with social and communicative practices, I aim to show what this practice looks like in the thick of everyday moral life.

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“…Anthropological scholarship on disability is not new, and in recent years, anthropologists have explored a wide array of topics, ranging from kinship (Addlakha, 2020;Rapp & Ginsburg, 2011;Sargent, 2021), community (Green, 2014;Ryan Idriss, 2021), andreligion (McKearney, 2018;Reinders, 2008) to scientific, media, and medical institutions (Ginsburg & Rapp, 2013;Hartblay, 2020). In India, anthropologists have analyzed specific experiences of impairment and disability with respect to gender, familial care, the state, and neoliberal structures (Friedner, 2015;Ghosh & Banerjee, 2017;Staples, 2005).…”

Section: Disability and Sexuality: A Brief Overviewmentioning

confidence: 99%

From problem‐centered to centering relationalities: Engagements with disability and sexuality in India

Vaidya

2023

Feminist Anthropology

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This article analyses how the sites of disability activism, special education, and online‐matchmaking approach the sexuality of disabled people in India. It argues that across these distinct yet overlapping sites, the sexuality of disabled people is engaged as a problem in need of a fix, which ultimately leads to the narrowing of disabled people's sexual choices, behaviors, and identities. The article suggests that when these field‐sites move away from a problem‐centered approach which focuses on looking for normative solutions and instead engage in the process of “problematization” by facilitating the sexuality of disabled people, they end up opening non‐normative, uncertain, yet perhaps more fulfilling sexual opportunities for disabled people.

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Receiving the Gift of Friendship: Profound Disability, Theological Anthropology, and Ethics – By Hans S. Reinders

Cited by 5 publications

References 0 publications

Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU‐PIMD to support families

Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU‐PIMD to support families

Between us: Facilitated decision‐making in the relational experience of profound intellectual disability

From problem‐centered to centering relationalities: Engagements with disability and sexuality in India

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