Recruitment and Feasibility of Hair Cortisol Collection in a Sample of Ethnically and Sexually Diverse, Low-Income Adults: A Qualitative Community-Partnered Participatory Research Study

Vargas, Sylvanna M.; Parra, Luis A.; Rivas, Wilmer A.; Payat, Sinan; Mistry, Roxanne; Williams, Clarence R.; Gamez, Diana; Chung, Bowen; Huey, Stanley J.; Miranda, Jeanne

doi:10.1353/hpu.2023.0006

Cited by 3 publications

(3 citation statements)

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“…High rates of inclusion in research studies collecting biospecimens were observed among our sample and may be due to participants' involvement with The PRIDE Study and other studies working with PRIDEnet. Consistent with prior work in SGM communities, 26,27 we observed high acceptability of biospecimen donation among Black and Hispanic/Latinx SGM people. The most salient motive for engaging in biospecimen donation was altruism, confirming previous findings in non-SGM samples of people who identify as Black and Hispanic/Latinx.…”

Section: Discussionsupporting

confidence: 89%

Our Needs Have Been Ignored for a Long Time: Factors Affecting the Willingness of Black and Hispanic/Latinx Sexual and Gender Minority Communities to Donate Biospecimens

Ceja,

Bruno,

Panyanouvong

et al. 2024

sgrlgbtq

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The study aimed to document factors affecting the willingness to engage in biospecimen donation for substance use research among Black and Hispanic/Latinx sexual and gender minority (SGM) people. From May to July 2022, we interviewed 22 Black and Hispanic/Latinx SGM people from The Population Research in Identity and Disparities for Equality Study, a cohort of SGM people in the United States and its territories, using Zoom videoconferencing software. Fourteen participants were cisgender sexual minority people, and eight participants were gender minority people who were also sexual minority. We took an inductive, collaborative qualitative analytic approach to identify themes. Themes included the following: (1) community benefits, (2) personal benefits, (3) community exploitation, (4) personal risks, (5) convenience, (6) trustworthiness of the research team, (7) perceived value in donating, and (8) normalization of biospecimen collection. Participants were generally motivated to engage in biospecimen donation for altruistic purposes. The most cited concerns were related to data security, misuse, and privacy. Researchers must be proactive in building trust with Black and Hispanic/Latinx SGM communities to increase engagement, diversify biospecimen repositories, and reduce health inequities. Future research involving biospecimens should provide biospecimen education during the consent process and prioritize participant convenience.

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Section: Discussionsupporting

confidence: 89%

Our Needs Have Been Ignored for a Long Time: Factors Affecting the Willingness of Black and Hispanic/Latinx Sexual and Gender Minority Communities to Donate Biospecimens

Ceja,

Bruno,

Panyanouvong

et al. 2024

sgrlgbtq

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“…In one qualitative interview study exploring the perspectives of underrepresented participants concerning their involvement in biospecimen research, approximately half of the participants reported monetary incentives as a motivating factor for providing hair samples. 55 Our YPAG had mixed views about incentives, with some of the younger members suggesting that it may be better not to provide monetary incentives to participants as, while it may motivate participation, they felt it would be better to recruit intrinsically motivated participants to obtain higher quality data. The older YPAG generally felt that incentives would be appropriate and that these should be scaled to response rates.…”

Section: Incentivesmentioning

confidence: 99%

“…There is little evidence regarding the effects of leveraging incentives in biosampling research. In one qualitative interview study exploring the perspectives of underrepresented participants concerning their involvement in biospecimen research, approximately half of the participants reported monetary incentives as a motivating factor for providing hair samples 55 …”

Section: The Mhim Strategymentioning

confidence: 99%

Recruitment and retention of adolescents for an ecological momentary assessment measurement burst mental health study: The MHIM engagement strategy

Murray,

Xie,

Power

et al. 2024

Health Expectations

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IntroductionRecruitment and long‐term retention of adolescent participants in longitudinal research are challenging and may be especially so in studies involving remote measurement and biosampling components. The ability to effectively recruit and retain participants can be supported by the use of specific evidence‐based engagement strategies that are built in from the earliest stages.MethodsInformed by a review of the evidence on effective engagement strategies and consultations with adolescents (via two Young Person Advisory Groups [YPAGs]; ages 11–13 and 14–17), the current protocol describes the planned participant engagement strategy for the Mental Health in the Moment Study: a multimodal measurement burst study of adolescent mental health across ages 11–19.ResultsThe protocol incorporates engagement strategies in four key domains: consultations/co‐design with the target population, incentives, relationship‐building and burden/barrier reduction. In addition to describing general engagement strategies in longitudinal studies, we also discuss specific concerns regarding engagement in data collection methods such as biosampling and ecological momentary assessment where a paucity of evidence exists.ConclusionEngagement strategies for adolescent mental health studies should be based on existing evidence and consultations with adolescents. We present our approach in developing the planned engagement strategies and also discuss limitations and future directions in engaging adolescents in longitudinal research.Patient or Public ContributionThe study design for this project places a strong emphasis on the active engagement of adolescents throughout its development. Specifically, the feedback and suggestions provided by the YPAGs have been instrumental in refining our strategies for maximising the recruitment and retention of participants.

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Sociodemographic factors are related to hair sample collection in economically marginalized families

Ling,

Goodwin,

Given

2024

Future Science OA

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Aim: Limited research has explored factors influencing participants' decisions to consent to and complete hair sample collection. This study examined the relationships of sociodemographics, perceived stress and coping with hair sample collection among children aged 3–5 years and parents. Research design & methods: Data were analyzed from 188 parent-child dyads. Among these, 78% of parents provided consent to hair sample collection. Hair samples were collected from 81% children and 68% parents. Results: Parents who provided consent reported higher levels of stress and used more avoidant coping strategies compared with those who did not. Parents who provided a hair sample engaged in less problem-focused coping. Children who were girls, non-Hispanic and White had higher odds of completing hair sample collection. Additionally, children were more likely to complete hair sample collection if their parents were married, employed full-time, or had an annual family income of ≥$20,000. Pregnant women and full-time employed parents also had higher odds of completing hair sample collection. Conclusion: The study identified important sociodemographic factors that may influence hair sample collection in research. To improve participation, tailored approaches such as at-home self-collection, sensitive hair cutting approaches to maintain participants' hair style, and addressing participants' unique barriers are recommended.

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Recruitment and Feasibility of Hair Cortisol Collection in a Sample of Ethnically and Sexually Diverse, Low-Income Adults: A Qualitative Community-Partnered Participatory Research Study

Cited by 3 publications

References 0 publications

Our Needs Have Been Ignored for a Long Time: Factors Affecting the Willingness of Black and Hispanic/Latinx Sexual and Gender Minority Communities to Donate Biospecimens

Our Needs Have Been Ignored for a Long Time: Factors Affecting the Willingness of Black and Hispanic/Latinx Sexual and Gender Minority Communities to Donate Biospecimens

Recruitment and retention of adolescents for an ecological momentary assessment measurement burst mental health study: The MHIM engagement strategy

Sociodemographic factors are related to hair sample collection in economically marginalized families

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