Reflections on the development of a therapeutic recreation-based bereavement camp for families whose child has died from serious illness

Hanlon, Peter; Guérin, Suzanne; Kiernan, Gemma

doi:10.1080/07481187.2017.1407012

Cited by 3 publications

(24 citation statements)

References 32 publications

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“…15,27,22–24,26,31,32,36,38–40 In general, these groups consisted of about 10 participants that met for a series of 8–10 sessions ( n = 6), 15,23,29,33,39 lasting 45–120 minutes over a period of 2–3 months. They are followed by bereavement camps ( n = 10, 43%) 19–21,25,27,28,30, 34,35,37 that typically last one weekend ( n = 6) 19,21,25,30,35,37 to one week. Other forms of bereavement intervention include: individual therapy ( n = 7, 30%), 22,24,26,27,31,36,38 family therapy ( n = 6, 26%), 22,24,26,29,31,39 pre-bereavement support ( n = 3, 13%), 24,26,31 telephone support ( n = 2, 8%), 26,27 onward referral ( n = 2, 8%) 27,31 and conferences ( n = 1, 4%).…”

Section: Resultsmentioning

confidence: 99%

“…Eleven articles (47%) 15,20,23,25,29,30,32,33,38–40 described the theoretical underpinning of interventions. The most common theoretical bases used were as follows: cognitive behaviour therapy ( n = 5), 15,30,33,38,39 developmental theory ( n = 4), 15,38–40 trauma-focused therapy ( n = 4), 29,30,38,39 expressive therapies ( n = 4), 15,38–40 and the family bereavement programme ( n = 3).…”

Section: Resultsmentioning

confidence: 99%

“…Thirteen articles (56%) 15,19–21,23,25,28,29,33–35,38,39 defined the objectives of their interventions: grief education and instruction in coping techniques ( n = 7), 19,23,29,33,35,38,39 peer support and sharing ( n = 5), 19–21,28,34 creating a safe environment ( n = 4), 15,25,35,39 comfort and healing ( n = 4), 20,25,34,35 and moving forward ( n = 4). 15,19,25,35…”

Section: Resultsmentioning

confidence: 99%

“…Thirteen articles ( n = 13, 57%) 19,20,21,25,29,32,33,35–40 described parallel sessions for parents during the children’s sessions. These groups were overseen by nurses, psychologists, therapists and volunteers.…”

Section: Resultsmentioning

confidence: 99%

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Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review

Ridley

Frache

2020

Palliat Med

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Background: Childhood bereavement after sibling death is common, but often unrecognized. The psychosomatic and socioeconomic outcomes of bereaved children can be compromised if appropriate care is unavailable during the formative years leading into adulthood. Aim: This review aims to describe the methods, structures and procedures of bereavement care for children and adolescents after the loss of a sibling, and the impact on the families benefiting from these interventions. Design: A systematic review without restriction on study design was conducted. Data sources: Four databases (MEDLINE, PsycINFO, EMBASE, Cochrane Library) were searched for articles published from 2000 to 2019. The search was conducted according to PRISMA guidelines and the protocol is registered on PROSPERO under number CRD42019124675. Articles were assessed against eligibility criteria by both authors, and quality was appraised using CASP checklists and NHMRC grading guidelines. Results: Twenty-three studies met inclusion criteria. Bereavement care was most often accessed by children ages 6–18 who lost a sibling to cancer 6–12 months prior. The interventions were typically group sessions or weekend camps, run predominantly by unpaid staff from a variety of backgrounds. Some staff members received priori specific training. Grief education is taught through mediated discussion and bereavement-centered activities balanced with playful and relaxed activities. Several services have effectuated evaluations of their interventions, and preliminary results show a positive effect for families. Conclusion: Existing literature most likely gives an incomplete picture of appropriate childhood bereavement care, and many interventions possibly remain unpublished or published in other non-scientific sources. An effective response to childhood grief would involve collaboration between medical resources and community services, reinforced through the development of outreach and training programs.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review

Ridley

Frache

2020

Palliat Med

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“…The final aspect of the nature of the program is the camp aims. A documentary analysis, which gathered and systematically analyzed planning documents, minutes, and correspondence related to the historical development of the program (Hanlon, Guerin & Kiernan, 2018), noted that those aims have remained relatively stable over time, though they evolved from applying to children only to being applied to families. In this study, the TR component provides the element of fun that is central to these aims.…”

Section: Discussionmentioning

confidence: 99%

Staff and Parent Perspectives on a Therapeutic Recreation-Based Bereavement Camp for Families Whose Child Has Died From Serious Illness

2019

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This study explores the nature of a therapeutic recreation-based bereavement camp for families whose child has died from serious illness. Open-ended surveys and interviews were conducted with parents attending a three-camp cycle over a 12-month period or a reunion camp. Thirteen parents completed open-ended surveys before and after each camp and six of these also completed interviews after the final camp. Six additional parents completed interviews after the reunion camp. Six staff working with families during the camps were also interviewed. Content analysis of surveys and thematic analysis of interviews revealed the aims, structure, and content of the camp. The findings suggest a model whereby shared experience allows for normalization and offers a nonjudgmental place to share stories, discuss difficulties come together as a family, and create a support network. These findings highlight the value of therapeutic recreation-based bereavement interventions for families whose child has died from serious illness.

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Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child

Høeg,

Guldin,

Høgh

et al. 2024

Palliat Med

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Background: Experiencing the illness and death of a child is a traumatic experience for the parents and the child’s siblings. However, knowledge regarding effective grief interventions targeting the whole family is limited, including how to integrate age-appropriate support for siblings. Aim: We aimed to synthesize the empirical literature regarding grief interventions that target the whole family before and/or after the death of a child. Design: A scoping review following the Joanna Briggs Institute and Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) guidelines. Data sources: We searched PubMed, PsycINFO, Embase, CINAHL, and Scopus covering January 1998–May 2022. We included studies describing any type of structured intervention targeting the whole family (i.e. parents and siblings) before or/and after the death of a child (below 18 years), with pre-post assessments of grief-related symptoms in the family as an outcome. Results: After removal of duplicates, we screened the titles and abstracts of 4078 publications and identified 30 publications for full-text screening. None of the studies met the inclusion criteria. Most of the studies were excluded because they either did not target the whole family or did not target families who had lost a child below 18 years. Bereavement camps were a popular form of family intervention, but none were evaluated in a pre-post design. No grief interventions offering support pre-death were found. Conclusions: There is great need for research to improve bereavement outcomes for the entire family and to potentially integrate this in pediatric palliative care.

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Reflections on the development of a therapeutic recreation-based bereavement camp for families whose child has died from serious illness

Cited by 3 publications

References 32 publications

Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review

Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review

Staff and Parent Perspectives on a Therapeutic Recreation-Based Bereavement Camp for Families Whose Child Has Died From Serious Illness

Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child

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