Reimagining care for young adults living with type 1 diabetes

Morrissey, Eimear; Dinneen, Seán F.; Lowry, Michelle; Koning, Eelco J.P. de; Kunneman, Marleen

doi:10.1111/jdi.13824

Cited by 5 publications

(5 citation statements)

References 21 publications

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“…Similarly, a recent survey found that one‐third of adults report foregoing, and 4 in 10 delaying, recommended medical treatment due to cost 7 . At the same time, patients with seemingly excellent ‘disease control’ and biomedical outcomes may reach these outcomes only at the expense of those aspects of life that make life worth living in the first place 8 . An older man on a diuretic for cardiac insufficiency may stop taking his grandchild fishing because of urinary incontinence.…”

Section: Introductionmentioning

confidence: 99%

“…They describe that to make care fit, patients and clinicians work together in designing care, making sure their plans maximally respond to the patient's unique situation and priorities and minimally disrupt the patient's lives and social networks. This is an ongoing and iterative process, where patients and clinicians continuously re‐evaluate whether care still fits in people's lives and whether people's lives can still be lived alongside these plans of care 8,12 …”

Section: Introductionmentioning

confidence: 99%

“…This is an ongoing and iterative process, where patients and clinicians continuously re-evaluate whether care still fits in people's lives and whether people's lives can still be lived alongside these plans of care. 8,12 To evaluate the extent to which making care fit takes place in clinical encounters and the efficacy of interventions to improve these efforts, we need reliable and valid instruments that measure all key dimensions of making care fit. While many measurement instruments may be available to assess specific components of patient-clinician collaboration, 13,14 it is unclear whether and how they measure the full breadth of efforts to make care fit.…”

Section: Introductionmentioning

confidence: 99%

“…7 At the same time, patients with seemingly excellent ‘disease control’ and biomedical outcomes may reach these outcomes only at the expense of those aspects of life that make life worth living in the first place. 8 An older man on a diuretic for cardiac insufficiency may stop taking his grandchild fishing because of urinary incontinence. A patient on a complex insulin regimen with frequent episodes of hypoglycemia may forego social outings to avoid ‘embarrassing disruptions’.…”

Section: Introductionmentioning

confidence: 99%

“…This is an ongoing and iterative process, where patients and clinicians continuously re‐evaluate whether care still fits in people's lives and whether people's lives can still be lived alongside these plans of care. 8 , 12 …”

Section: Introductionmentioning

confidence: 99%

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Assessing collaborative efforts of making care fit for each patient: A systematic review

Kunneman

Gravholt

Hartasanchez

et al. 2023

Health Expectations

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Introduction For too many people, their care plans are designed without fully accounting for who they are, the lives they live, what matters to them or what they aspire to achieve. We aimed to summarize instruments capable of measuring dimensions of patient–clinician collaboration to make care fit. Methods We systematically searched several databases (Medline, Embase, Cochrane, Scopus and Web of Science) from inception to September 2021 for studies using quantitative measures to assess, evaluate or rate the work of making care fit by any participant in real‐life clinical encounters. Eligibility was assessed in duplicate. After extracting all items from relevant instruments, we coded them deductively on dimensions relevant to making care fit (as presented in a recent Making Care Fit Manifesto), and inductively on the main action described. Results We included 189 papers, mostly from North America (N = 83, 44%) and in the context of primary care (N = 54, 29%). Half of the papers (N = 88, 47%) were published in the last 5 years. We found 1243 relevant items to assess efforts of making care fit, included within 151 instruments. Most items related to the dimensions ‘Patient‐clinician collaboration: content’ (N = 396, 32%) and ‘Patient‐clinician collaboration: manner’ (N = 382, 31%) and the least related to ‘Ongoing and iterative process’ (N = 22, 2%) and in ‘Minimally disruptive of patient lives’ (N = 29, 2%). The items referred to 27 specific actions. Most items referred to ‘Informing’ (N = 308, 25%) and ‘Exploring’ (N = 93, 8%), the fewest items referred to ‘Following up’, ‘Comforting’ and ‘Praising’ (each N = 3, 0.2%). Discussion Measures of the work that patients and clinicians do together to make care fit focus heavily on the content of their collaborations, particularly on exchanging information. Other dimensions and actions previously identified as crucial to making care fit are assessed infrequently or not at all. The breadth of extant measures of making care fit and the lack of appropriate measures of this key construct limit both the assessment and the successful implementation of efforts to improve patient care. Patient Contribution Patients and caregivers from the ‘Making care fit Collaborative’ were involved in drafting the dimensions relevant to patient–clinician collaboration.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%