Recruiting and retaining parents in behavioral intervention trials: Strategies to consider

Shneider, Caitlin; Hilliard, Marisa E.; Monaghan, Maureen; Tully, Carrie; Wang, Christine H.; Sinisterra, Manuela; Jones, Jasmine; Levy, Wendy; Streisand, Randi

doi:10.1016/j.cct.2021.106502

Cited by 11 publications

(6 citation statements)

References 32 publications

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“…Participants in the current study were drawn from 157 parents of young children with T1D, who had previously participated in a multi-site randomized clinical trial of a behavioral intervention for parents of children newly diagnosed with T1D ( Hilliard et al, 2017 ; Shneider et al, 2021 ; Tully et al, 2021 ). Information on the initial pool of eligible participants has been published elsewhere ( Shneider et al, 2021 ). The trial occurred at two U.S. pediatric hospitals in the mid-Atlantic and Southwest regions between 2015 and 2019.…”

Section: Methodsmentioning

confidence: 99%

Correlates and Patterns of COVID-19 Vaccination Intentions among Parents of Children with Type 1 Diabetes

Wang

Jones

Hilliard

et al. 2022

Journal of Pediatric Psychology

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Objective To examine psychosocial, sociodemographic, medical, and coronavirus disease 2019 (COVID-19) experiences as correlates of COVID-19 vaccination intentions among parents of children with type 1 diabetes (T1D). Methods 121 parents of children with T1D ( M child age = 7.78 ± 1.70; M A1c = 8.3% ± 1.5%) in the mid-Atlantic and Southwest regions completed self-report measures in February to March 2021. Results Parents’ general vaccination behaviors and attitudes were associated with COVID-19 vaccination intentions. Child insurance type and social distancing adherence were associated with vaccination intention in the Southwest site. Higher A1c was associated with lower intention. Vaccine safety was the top reported concern. Conclusions COVID-19 vaccination intentions are important to address in parents of youth with health conditions.

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Section: Methodsmentioning

confidence: 99%

Correlates and Patterns of COVID-19 Vaccination Intentions among Parents of Children with Type 1 Diabetes

Wang

Jones

Hilliard

et al. 2022

Journal of Pediatric Psychology

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“…Participants learned about the study during their child's initial hospitalization for T1D or through mailed informational letters (for more details on recruitment, see Shneider et al, 2021). 14 Parents were screened for eligibility via phone: parents had to be at least 21 years of age, the primary caregiver for a child age 1-6 newly diagnosed with T1D, able to speak and read English fluently, and have access to a mobile telephone with text messaging capabilities. Parents were ineligible if they had a serious mental illness or developmental disability, or if their child with T1D had another life-threatening illness or developmental disability.…”

Section: Methodsmentioning

confidence: 99%

“…The SED-P includes items such as "I believe I can recognize and treat high blood sugar, with or without ketones" or "I believe I can prevent long term complications from my child's diabetes." 14 Based upon feedback from prior studies, items were slightly modified to be more applicable to parents of newly diagnosed young children (e.g., instead of "Leave my child with someone else/use a babysitter," the phrase "Other caregiver, or another child's parent for more than a couple of hours" was added to the end of this item).…”

Section: Methodsmentioning

confidence: 99%

“…The Self‐Efficacy for Diabetes Scale for Parents (SED‐P) is an adapted 24‐item instrument measuring parents' confidence in managing their child's diabetes; the SED‐P was completed at baseline, 12‐months, and 18‐months post‐diagnosis. The SED‐P includes items such as “I believe I can recognize and treat high blood sugar, with or without ketones” or “I believe I can prevent long term complications from my child's diabetes.” 14 Based upon feedback from prior studies, items were slightly modified to be more applicable to parents of newly diagnosed young children (e.g., instead of “Leave my child with someone else/use a babysitter,” the phrase “Other caregiver, or another child's parent for more than a couple of hours” was added to the end of this item). Further, items were primarily adapted to describe more actionable/specific tasks (e.g., the item “Run my life similarly to before my child was diagnosed with diabetes…” was modified to “Work (inside or outside home) the same amount as I did before my child was diagnosed”).…”

Section: Methodsmentioning

confidence: 99%

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Clinically elevated parent depressive symptoms and stress at child type 1 diabetes diagnosis: Associations with parent diabetes self‐efficacy at 18‐months post‐diagnosis

