Reducing rural isolation through music: telehealth music therapy for community dwelling people living with dementia and their family caregivers in rural Ireland

Kelly, Lisa; Richardson, Ita; Moss, Hilary

doi:10.22605/rrh8162

Cited by 4 publications

(7 citation statements)

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“…While some dyads may struggle to attend group musicking in person due to difficulties leaving the house or geographical remoteness, online options are increasingly available due to responses to Covid-19 ( 72 ). While there are challenges and limitations in conducting group musicking in online settings (e.g., latency, synchronicity and hesitance/anxiety in using technology) ( 73 ), a growing number of studies show that online group musicking is both feasible and beneficial for dyads ( 74 – 76 ). Research shows dyads are increasingly confident and comfortable using technology ( 73 ), and online group musicking may offer an accessible option for reducing social isolation and supporting mood ( 72 , 75 ).…”

Section: Discussionmentioning

confidence: 99%

Learning to use music as a resource: the experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: a HOMESIDE sub-study

et al. 2023

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An increasing number of people with dementia receive informal care from family members to help them remain living in the community. Music therapy is particularly beneficial for supporting the wellbeing of people living with dementia. However, little is known about how music therapy might support people with dementia and their family care partners as dyads. This study explored the experiences of six dyads participating in a 12-week home-based skill-sharing music intervention facilitated by a music therapist. We examined their experiences during the intervention period and in the 3–6 months following. This study was conducted within a larger randomised control trial, HOMESIDE. Data was collected through video-recorded music-based interviews, participant diaries, and a semi-structured interview. Data was analysed using an abductive and relational-centred research approach in consideration of the Contextual Connection Model of Health Musicking for People Living with Dementia and Their Family Care Partners. The study found fifteen themes that describe dyads’ supported experiences of sharing music in their homes. These were organised into three global themes: (1) experiences were shaped by complex influences; (2) a connected musical ecosystem; and (3) music was a resource for wellbeing. This study highlighted the important role of personalised facilitation and the therapeutic relationship as dyads learned to use music as a resource through a process of trial and error. The implications for skill-sharing, indirect music therapy and direct music therapy practice are discussed.

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Section: Discussionmentioning

confidence: 99%

Learning to use music as a resource: the experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: a HOMESIDE sub-study

et al. 2023

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“…Telehealth music therapy refers to the synchronous delivery of music therapy using pre-existing audio-visual telecommunications technology. Guided by people with dementia through Public and Patient Involvement (PPI), the interdisciplinary research project has multiple research objectives, which aim to explore how person-centered dementia care can be provided in music therapy [16], the music and technological considerations when designing a telehealth music therapy program for people with dementia [17], music therapists' experiences of providing telehealth music therapy for people with dementia [18], and the experiences of persons with dementia and their spouses who attended a telehealth music therapy program [19]. It became apparent that, before we could consider how telehealth music therapy could support this population, there was a need to (a) identify what music experiences were available for people with dementia and (b) develop an understanding of how to determine which music experience may be most appropriate to meet the psychosocial needs of people with dementia and their family caregivers in the form of a practical guide.…”

Section: Introductionmentioning

confidence: 99%

“Follow the Musical Road”: Selecting Appropriate Music Experiences for People with Dementia Living in the Community

Kelly

Clements-Cortés

Ahessy

et al. 2023

IJERPH

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There are many music experiences for people with dementia and their caregivers including but not limited to individualized playlists, music and singing groups, dementia-inclusive choirs and concerts, and music therapy. While the benefits of these music experiences have been well documented, an understanding of the differences between them is often absent. However, knowledge of and distinction between these experiences are crucial to people with dementia and their family members, caregivers, and health practitioners to ensure a comprehensive music approach to dementia care is provided. Considering the array of music experiences available, choosing the most appropriate music experience can be challenging. This is an exploratory phenomenological study with significant Public and Patient Involvement (PPI). Through consultation with PPI contributors with dementia via an online focus group and senior music therapists working in dementia care via online semi-structured interviews, this paper aims to identify these distinctions and to address this challenge by providing a visual step-by-step guide. This guide can be consulted when choosing an appropriate music experience for a person with dementia living in the community.

