Rehabilitees perspective on goal setting in rehabilitation – a phenomenological approach

Abstract

Rehabilitee commitment to rehabilitation can be supported with equality in communication and presence of relatives, while pain and uncertainty because of changed health limit participation in a goal setting situation. Implications for Rehabilitation Multidisciplinary rehabilitation professionals should be recommended to support the active role of a patient in the goal setting situation. Relatives are recommended to participate in goal setting situation as they are an important support for rehabilitees. Professionals should be recommended to remove obstacles that restrain patient's participation in the goal setting situation. Professionals should be recommended to recognize patients with changed health and offer psychosocial support for those in need to improve their participation in rehabilitation process.

From open to locked doors – From dependent to independent: Patient narratives of participation in their rehabilitation processes

“…Alanko et al. (2019) describe respectful presence as important when the patients are participating in goal‐setting situations. Patients constructed themselves in their narratives, from passive patients who needed help at the beginning, to gradually becoming active patients by the end of the stories.…”

“…Interventions and programmes are always patient‐centred, and outcomes include functioning and personalised dimensions (Negrini, 2018). When professionals are committed to working in a patient‐centred manner, the rehabilitees feel respected and are able to trust the professionals, and thus, their self‐efficacy is increased (Alanko et al., 2019).…”

“…However, person‐centred goal setting often does not occur in rehabilitation (Lloyd et al., 2017; Maribo et al., 2020). From a patient's point of view, the meanings of goal‐setting situations have been identified as ‘trust in the rehabilitation situation, professionals, oneself, and relatives;’ ‘respectful presence;’ ‘confusing awareness;’ ‘disturbing pain;’ and ‘fear of unpredictability’ (Alanko et al., 2019). Patient participation in rehabilitation is described, based on the perspectives of nurses and occupational therapists, as a continuum that ranges from patients complying with the professional's instructions to the idea that all power is transferred to the patient (Holmqvist & James, 2019).…”

The development of a return to work intervention programme for stroke survivor (SReTWIP): a Delphi survey

“…Holistic understanding of the stroke survivor's work capacities and barriers is important for delivering the SReTWIP effectively. The inclusion of goal setting as an integral part of the assessment phase of the SReTWIP could enhance communication and collaboration within rehabilitation teams [19][20][21] as well as improve patient motivation and engagement in the other phases of the SReTWIP programme [22]. Although in most literature, goal • Formal education and training to improve job competitiveness • Work hardening that is inclusive of simulated task training…”

“…• When client is independent in performing leisure activities • When client is fully reintegrated in the community (such as participation in social groups) setting during stroke rehabilitation has been generally referred to as a single activity that is isolated from other rehabilitation processes [19,23,24]. Plant and Tyson [25], on the contrary asserted that goal setting process as well as patient's assessment during stroke rehabilitation are clearly interlinked.…”