Regaining normality: A grounded theory study of the illness experiences of Chinese patients living with Crohn’s disease

Ruan, Jiayin; Zhou, Yibin

doi:10.1016/j.ijnurstu.2019.02.015

Cited by 11 publications

(13 citation statements)

References 46 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Influenced by a collectivist culture, the desire to be understood and accepted by others, especially by members of the ingroups, might be much stronger in Chinese IBD patients. The subcategory "pursuing a sense of belonging" in a constructivist ground theory among Chinese CD patients also supported this argument [5].…”

Section: Discussionmentioning

confidence: 80%

“…According to Breakwell's "identity process theory," patients' new identity (such as "normal people") was developed by a dynamic process of assimilationeaccommodation [31]. This was also a manifestation of regaining normality process of IBD patients in China [5].…”

Section: Discussionmentioning

confidence: 99%

“…Extraintestinal manifestations mainly involve eyes (episcleritis), joints (peripheral and axial arthropathies), and skin (erythema nodosum) [7]. In addition, bodily changes brought by treatments include moon face and weight gain because of the side effects of steroid, scars, and stomas because of undergoing surgical treatment [5], and a distorted image due to nasogastric feeding [5].…”

Section: Introductionmentioning

confidence: 99%

“…A negative body image is associated with social anxiety, depressive symptoms, and low self-esteem [4,5,11]. Quantitative studies from Western (the USA and Ireland) and Asian (Korea and China) countries have consistently indicated that body image changes are common phenomena in patients with IBD (a prevalence of a negative body image ranged from 21.0% to 81.0%) [11] and are associated with significant psychological dysfunction and impaired quality of life [4,5,11]. Currently, there has been relatively little literature published on the experiences of body image changes among patients with IBD.…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Experiences of Body Image Changes in Chinese Patients Living with Inflammatory Bowel Disease: A Descriptive Qualitative Study

Ruan

Zhou

2020

Asian Nursing Research

Self Cite

View full text Add to dashboard Cite

Body image changes are common among patients living with inflammatory bowel disease (IBD) because of the illness and related treatments. Currently, there is little known about how those patients experience and perceive their altered body image in the literature. The aim of this study was to explore the experiences of body image changes in patients with IBD in China and to describe how those changes influence patients' perception of body and self. Methods: This study used a descriptive qualitative approach. A total of 16 participants from three tertiary hospitals in southeast China were recruited through purposive sampling combined with maximum variation strategy. Data were collected through semistructured interviews and analyzed using conventional content analysis method. Results: The following six themes were extracted: (1) "being a constrained person," (2) "being a flawed person," (3) "being a disliked person," (4) "being an alienated person," (5) "being a reconciled person," and ( 6) "being a blessed person." Conclusion: With the diagnosis of IBD and its side effects of treatments, patients' life changed significantly and they were struggling to reinterpret their body and self. As a result, negative self-evaluations and/ or positive self-evaluations towards themselves generated. Further studies are required to explore the underlying mechanism and related influencing factors about how those different images were produced.

show abstract

Section: Discussionmentioning

confidence: 80%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Experiences of Body Image Changes in Chinese Patients Living with Inflammatory Bowel Disease: A Descriptive Qualitative Study

Ruan

Zhou

2020

Asian Nursing Research

Self Cite

View full text Add to dashboard Cite

show abstract

“…Narratives described a significant shift from the person individuals identified as prior to having IBD to who they felt they were after they received the diagnosis. People spoke of moving between striving to "regain normality" (author comment) [68] and acceptance of IBD as part of who they were. Some began to incorporate the life-long disease into their self-identity: "It's not going to go away, better it stays part of me, but I don't want it to define me."…”

Section: Re-building the Selfmentioning

confidence: 99%

A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease

Muse

Johnson

David

2021

IJERPH

View full text Add to dashboard Cite

Inflammatory bowel disease (IBD) consists of Crohn’s disease and ulcerative colitis, chronic conditions involving inflammation and ulceration of the gastrointestinal tract. Individuals with IBD may be susceptible to experiencing health-related stigma: experienced, perceived, or internalised social exclusion, rejection, blame, or devaluation resulting from negative social judgements based on the disease. This qualitative research synthesis draws together findings from 38 studies describing lived experiences to develop a unified interpretative account of the experience of stigma in IBD. Analysis developed two categories: ‘The IBD journey’ explores the dynamic ways in which having IBD impacted on individuals’ self-identity and ‘a need to be understood’ examines the tension between wanting to be understood whilst feeling their true experiences needed to be hidden from or were misjudged by the social sphere. The overarching concept ‘feeling of otherness’ highlights that, rather than a static, binary experience, individuals moved across a continuum ranging from the excluding experience of feeling stigmatised and othered, to the inclusive experience of integration. Individuals fluctuated along this continuum across different physical, social, and health contexts. Psychological adjustment to IBD, drawing on experience of adaptive coping, and reconnecting with valued others through illness disclosure strengthened stigma resistance during more challenging times.

show abstract

Illness Identity in Inflammatory Bowel Disease

Rassart

Wanseele

Debrun³

et al. 2022

Int.J. Behav. Med.

View full text Add to dashboard Cite

Background. We examined the degree to which adults with inflammatory bowel disease (IBD) integrated their illness into their identity and linked illness identity to important patient-reported outcomes. Methods.A total of 109 adults with IBD, aged 18 to 60 (Mage= 35.93; 77% women) completed questionnaires on the four illness identity dimensions (rejection, acceptance, engulfment, and enrichment), medication adherence, depressive symptoms, life satisfaction, health status, and health-related quality of life (HRQoL). The illness identity scores of adults with IBD were compared to existing data from adults with congenital heart disease (CHD), refractory epilepsy (RE), and multisystemic connective tissue disorders (MSDs) using multivariate analyses of covariance. In adults with IBD, associations between illness identity and patient-reported outcomes were examined through hierarchical regression analyses, controlling for sex, age, illness duration, diagnosis, self-reported flares, and co-existing illnesses.Results. Adults with IBD scored higher on rejection and engulfment and lower on acceptance than adults with CHD, lower on rejection but higher on engulfment than adults with RE, and higher on engulfment and enrichment but lower on rejection than adults with MSDs. Higher engulfment scores were related to more depressive symptoms, lower life satisfaction, and a poorer health status and HRQoL. In contrast, higher enrichment scores were related to more life satisfaction and a better HRQoL. Rejection and acceptance were not uniquely related to any of the outcomes. Conclusions.Adults with IBD showed relatively high levels of engulfment. Substantial associations were observed between illness identity and patient-reported outcomes, with engulfment being the strongest, most consistent predictor.

show abstract

Regaining normality: A grounded theory study of the illness experiences of Chinese patients living with Crohn’s disease

Cited by 11 publications

References 46 publications

Experiences of Body Image Changes in Chinese Patients Living with Inflammatory Bowel Disease: A Descriptive Qualitative Study

Experiences of Body Image Changes in Chinese Patients Living with Inflammatory Bowel Disease: A Descriptive Qualitative Study

A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease

Illness Identity in Inflammatory Bowel Disease

Contact Info

Product

Resources

About