Rehabilitate the Patient With Als?

Mikulic, Mary Ann; DeLisa, Joel A.; Miller, Robert M.

doi:10.1002/j.2048-7940.1979.tb00940.x

Cited by 3 publications

(1 citation statement)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…We chose 1980 because Mikulic, DeLisa, and Miller [14] proposed the idea of using rehabilitation for people with ALS in 1979. The search was conducted using the PICO approach (Appendix 1) in consultation with a health sciences librarian and included the following databases: MEDLINE; CINAHL; PsycINFO; The Physiotherapy Evidence Database (PEDro); Occupational Therapy Systematic Evaluation of Evidence (OT seeker); AMED; EMBASE; OVID Health Star; Global Health; and LILACS EN.…”

mentioning

confidence: 99%

Untitled

2018

Int J Neurodegener Dis

View full text Add to dashboard Cite

BackgroundAmyotrophic Lateral Sclerosis (ALS) is a degenerative, disabling and fatal motor neuron disease affecting 450,000 adults worldwide [1]. The prognosis of ALS is affected by age at disease onset, rate of progression, and presence of bulbar signs early in the disease [2,3]. Currently there is no cure for ALS and the cause of the disease remains unknown. Therefore, treatment is based on symptom management to optimize lifespan and maximize QoL [4,5].Individuals with ALS experience muscle weakness due to the progressive degeneration of motor neurons in the spinal cord, brainstem, and cerebral hemispheres [6]. This ultimately results in activity limitations and participation restrictions for these individuals. About 50% of people experience initial signs and symptoms in the upper extremities, whereas for 40% of individuals the onset occurs in the lower extremities [7]. In the remaining 10%, onset may be observed in areas of the bulbar region showing symptoms of changes in voice and speech, poor articulation, a decrease in range of pitch and loudness of voice, spasms in muscles of the jaw, face, voice box, throat and tongue [8].As the disease progression can occur rapidly, it is essential that people with ALS have quick access to services from a range of health professionals that are Abstract Background: Many factors can affect a person's outlook on his/her life; rehabilitation interventions vary greatly and little is known about the effect of rehabilitation to maintain and/ or enhance Quality of Life (QoL) in people with Amyotrophic Lateral Sclerosis (ALS).

show abstract

mentioning

confidence: 99%

Untitled

2018

Int J Neurodegener Dis

View full text Add to dashboard Cite

show abstract

The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis

et al. 2017

View full text Add to dashboard Cite

show abstract

The functional and psychological status of patients with amyotrophic lateral sclerosis: Some implications for rehabilitation

Hunter¹,

Robinson²,

Neilson³

1993

Disability and Rehabilitation

View full text Add to dashboard Cite

Amyotrophic lateral sclerosis (ALS), known as motor neurone disease (MND) in Britain, poses special problems in rehabilitation by virtue of its nature, trajectory and the age of patients with the disease. Many practical difficulties of ALS are well known, but there has been little research on the psychological parameters of the disease. This study of 181 ALS patients, from a national register in England and Wales, indicates that, contrary to some previous research, psychological distress (measured by the General Health Questionnaire) is widespread among patients at all stages of the disease. Severity of functional impairment is significantly related to psychological distress, but explains only a small part of the variance. Rehabilitation in relation to ALS must take account of the high incidence of psychological difficulties, as well as the considerable functional problems associated with the disease.

show abstract

Rehabilitate the Patient With Als?

Cited by 3 publications

References 15 publications

Untitled

Untitled

The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis

The functional and psychological status of patients with amyotrophic lateral sclerosis: Some implications for rehabilitation

Contact Info

Product

Resources

About