Recognition, identification, and diagnosis announcement of neonatal arterial ischemic stroke: A combined exploratory quantitative and qualitative study on parents’ lived experiences

Martins, Cindy Leal; Chabrier, Stéphane; Fluss, Joël Victor

doi:10.1016/j.arcped.2021.02.002

Cited by 9 publications

(2 citation statements)

References 27 publications

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“…Findings from qualitative studies can benefit healthcare practitioners conceptually by giving insight into ‘what it is “like” to live, play, learn with, or receive care for a specific condition’ 24 . Four studies have investigated the lived experiences of caregivers affected by pediatric stroke, with findings indicating that caregivers felt emotionally distressed and unprepared for the burdens associated with stroke sequelae 25–28 . To guide healthcare practitioners in supporting their patients, scientists have indicated the need to hear from affected young people directly about adjustment after stroke 25,26 .…”

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confidence: 99%

“…24 Four studies have investigated the lived experiences of caregivers affected by pediatric stroke, with findings indicating that caregivers felt emotionally distressed and unprepared for the burdens associated with stroke sequelae. [25][26][27][28] To guide healthcare practitioners in supporting their patients, scientists have indicated the need to hear from affected young people directly about adjustment after stroke. 25,26 To our knowledge, the present study is the first to examine the lived experience of young people with pediatric stroke from their own perspective.…”

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confidence: 99%

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Adjusting to life after pediatric stroke: A qualitative study

Champigny

Feldman

Westmacott

et al. 2023

Develop Med Child Neuro

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AimTo examine adjustment after stroke in adolescence from the perspective of affected young people.MethodFourteen participants (10 female) aged 13 to 25 years with a history of ischemic or hemorrhagic stroke in adolescence participated in one‐on‐one semi‐structured interviews at the Hospital for Sick Children, Toronto, Canada. Interviews were audio‐recorded and transcribed verbatim. Two independent coders conducted a reflexive thematic analysis.ResultsFive themes were identified as representative of adjustment after stroke: (1) ‘Processing the story’; (2) ‘Loss and challenges’; (3) ‘I've changed’; (4) ‘Keys to recovery’; and (5) ‘Adjustment and acceptance’.InterpretationThis qualitative study provides medical professionals with a personal, patient‐driven lens through which to better understand the challenges of adjusting to life after pediatric stroke. Findings highlight the need to provide mental health support to patients to assist them in processing their stroke and adapting to long‐lasting sequelae.

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confidence: 99%