Inverso¹,

Moore²,

Rooney³

et al. 2022

Pediatric Diabetes

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Objective: Eighteen percent of new diagnoses of type 1 diabetes (T1D) occur in children ages 9 and younger, and the burden of diabetes management in young children predominantly falls on parents. Despite the significant amount of information parents must learn and implement quickly after diagnosis, little research has examined diabetes self-efficacy in parents of young children soon after diagnosis in a longitudinal manner. The current study examined changes in parent diabetes self-efficacy over time, and parent depressive symptoms and stress soon after child T1D diagnosis as predictors of parent diabetes self-efficacy at 12-and 18-months post-diagnosis. Research design and methods: One hundred fifty-seven primary caregivers (91.7% female, 62.2% White, Non-Hispanic) of young children (M age = 4.47 ± 1.65 years, 54.8% female, 60% White, Non-Hispanic) were recruited within 2 months of their child's T1D diagnosis from two pediatric hospitals in the United States as part of a randomized clinical trial. Parents self-reported on their diabetes self-efficacy, depressive symptoms, and stress and at baseline (M days since diagnosis = 29) and on parent diabetes self-efficacy again 12-and 18-months post-diagnosis. Results: Parent diabetes self-efficacy significantly improved from baseline to 12-months and 18-months post-diagnosis (p < 0.05). Parents exhibiting clinically elevated levels of depressive symptoms and stress at baseline had significantly lower parent diabetes self-efficacy 12-and 18-months post-diagnosis compared to parents with normal levels of depressive symptoms and stress. Conclusions: Brief interventions for parents with clinically elevated depressive symptoms and stress soon after their child's diagnosis may improve parents' diabetes self-efficacy and ultimately support the management of their child's diabetes.

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“…Detailed information about trial recruitment and enrollment have been published. 20,21 Of participants who were eligible but did not participate, the main reasons included time commitment, changed location of diabetes care, and not completing baseline surveys within the eligibility window. 20,21 Participant data are presented in Table 1.…”

Section: Participants and Proceduresmentioning

confidence: 99%

Psychosocial, Medical, and Demographic Variables Associated with Parent Mealtime Behavior in Young Children Recently Diagnosed with Type 1 Diabetes

Gonynor

Wang

Tully

et al. 2022

J Dev Behav Pediatr

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Objective: Managing young children's mealtime concerns can be challenging after type 1 diabetes (T1D) diagnosis because of developmental factors and diabetes management demands. To identify potential intervention targets, we evaluated medical, psychosocial, and demographic factors in relation to parents' engagement in problem mealtime behaviors (e.g., pressure to eat, restriction). Method: Parents (N 5 157) of young children (age 1-6 years) reported on psychosocial variables (parent fear of hypoglycemia, family functioning, parent problem solving, and parents' problem mealtime behavior frequency and perceptions of being problematic) within 2 months after T1D diagnosis. Hierarchical regression analyses examined associations among psychosocial variables, demographics (child sex, parent race/ethnicity), child continuous glucose monitor (CGM) use, and parents' problem mealtime behaviors. Results: Parents of children using CGMs reported parents' mealtime behaviors as more problematic than nonusers, but there were no differences for other medical or demographic variables. Models predicting parents' problem mealtime behavior frequency and problem perceptions that included psychosocial variables, demographic variables, and CGM use led to significant R 2 of 0.14 and 0.16, respectively. CGM use and parent problem solving were significantly associated with parent mealtime behaviors being perceived as more problematic. Conclusion: Shortly after T1D diagnosis in young children, medical and parent psychosocial factors related to how frequently parents engaged in problem mealtime behaviors and the degree to which parents perceived them as problematic. Other factors may further explain the complexities of mealtime management. Considering parents' problem-solving skills and child treatment regimens may help guide interventions targeting mealtime challenges during the new diagnosis period.

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Recruiting and retaining parents in behavioral intervention trials: Strategies to consider

Cited by 11 publications

References 32 publications

Correlates and Patterns of COVID-19 Vaccination Intentions among Parents of Children with Type 1 Diabetes

Correlates and Patterns of COVID-19 Vaccination Intentions among Parents of Children with Type 1 Diabetes

Clinically elevated parent depressive symptoms and stress at child type 1 diabetes diagnosis: Associations with parent diabetes self‐efficacy at 18‐months post‐diagnosis

Psychosocial, Medical, and Demographic Variables Associated with Parent Mealtime Behavior in Young Children Recently Diagnosed with Type 1 Diabetes

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