Recruitment and participation in clinical trials: Socio-demographic, rural/urban, and health care access predictors

Baquet, Claudia R.; Commiskey, Patricia; Mullins, C. Daniel; Mishra, Shiraz I.

doi:10.1016/j.cdp.2005.12.001

Cited by 238 publications

(230 citation statements)

References 18 publications

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“…This is not consistent with prior literature that shows rural populations have lower opportunity and participation rates 5, 22, 23, 24, 25, 26. This unexpected finding could be influenced by the extensive community‐based participatory research capacity that the states only academic medical center (University of Arkansas for Medical Sciences) had invested in to better engage rural and minority participants.…”

Section: Discussioncontrasting

confidence: 89%

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

McElfish

Long

Selig

et al. 2018

Clinical Translational Sci

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Prior research suggests that rural and minority communities participate in research at lower rates. While rural and minority populations are often cited as being underrepresented in research, population‐based studies on health research participation have not been conducted. This study used questions added to the 2015 Behavioral Risk Factor Surveillance System to understand factors associated with i) health research participation, ii) opportunities to participate in health research, and iii) willingness to participate in health research from a representative sample (n = 5,256) of adults in Arkansas. Among all respondents, 45.5% would be willing to participate in health research if provided the opportunity and 22.1% were undecided. Only 32.4% stated that they would not be willing to participate in health research. There was no significant difference in participation rates for rural or racial/ethnic minority communities. Furthermore, racial/ethnic minority respondents (Black or Hispanic) were more likely to express their willingness to participate.

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Section: Discussioncontrasting

confidence: 89%

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

McElfish

Long

Selig

et al. 2018

Clinical Translational Sci

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“…Individuals living in rural areas are much less likely to enroll in a CT than their urban counterparts (Baquet et al 2006). Given that CTs represent the state-of-science in medical treatment, this rural-urban disparity means that rural residents are receiving a lower quality of cancer care than other Americans.…”

Section: Health and Rural Culturementioning

confidence: 99%

“…Another reason given for the lack of participation in CTs among rural populations is a lack of culturally appropriate communication to address patient concerns (Baquet et al 2006). To address this inequity, CT information must be adapted to rural populations to reflect the unique culture of the region (Krieger et al 2011;Krieger 2013;Colby et al 2013;Ndiaye et al 2008).…”

Section: Health and Rural Culturementioning

confidence: 99%

Community Engagement as a Process and an Outcome of Developing Culturally Grounded Health Communication Interventions: An Example from the DECIDE Project

Palmer-Wackerly

Krok

Dailey

et al. 2014

American J of Comm Psychol

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Community engagement is a process often used in developing effective health communication interventions, especially in traditionally underserved cultural contexts. While the potentially positive outcomes of community engagement are well established, the communication processes that result in engagement with cultural groups are less apparent. The focus on the outcomes of engagement at the expense of describing how engagement occurs makes it difficult for methods to be improved upon and replicated by future studies. The purpose of the current manuscript is to illustrate the process of achieving community engagement through the development of a culturally grounded health communication intervention. We offer practical suggestions for implementing community engagement principles, as well as the benefits and challenges inherent in this approach to research. Key points are illustrated using examples from the DECIDE Project, a culturally grounded intervention for improving communication about clinical trials in the medically underserved Appalachian region.

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“…Dr. Baquet et al 16 also documented disparities between blacks and whites in esophageal cancer incidence, mortality, and survival and support the need for advances in prevention, early detection biomarker research, and research on new, more effective treatment modalities for this disease. In addition, Baquet et al 17 have documented the prevalence and predictors of recruitment to and participation in clinical trials in Maryland. These findings are applicable for the development of targeted and tailored clinical trial education programs.…”

Section: Scientific Contributionsmentioning

confidence: 99%

Maryland's Special Populations Network

Baquet

Mack

Mishra

et al. 2006

Cancer

Self Cite

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prehensive assessment (of needs, strengths, and resources available) that laid the foundation for programmatic efforts in community-initiated cancer awareness and education, research, and training. The MSPN infrastructure was used to implement successful and innovative community-based cancer education interventions and technological solutions; conduct education and promotion of clinical trials, cancer health disparities research, and minority faculty cancer research career development; and leverage additional resources for sustainability. MSPN engaged in informed advocacy among decision-and policymakers at state and national levels, and its community-based clinical trials program was recognized by the U.S. Department of Health and Human Services as a Best Practice Award.The solutions to reduce and eliminate cancer health disparities are complex and require comprehensive and focused multidisciplinary cancer health disparities research, training, and education strategies implemented through robust community-academic partnerships.

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Recruitment and participation in clinical trials: Socio-demographic, rural/urban, and health care access predictors

Abstract: Background-Recruitment and participation in clinical trials by minorities, particularly African Americans and rural underserved populations, are low. This report examines predictors of clinical trial recruitment and participation for adult Marylanders.

Cited by 238 publications

References 18 publications

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

Community Engagement as a Process and an Outcome of Developing Culturally Grounded Health Communication Interventions: An Example from the DECIDE Project

Maryland's Special Populations Network

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