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“…Music therapy offers personal and relational benefits for people with dementia and their care partners and could help to fill this gap in services within formal ( McDermott et al, 2013 ) and informal contexts ( Clark et al, 2018 ; Kelly, 2023 ; Molyneaux et al, 2022 ; Thompson et al, 2021a ). The psychosocial model of music in dementia ( McDermott et al, 2014 ) recognises how the impact of music on the personal psychology of people with dementia and the social psychology of their environment meets person-centred and relational needs.…”

Section: Introductionmentioning

confidence: 99%

“…However, developing therapeutic relationships may take more time than for in-person therapy, and technological limitations, such as audio delay and poor online resolution can detract from the therapeutic experience ( Krout et al, 2010 ). More recently, research has explored the feasibility of online music therapy programs incorporating songwriting with other methods (such as singing familiar songs, music listening, instrument playing, and moving to music) for people with dementia and their care partners ( Kelly, 2023 ; McMahon et al, 2023 ; Stedje et al, 2023 ). While these programs acknowledged the online format as an accessible and convenient alternative to in-person music therapy, technology was experienced as a barrier by some participants.…”

Section: Introductionmentioning

confidence: 99%

“…Previous music therapy research has specifically explored in-person therapeutic songwriting with people with dementia and care partners participating together ( Clark et al, 2020 , 2021 ) and online programs incorporating songwriting and other music therapy methods with people with dementia and their care partners ( Kelly, 2023 ; McMahon et al, 2023 ; Stedje et al, 2023 ). However, there is a gap in the research focusing on therapeutic songwriting with people with dementia and their care partners participating as a duo.…”

Section: Introductionmentioning

confidence: 99%

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The experiences of people living with dementia and their care partners participating in an online therapeutic songwriting program

Clark,

Christopher,

Stretton-Smith

et al. 2023

Dementia

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Background and Aim Despite the impact of dementia on close care relationships, accessible therapeutic services for people living with dementia and their care partners remain scarce. Further, there is an increasing demand for online services, highlighting the need for ongoing telehealth research. This study aimed to explore the experiences of people living with dementia and their informal and formal care partners following participation in a 10-week online therapeutic songwriting program. Methods The songwriting program included four duo and six group sessions facilitated by a music therapist. Post-program semi-structured interviews were analysed using thematic analysis. Findings Nine people with dementia and six care partners (nine duos) participated in the program. Five duos were in spousal relationships and four people with dementia participated with a formal care partner. Participants attended an average of four duo sessions and three group sessions. Six people with dementia and five care partners participated in post-program interviews. Four themes were developed: (1) No one else does this; (2) It’s all about us as people; (3) After the sessions we’d come out buzzing; and (4) The journey was as important as the product. Conclusions Participants highlighted songwriting as a unique opportunity to connect with music, experience welcomed challenges, and spend ‘real time’ together. The program drew on participants’ lived experience and promoted connection with others, resulting in feelings of enjoyment, enhanced mood, and achievement. Participants valued both the songwriting process and song product, emphasising the importance of sensitive and skilful facilitation. Our findings suggest that these distinct benefits were not available through other support services. Further, online songwriting is a viable option for people living with dementia and their care partners where in-person sessions are not available or accessible.

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Reducing rural isolation through music: telehealth music therapy for community dwelling people living with dementia and their family caregivers in rural Ireland

Cited by 4 publications

References 0 publications

Learning to use music as a resource: the experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: a HOMESIDE sub-study

Learning to use music as a resource: the experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: a HOMESIDE sub-study

“Follow the Musical Road”: Selecting Appropriate Music Experiences for People with Dementia Living in the Community

The experiences of people living with dementia and their care partners participating in an online therapeutic songwriting program

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