Recruiting Underserved Mothers to Medical Research: Findings from North Carolina

Spears, Chaya R.; Sandberg, Joanne C.; O’Neill, Jenna L.; Grzywacz, Joseph G.; Howard, Timothy D.; Feldman, Steven R.; Arcury, Thomas A.

doi:10.1353/hpu.2013.0157

Cited by 3 publications

(1 citation statement)

References 51 publications

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“…While loss to follow‐up is expected in longitudinal studies and effective retention is known to require thoughtful planning and considerable resources (Spears et al . , Wilbur et al . , Brannon et al .…”

Section: Discussionmentioning

confidence: 99%

Predictors of engagement in postpartum weight self‐management behaviours in the first 12 weeks after birth

Ohlendorf

Weiss

Oswald

2015

Journal of Advanced Nursing

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Aim: To explore factors that influence postpartum weight self-management behaviours. Transitions Theory and the Integrated Theory of Health Behaviour Change guided selection of variables. Transition conditions, level of patient activation and social facilitation were examined for association with postpartum weight self-management behaviours. Background: Retention of pregnancy weight increases risk of overweight and obesity later in life. Little is known about what women do to self-manage return to pre-pregnant weight and how providers can influence their behaviours.NOT THE PUBLISHED VERSION; this is the author's final, peer-reviewed manuscript. The published version may be accessed by following the link in the citation at the bottom of the page. Nursing, Vol 71, No. 8 (August 2015): pg. 1833-1846. DOI. This article is © Wiley and permission has been granted for this version to appear in e-Publications@Marquette. Wiley does not grant permission for this article to be further copied/distributed or hosted elsewhere without the express permission from Wiley. Journal of Advanced 2Design: Prospective, longitudinal, correlational. Methods: Data collection occurred from March through October, 2013. One hundred and twenty-four women completed surveys during postpartum hospitalization; telephone interviews were completed by 91 women at 6 weeks and 66 women at 12 weeks. Standard and hierarchical multiple regression methods were used for analyses. Results: Transition difficulty was negatively associated with patient activation and immediate postbirth patient activation was positively associated with eating behaviours at 6 weeks, eating behaviours at 12 weeks and physical activity at 12 weeks. Social support and social influence were not significant predictors in the regression models. Conclusion: Patients experiencing a difficult postpartum transition have lower activation levels; those less activated are less probably to engage in weight self-management behaviours in the 12 weeks following their baby's birth. Patient activation level should be considered in tailoring promotion of healthy postpartum weight management. Why is this research needed? Little is known about the process of postpartum weight selfmanagement and what providers can do to influence that process.  Current postpartum care models do not prioritize promotion of weight self-management among postpartum women.  Women who do not return to pre-pregnancy weight within the postpartum year are at risk for overweight and obesity later in life. What are the key findings? Women who are experiencing a difficult postpartum transition are likely to be less activated for postpartum weight self-management.  Women with higher patient activation for postpartum weight selfmanagement are more likely to engage in postpartum weight selfmanagement behaviours.  Perinatal providers and postpartum nurses are as influential as those in women's social circles over health behaviour decisions. How should the findings be used to influence policy/practice/research/education...

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Section: Discussionmentioning

confidence: 99%

Predictors of engagement in postpartum weight self‐management behaviours in the first 12 weeks after birth

Ohlendorf

Weiss

Oswald

2015

Journal of Advanced Nursing

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Recruiting Mothers of Children With Developmental Disabilities: Adaptations of the Snowball Sampling Technique Using Social Media

Lee¹,

Spratling²

2019

Journal of Pediatric Health Care

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Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey

Bachhuber

Arnsten

Starrels

et al. 2018

Cannabis and Cannabinoid Research

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Background: Regulatory barriers limit clinical trials of medical cannabis in the United States. Longitudinal cohort studies may be one feasible alternative that could yield clinically relevant information. Willingness to participate in such studies is not known.Materials and Methods: In October 2016, we surveyed a convenience sample of patients with chronic pain from two New York registered organizations (responsible for growing, processing, distributing, and retailing medical cannabis products). After a vignette describing a longitudinal cohort study involving weekly patient-reported outcomes and quarterly assessments of physical functioning and urine and blood tests, we asked about respondents' willingness to participate. We examined willingness to participate, duration of participation, and frequency of data collections overall and by subgroups, using multivariable logistic regression models.Results: Of 405 respondents (estimated response rate: 30%), 54% were women and 81% were white non-Hispanic. Neuropathy was the most common pain condition (67%) followed by inflammatory bowel disease (19%). Of respondents, 94% (95% CI 92–97%) thought that the study should be done, 85% (95% CI 81–88%) would definitely or probably enroll if asked, 76% (95% CI 72–81%) would participate for ≥1 year, and 59% (95% CI 54–64%) would respond to questions at least daily. Older age was the only factor associated with lower willingness to participate, lower willingness to participate for ≥1 year, and lower willingness to respond to questions at least daily.Conclusions: Nearly all respondents were supportive of the proposed study and most reported that they would enroll if asked. Enhanced engagement with older individuals may be needed to promote equal enrollment. Recruitment for longitudinal cohort studies with frequent data collection appears feasible in this patient population.

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Recruiting Underserved Mothers to Medical Research: Findings from North Carolina

Cited by 3 publications

References 51 publications

Predictors of engagement in postpartum weight self‐management behaviours in the first 12 weeks after birth

Predictors of engagement in postpartum weight self‐management behaviours in the first 12 weeks after birth

Recruiting Mothers of Children With Developmental Disabilities: Adaptations of the Snowball Sampling Technique Using Social Media

Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey

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