Reducing safety risk among underserved caregivers with an Alzheimer's home safety program

Abstract

This pilot pre/post design with non-equivalent groups study needs refinement in a future randomized control trial. Despite limitations, this pilot study demonstrates the first feasible and evaluable intervention with both statistically and clinically significant results that suggest potential for reducing safety risks among at-risk minority patients living with AD in future research.

Including ethnic minorities in dementia research: Recommendations from a scoping review

“… 34 , 35 This included the translation of study materials into the participants’ preferred languages, advertising through flyers in English and the target population's language, and providing the option for interventions to be delivered in participants’ preferred language. 34 , 35 , 36 , 38 , 41 , 42 , 53 , 55 , 56 , 58 , 61 , 62 , 63 , 64 , 65 , 66 , 67 Thirteen articles reported the use of bilingual and bicultural workers, including employing bilingual research assistants, having participants assessed by a physician who spoke their language, and making use of race‐concordant community health workers 38 , 51 , 53 , 54 , 57 , 58 , 61 , 64 , 68 , 69 , 70 , 71 , 72 (see Table 1 ).…”

“…Additionally, employment of researchers or clinical staff who spoke the participants’ primary language 38 , 51 , 53 , 54 , 57 , 58 , 61 , 64 , 68 , 69 , 70 , 71 , 72 or translation of study materials 58 were key ways in which researchers made participation in dementia research accessible to ethnically diverse people. The researchers used in‐language versions of the relevant tools 58 , 64 , 82 and where these were not available, translated and back‐translated the tools themselves.…”

“…89 As underscored in several systematic reviews, [90][91][92][93][94][95] such HICs in which many ethnic minority communities overwhelmingly seek basic and primary care needs through such settings. 19 Additionally, employment of researchers or clinical staff who spoke the participants' primary language 38,51,53,54,57,58,61,64,[68][69][70][71][72] or translation of study materials 58 were key ways in which researchers made participation in dementia research accessible to ethnically diverse people.…”