Regional adaptation of the education in palliative and end‐of‐life <scp>Care Pediatrics</scp> (<scp>EPEC‐Pediatrics</scp>) curriculum in Eurasia

McNeil, Michael J.; Ehrlich, Bella; Yakimkova, Taisiya; Wang, Huiqi; Mishkova, Volha; Bezler, Zhanna; Kumirova, Ella; Madni, Arshia; Movsisyan, Narine; Williams, Karen; Baizakova, Baglan; Borisevich, Marina; Chatman, Georgia; Erimbetova, Indira; Quintero, Ximena; Golban, Rodica; Kirby, Brandi; Nunez, Paola; Ranadive, Radhikesh; Sakhar, Nadezhda; Sonnenfelt, Jason; Волкова, А. Г.; Moreira, Daniel C.; Friedrichsdorf, Stefan J.; Wolfe, Joanne; Remke, Stacy S.; Hauser, Joshua; Devidas, Meenakshi; Baker, Justin N.; Agulnik, Asya

doi:10.1002/cam4.5213

Cited by 3 publications

(1 citation statement)

References 38 publications

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“…This curriculum can be regionally adapted to target specific gaps in PPC delivery identified through research studies such as ADAPT, as has been done in other regions. 41 …”

Section: Discussionmentioning

confidence: 99%

Physician Perceptions of and Barriers to Pediatric Palliative Care for Children With Cancer in Brazil

McNeil,

Godfrey,

Loggetto

et al. 2023

JCO Global Oncology

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PURPOSE Early integration of pediatric palliative care (PPC) for children with cancer is critical to improving the quality of life of both the patient and family. Understanding physician perceptions of palliative care and perceived barriers to early integration is necessary to develop PPC in Brazil. METHODS The Assessing Doctors' Attitudes on Palliative Treatment survey was modified for use in Brazil. The survey was open from January 2022 to June 2022 and distributed to physicians of all specialties from participating institutions who treat children with cancer. Statistical analysis was complemented by qualitative analysis of open-ended responses. RESULTS A total of 272 respondents participated. Most respondents reported access to PPC experts for consultation (77.2%) and 34.5% indicated previous palliative care training. Physician knowledge of PPC was generally aligned with WHO guidance (median alignment, 93.0%; range, 80.5%-98.2%). However, about half (53.3%) felt comfortable addressing physical needs of patients receiving PPC, 35.3% addressing emotional needs, 25.8% addressing spiritual needs, and 33.5% addressing grief and bereavement needs. Most respondents (65.4%) felt palliative care should be involved from diagnosis, but only 10.3% stated that this occurred in their setting. The most important barriers identified were physician discomfort (89.0%), limited physician knowledge (88.6%), and lack of home-based services (83.8%). CONCLUSION Despite a strong understanding of the role of palliative care, physicians in Brazil reported low confidence delivering PPC to children with cancer. Additionally, physicians generally believed that PPC should be integrated earlier in the disease trajectory of children with cancer. This work will direct educational and capacity building initiatives to ensure greater access to high-quality PPC for children with cancer in Brazil to address patient and family suffering.

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“…This curriculum can be regionally adapted to target specific gaps in PPC delivery identified through research studies such as ADAPT, as has been done in other regions. 41 …”

Section: Discussionmentioning

confidence: 99%

Physician Perceptions of and Barriers to Pediatric Palliative Care for Children With Cancer in Brazil

McNeil,

Godfrey,

Loggetto

et al. 2023

JCO Global Oncology

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Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions

Bogetz,

Strub,

Bradford

et al. 2024

Journal of Pain and Symptom Management

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Perceptions of physicians caring for pediatric patients with cancer in Europe: insights into the use of palliative care, its timing, and barriers to early integration

Lacerda,

Bravo-Carretero,

Ehrlich

et al. 2024

Front. Oncol.

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BackgroundIntegrating pediatric palliative care (PPC) into pediatric oncology standard care is essential. Therefore, it is important to assess physicians’ knowledge and perceptions of PPC to optimize its practice.ObjectiveTo evaluate the knowledge, comfort levels, and perspectives of physicians regarding the timing and perceived barriers to integrating PPC into pediatric cancer care across Europe.DesignThe Assessing Doctors’ Attitudes on Palliative Treatment (ADAPT) survey, originally developed for other global regions, was culturally and contextually adapted for Europe.Setting/SubjectsThe survey was distributed via the European Society of Paediatric Oncology (SIOPE) membership listserv. Any physicians caring for children with cancer across Eastern, Southern, Central, and Northern Europe were invited to complete the survey.ResultsA total of 198 physicians from 29 European countries completed the ADAPT survey. Physicians demonstrated relative agreement with the World Health Organization’s guidance; median alignment was 83.4% (range 59.9%-94.1%). Although most respondents felt comfortable addressing physical (84.4%) and emotional (63.4%) needs, they felt less comfortable addressing spiritual needs (41.9%) and providing grief and bereavement support (48.5%). There were significant regional differences, such as physicians in Eastern and Southern Europe reporting a lack of PPC specialists, opioids, and home-based care, while those in Northern and Central Europe did not.ConclusionPhysicians caring for children with cancer throughout Europe have a good understanding of PPC. However, misconceptions about PPC persist, requiring educational and capacity-building efforts. Additionally, the regional differences in perceived barriers must be addressed to ensure equitable access to PPC for all European children with cancer.

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Regional adaptation of the education in palliative and end‐of‐life Care Pediatrics (EPEC‐Pediatrics) curriculum in Eurasia

Cited by 3 publications

References 38 publications

Physician Perceptions of and Barriers to Pediatric Palliative Care for Children With Cancer in Brazil

Physician Perceptions of and Barriers to Pediatric Palliative Care for Children With Cancer in Brazil

Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions

Perceptions of physicians caring for pediatric patients with cancer in Europe: insights into the use of palliative care, its timing, and barriers to early integration

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