Recruitment experience in the African American Study of Kidney disease and hypertension (AASK) pilot study

Whelton, Paul K.; Lee, Jeannette; Kusek, John W.; Charleston, Jeanne; Debruge, J.; Douglas, Margaret; Faulkner, Marquetta; Greene, Paul G.; Jones, Camille A.; Kiefer, Sally; Kirk, Katharine A.; Levell, Betty; Norris, Keith C.; Powers, Sandra; Retta, Tamrat M.; Smith, Delia E.; Ward, Harry J.

doi:10.1016/s0197-2456(96)00087-6

Cited by 22 publications

(11 citation statements)

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“…Ensuring that study schedules and procedures are participant‐centered (14.1%) and are compatible with individuals’ needs, values, beliefs, and resources, including scheduling study activities during non‐work hours and providing home visits for disabled patients, 28,45 may also increase participation. Increasing physician engagement and participation in projects (7.6%) by encouraging otherwise uninvolved physicians to participate in the research process or making research projects geographically mobile so as to incorporate medical facilities and institutions that are unconnected to the institution or practice housing the program is also a recommended solution to problems of recruiting underserved populations 29,55 . Additionally, among high‐risk populations, follow‐up counseling might also defray concerns about new medical knowledge that results from research participation 9 …”

Section: Resultsmentioning

confidence: 99%

“…Increasing physician engagement and participation in projects (7.6%) by encouraging otherwise uninvolved physicians to participate in the research process or making research projects geographically mobile so as to incorporate medical facilities and institutions that are unconnected to the institution or practice housing the program is also a recommended solution to problems of recruiting underserved populations. 29,55 Additionally, among high-risk populations, follow-up counseling might also defray concerns about new medical knowledge that results from research participation. 9…”

Section: Motives For Participationmentioning

confidence: 99%

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Recruiting underserved populations to dermatologic research: a systematic review

Spears¹,

Nolan²,

O’Neill³

et al. 2011

Int J Dermatology

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Recruitment of participants to dermatologic research studies can be challenging, particularly with historically underserved populations. Recruitment of these groups is essential to ethical, valid, and useful dermatologic research. This article discusses findings from a review of 78 studies that examined factors influencing participation in health research studies with an emphasis on underserved populations, particularly women and ethnic minorities. The most commonly encountered barriers to research participation are mistrust of research, lack of access to research programs, and culturally incompetent research design. Motives to participate in research include receipt of benefit from participation, perceived opportunities to help others, and culturally competent research design. Practical methods for addressing barriers and enhancing research participation include culturally competent research design, community-based recruitment, and easily understandable informed consent. These factors should be considered when recruiting subjects for dermatologic research, especially when recruitment of underserved populations is desired. In addition, the literature demonstrates a paucity of research among rural residents, infants, and children, as well as within clinical dermatologic research.

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Section: Resultsmentioning

confidence: 99%

Section: Motives For Participationmentioning

confidence: 99%

Recruiting underserved populations to dermatologic research: a systematic review

Spears¹,

Nolan²,

O’Neill³

et al. 2011

Int J Dermatology

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“…Despite increased emphasis on inclusion of minority populations in federally funded research projects, 7,8 representative participation of these groups in studies remains inadequate. 3,9,12,13,21 Moreover, the majority of physical activity intervention studies that include substantial numbers of minority participants are conducted in urban settings where large numbers of this group reside. [14][15][16] Insights regarding the recruitment of African American women into our physical activity intervention may therefore be particularly important to the development of health promotion research aimed at underrepresented populations residing outside urban settings.…”

Section: Discussionmentioning

confidence: 99%

“…[12][13][14]16 Enlisting the assistance of respected professionals and community leaders in advertising has been an effective strategy. Physicians 11,12,15 and ministers 10,13 serving large minority populations have played particularly prominent roles in the recruitment of African American participants. Establishment of community advisory boards to assist in marketing their study has been effective for some researchers.…”

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confidence: 99%

Recruitment and Entrance of Participants Into a Physical Activity Intervention for Hypertensive African American Women

Banks-Wallace

Enyart²,

Johnson³

2004

Advances in Nursing Science

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Decreasing health disparities between White Americans and racial/ethnic minority populations is a public health priority. An ongoing inability to attract sufficient numbers of African Americans and other people of color to participate in research studies is a major barrier to accomplishing this goal. Participation of racial/ethnic minorities in intervention studies is especially critical to the development of appropriate strategies to promote health among these populations. This article examines the effectiveness of preintervention meetings as well as interactions between African American research team members and potential participants as recruitment strategies. Intersections between recruitment and health promotion are also addressed.

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“…The absolute number of those recruited also falls below the 5–10% of individuals initially projected to be eligible for participation due to a family history of cancer [10]. In a study of African Americans invited to participate in a national kidney disease and hypertension clinical trial, a mass mail campaign achieved a recruitment yield of only 1.1% [11]. In a cancer genetics trial by Royal et al [12], successful recruitment of African American men into a hereditary prostate cancer study was best enhanced by physician referral and the use of tumor registries.…”

Section: Discussionmentioning

confidence: 99%

Partnership with an African American Sorority to Enhance Participation in Cancer Genetics Research

Olsen

Malvern

May

et al. 2008

Public Health Genomics

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Background/Aims: Reduced minority participation in clinical research challenges researchers to consider novel recruitment modalities. This study describes a formal partnership between the National Educational Foundation of the Zeta Phi Beta Sorority and the Mid-Atlantic Cancer Genetics Network. The goal was to enhance awareness about inherited breast cancer and to increase enrollment in the national Cancer Genetics Network. Methods: In this descriptive, pilot study, two recruitment strategies across four states were undertaken: an onsite educational session at four Annual State Leadership Conferences and a 2-tiered direct mail campaign to the sorority membership. Results: Recruitment methods targeted over 1,200 well-educated African American women. Of the 279 attendees at the state conference educational sessions, only 3 women meeting the high risk eligibility requirement enrolled. Direct mail recruitment elicited 24 eligible women. Lessons learned are described. Conclusion: Despite low accrual, the partnership laid a foundation for broader collaboration with the Zeta Phi Beta Sorority. In the future, collaboration with minority sororities and fraternities as part of standard registry recruitment should be explored.

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Recruitment experience in the African American Study of Kidney disease and hypertension (AASK) pilot study

Cited by 22 publications

References 0 publications

Recruiting underserved populations to dermatologic research: a systematic review

Recruiting underserved populations to dermatologic research: a systematic review

Recruitment and Entrance of Participants Into a Physical Activity Intervention for Hypertensive African American Women

Partnership with an African American Sorority to Enhance Participation in Cancer Genetics Research

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