Recruitment outcomes, challenges and lessons learned: the Healthy Communities Study

Sagatov, R D F; John, Lisa V.; Gregoriou, Maria; Arteaga, S. Sonia; Weber, Stephanie; Payn, Betsy; Strauss, Warren; Weinstein, Neil D.; Collie‐Akers, Vicki; Team, Healthy Communities Study

doi:10.1111/ijpo.12455

Cited by 7 publications

(3 citation statements)

References 15 publications

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“…There are unique strategies and challenges associated with recruiting and retaining vulnerable populations in research. Regarding pediatric populations, the Healthy Communities Study [ 21 ] and National Children’s Study [ 22 ] are examples of epidemiological studies that recruited large, pediatric cohorts. Whereas the Healthy Communities Study recruited via schools, the National Children’s study adopted multipronged recruitment efforts that included household-based recruitment, provider-based recruitment, and direct outreach.…”

Section: Recruitment Of Vulnerable Populationsmentioning

confidence: 99%

Effectiveness of multimodal participant recruitment in SPARK, a large, online longitudinal research study of autism

Daniels,

Law,

Green Snyder

et al. 2023

J. Clin. Trans. Sci.

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Background: SPARK launched in 2016 to build a US cohort of autistic individuals and their family members. Enrollment includes online consent to share data and optional consent to provide saliva for genomic analysis. SPARK's recruitment strategies include social media and support of a nation-wide network of clinical sites. This study evaluates SPARK's recruitment strategies to enroll a core study population. Methods: Individuals who joined between January 31, 2018, and May 29, 2019 were included in the analysis. Data include sociodemographic characteristics, clinical site referral, the website URL used to join, how the participant heard about SPARK, enrollment completion (online registration, study consents, and returning saliva sample), and completion of the baseline questionnaire. Logistic regressions were performed to evaluate the odds of core participant status (completing enrollment and baseline questionnaire) by recruitment strategy. Results: In total, 31,715 individuals joined during the study period, including 40% through a clinical site. Overall, 88% completed online registration, 46% returned saliva, and 38% were core participants. Those referred by a clinical site were almost twice as likely to be core participants. Those who directly visited the SPARK website or performed a Google search were more likely to be core participants than those who joined through social media. Discussion: Being a core participant may be associated with the "personal" connection and support provided by a clinical site and/or site staff, as well as greater motivation to seek research opportunities. Findings from this study underscore the value of adopting a multimodal recruitment approach that combines social media and a physical presence.

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Section: Recruitment Of Vulnerable Populationsmentioning

confidence: 99%

Effectiveness of multimodal participant recruitment in SPARK, a large, online longitudinal research study of autism

Daniels,

Law,

Green Snyder

et al. 2023

J. Clin. Trans. Sci.

View full text Add to dashboard Cite

show abstract

“…The Battelle Memorial Institute Institutional Review Board approved the study protocol, and parents provided written informed consent for child participation. A more detailed explanation of participant recruitment, study design and data collection are included in papers by Sagatov et al, Strass et al and John et al (13)(14)(15) .…”

Section: Study Design and Participantsmentioning

confidence: 99%

Household food insecurity and children’s physical activity and sedentary behaviour in the United States: the Healthy Communities Study

Navarro

Tsai

Ritchie

et al. 2021

Public Health Nutr.

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Objective: To examine associations between household food insecurity and children’s physical activity and sedentary behaviors. Design: Secondary analysis was conducted on the Healthy Communities Study, an observational study from 2013-2015. Household food insecurity was assessed by two items from the US Department of Agriculture’s 18-item US Household Food Security Survey Module. Physical activity was measured using the 7-day Physical Activity Behavior Recall instrument. Data were analyzed using multilevel statistical modeling. Setting: 130 communities in the US. Participants: 5,138 US children ages 4-15 years. Results: No associations were found for the relationship between household food insecurity and child physical activity. A significant interaction between household food insecurity and child sex for sedentary behaviors was observed (P=0.03). Conclusions: Additional research capturing a more detailed assessment of children’s experiences of food insecurity in relation to physical activity is warranted. Future studies may consider adopting qualitative study designs or utilizing food insecurity measures that specifically target child-level food insecurity. Subsequent research may also seek to further explore sub-group analyses by sex.

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“…Finally, the supplement also includes an article about the HCS experience with recruiting a large nationwide sample of school‐aged children, describing challenges encountered and potential lessons for the field . They discuss what worked and what did not work to meet the recruitment targets, e.g.…”

Section: Physical Activitymentioning

confidence: 99%

Supplement overview: what the Healthy Communities Study is telling us about childhood obesity prevention in U.S. communities

Kumanyika

2018

Pediatric Obesity

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Summary The Healthy Communities Study (HCS), conducted between 2010 and 2016, tells a real‐world story of how childhood obesity prevention efforts have unfolded in 130 U.S. communities. The study documented nearly 10,000 current and past community policies and programs (CPPs) and assessed dietary and physical activity behaviors, weight, height, and waist circumference of more than 5,000, 4‐ to 15‐year‐old children. The articles in this HCS supplement describe the variables created to characterize the CPPs, CPP relationships with children's behavioral and weight status, other analyses of interest, and recruitment challenges. Findings suggest that many of the strategies being implemented work as intended to improve children's behaviors and weight status. However, of concern, findings also indicate lesser reach to children in demographic groups at highest risk of obesity. Overall, the HCS insights can guide the next phase of efforts to strengthen existing CPPs and motivate other, novel approaches to combating childhood obesity.

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Recruitment outcomes, challenges and lessons learned: the Healthy Communities Study

Abstract: Lessons learned are presented. Future studies should plan for inclusion of the following in development of recruitment strategies: literature review, formative research, pilot testing, and ongoing monitoring and adjustment.

Cited by 7 publications

References 15 publications

Effectiveness of multimodal participant recruitment in SPARK, a large, online longitudinal research study of autism

Effectiveness of multimodal participant recruitment in SPARK, a large, online longitudinal research study of autism

Household food insecurity and children’s physical activity and sedentary behaviour in the United States: the Healthy Communities Study

Supplement overview: what the Healthy Communities Study is telling us about childhood obesity prevention in U.S. communities

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