Recommendations for translation and reliability testing of international spinal cord injury data sets

Biering‐Sørensen, Fin; Alexander, Marcalee; Burns, Stephen P.; Charlifue, Susan; DeVivo, Michael J.; Dietz, Volker; Krassioukov, Andrei V.; Marino, Ralph J.; Noonan, Vanessa K.; Post, Marcel W M; Stripling, T; Vogel, Larry C.; Wing, Peter

doi:10.1038/sc.2010.153

Cited by 81 publications

(118 citation statements)

References 24 publications

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“…We strongly advise that this be done according to the recommendations of the Executive Committee for the International SCI Standards and Data Sets. 50 The authors invite all those who are interested to participate in this open and ongoing process.…”

Section: Discussionmentioning

confidence: 99%

International Spinal Cord Injury Upper Extremity Basic Data Set

et al. 2014

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Section: Discussionmentioning

confidence: 99%

International Spinal Cord Injury Upper Extremity Basic Data Set

et al. 2014

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“…As the literal translation of the term psychological health ('psychologische gezondheid') would easily be associated with psychiatric illness, it was described as mental health, emotions and mood ('mentale gezondheid, emoties en stemming') to ensure conceptual equivalence. 10 The final translation was reviewed and approved by a panel of eight physician specialists in SCI rehabilitation.…”

Section: Instrumentsmentioning

confidence: 99%

“…We feel confident about the quality of our translation, as it followed the recommendations for translation of the International SCI Data Sets. 10 In addition, as many previous translations of QoL measures used a similar terminology, the independent translations did not reveal major problems, and the final version was approved by an expert panel.…”

Section: Limitations Of This Studymentioning

confidence: 99%

“…Content validity is always important, whereas construct and convergent validity are only relevant if a data set is used as a measure. 10 The QoL Basic Data Set is likely to be used as a measure, and therefore its psychometric properties have to be examined and this has not been done to date. The purpose of the current paper, therefore, is to examine the construct and convergent validity of the QoL Basic Data Set.…”

Section: Introductionmentioning

confidence: 99%

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Good validity of the international spinal cord injury quality of life basic data set

et al. 2015

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“…In this respect, it is additionally advised to adhere to the recommendations given by the Executive Committee for the International SCI Standards and Data Sets. 15 The authors invite all those who are interested to participate in this open and ongoing process.…”

Section: Discussionmentioning

confidence: 99%

International Spinal Cord Injury Pulmonary Function Basic Data Set

Biering‐Sørensen

Krassioukov

Alexander³

et al. 2012

Spinal Cord

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Objectives: To develop the International Spinal Cord Injury (SCI) Pulmonary Function Basic Data Set within the framework of the International SCI Data Sets in order to facilitate consistent collection and reporting of basic bronchopulmonary findings in the SCI population. Setting: International. Methods: The SCI Pulmonary Function Data Set was developed by an international working group. The initial data set document was revised on the basis of suggestions from members of the Executive Committee of the International SCI Standards and Data Sets, the International Spinal Cord Society (ISCoS) Executive and Scientific Committees, American Spinal Injury Association (ASIA) Board, other interested organizations and societies and individual reviewers. In addition, the data set was posted for 2 months on ISCoS and ASIA websites for comments. Results: The final International SCI Pulmonary Function Data Set contains questions on the pulmonary conditions diagnosed before spinal cord lesion,if available, to be obtained only once; smoking history; pulmonary complications and conditions after the spinal cord lesion, which may be collected at any time. These data include information on pneumonia, asthma, chronic obstructive pulmonary disease and sleep apnea. Current utilization of ventilator assistance including mechanical ventilation, diaphragmatic pacing, phrenic nerve stimulation and Bi-level positive airway pressure can be reported, as well as results from pulmonary function testing includes: forced vital capacity, forced expiratory volume in one second and peak expiratory flow. The complete instructions for data collection and the data sheet itself are freely available on the website of ISCoS (http://www.iscos.org.uk).

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Recommendations for translation and reliability testing of international spinal cord injury data sets

Cited by 81 publications

References 24 publications

International Spinal Cord Injury Upper Extremity Basic Data Set

International Spinal Cord Injury Upper Extremity Basic Data Set

Good validity of the international spinal cord injury quality of life basic data set

International Spinal Cord Injury Pulmonary Function Basic Data Set

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