Reimagining publics and (non) participation: Exploring exclusion from science communication through the experiences of low-income, minority ethnic groups

Dawson, Emily

doi:10.1177/0963662517750072

Cited by 148 publications

(140 citation statements)

References 43 publications

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“…It is, I will argue, in this sense that dementia is offered as a justification for governing certain types of people in relation to the neuromolecular. Such governance risks manifesting a racialised knowledge deficit‐model of science communication (Dawson , Simis et al . ) and hence warrants critical analysis.…”

Section: Awareness Research and The Ethnic Turnmentioning

confidence: 99%

“…Pejorative assumptions regarding minority ethnic groups and a lack of openness to cultural diversity in science communication can disincentivise those groups from engaging with research (Dawson ). This disjuncture operates in both directions, with researchers viewing minority ethnic groups as uninformed and minority ethnic groups viewing dementia as a white issue (Berwald et al .…”

Section: Governing Racialised Knowledge Deficitsmentioning

confidence: 99%

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Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

Fletcher

2020

Sociology Health & Illness

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Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia and that interventions should be developed to better educate them. Operationalisations of awareness almost always reference senilitythe traditional notion that dementia is a natural outcome of ageinga widely held belief among many populations. Senility is considered incorrect knowledge in the research literature, and those participants who identify with it are deemed to have poor awareness. Despite the researchers' claims that senility is false, the scientific evidence is inconclusive, and the concept is contested. As such, a large body of research repeatedly positions minority ethnic communities as inferior and in need of re-education based on researchers' questionable assumptions. This issue is bound up with a racialised deficit-model of science communication and wider critiques of psychiatric colonialism. In response, researchers of dementia and ethnicity should reflect on their own awareness and the ways in which they position others in relation to it.

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Section: Awareness Research and The Ethnic Turnmentioning

confidence: 99%

Section: Governing Racialised Knowledge Deficitsmentioning

confidence: 99%

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

Fletcher

2020

Sociology Health & Illness

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“…Nevertheless, there has been and still is a lot of debate on how such an interaction should be driven. [93,94] From this perspective, it is one the most valuable merits of the past few years that active engagement between science and the public in the field of emerging biotechnologies has been intensified. [91,92] It is within this rationale that public participation in science is an essential part of both the embeddedness of science in a vibrant and deliberative democracy as well as integrative pathways of decision making.…”

Section: In Science We Trust? Public Perceptions Of Sbmentioning

confidence: 99%

“…[91,92] It is within this rationale that public participation in science is an essential part of both the embeddedness of science in a vibrant and deliberative democracy as well as integrative pathways of decision making. [93,94] From this perspective, it is one the most valuable merits of the past few years that active engagement between science and the public in the field of emerging biotechnologies has been intensified. Furthermore, a shift from a more reactive to a more active and prospective (anticipated) approach of mutual interaction can be observed.…”

Section: In Science We Trust? Public Perceptions Of Sbmentioning

confidence: 99%

(Re‐)Designing Nature? An Overview and Outlook on the Ethical and Societal Challenges in Synthetic Biology

Braun

Fernau

2019

Adv. Biosys.

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to provide an initial systematization of the ethical and socio-scientific debate on SB by structuring and categorizing issues that have been widely discussed and debated in recent years. The investigation included international ethical and societal research on SB, covering the period from January 2010 to December 2017. Even though we are aware that there have been several developments before it was referred to as SB, [6] this sample period was selected as the experiments of Craig Venter and his team in the year 2010 marked the birth of broader public and scientific attention to SB, as well as the rise and further establishment of SB as a distinct research discipline.We predefined five main fields of ethical research in order to map the scope of the respective debates. These fields were based on theoretical presuppositions informed by our preliminary theoretical and empirical research and the resulting experiences within the field of ethical and societal challenges of SB. The five fields are: 1) the definition and scope of possible applications; 2) questions of biosafety and -security; 3) the impact of SB on taken-for-granted cultural perceptions and values; 4) SB as a new mode of public participation in science; 5) issues of sustainable governance and Responsible Research and Innovation (RRI). With these five fields in mind, we searched for relevant articles on Scopus and PubMed. These are two of the largest international research databases, which cover a broad spectrum of ethical and socio-scientific work within the context of biotechnologies. The selected search term was "synthetic biology" in combination with several distinctive codes, which can be assigned to the aforementioned predefined main fields of ethical research ( Table 1).In general, our literature analysis has several methodological limitations. As it is not a comprehensive systematic literature review, it does not provide a broad set of quantitative data scrutinizing all debates, issues and questions on the ethical and societal challenges in SB. Nevertheless, our analysis provides a structured overview on and an initial systematization of the most relevant topics within the discussion on SB in recent years. Additionally, this article aims to provide an analysis and discussion of the current state of play of ethical and societal issues in SB.The first section is concerned with the question of a possible definition of SB and the issue of how we could describe and analyze its technological progress with regard to ethical and societal challenges. As one frequent debate of the last few This structured literature analysis aims to map the current, emerging, and predicted future of synthetic biology (SB) by putting the focus on the implied conceptual, societal, and ethical challenges. The central objective of the analysis is to provide an initial systematization of the ethical and socio-scientific debate on SB by structuring and categorizing widely discussed issues within the debate in recent years. Starting with the quest for possible definitions, issues ...

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“…The quotes hint at issues in informal science education (ISE) that echo those found in STEM more broadly. Regrettably, ISE institutions are struggling to appeal to diverse audiences or provide equitable experiences (Dawson , ; Feinstein ). For example, research has found that girls visit science museums less often than boys (Borun ; Hamilton et al.…”

Section: Introductionmentioning

confidence: 99%

Straight From the Girls: The Importance of Incorporating the EDGE Design Attributes at Exhibits

Garcia‐Luis¹,

Dancstep²

2019

Curator The Museum Journal

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This paper describes a follow‐up focus group study for the larger Exhibit Designs for Girls’ Engagement (EDGE) project. Grounded in Culturally Responsive Pedagogical theory (CRP), the project aimed to understand the relationship between female responsive designs and girls’ engagement at STEM exhibits. After developing a Female‐Responsive Design (FRD) Framework and conducting a large‐scale study to determine the most important design attributes for engaging girls at exhibits, the final step involved a qualitative investigation into those design attributes. Four focus groups with 22 girls aged 8–13 explored their exhibit experiences and discourse. Participants were videotaped while using four exhibits, half of which incorporated the EDGE Design Attributes. Focus group results replicate the previous quantitative study: participants had a largely positive response to the EDGE Design Attributes and evinced greater engagement when the attributes were present at exhibits. As expected, girls’ responsiveness to the design attributes varied— aligning with the CRP approach and highlighting the important fact that not all attributes will work for all girls. To share girls’ voices more broadly with practitioners we provide direct quotes for each design attribute. Finally, of the kinds of learning expressed, girls more often practiced scientific skills by repeating or varying activities at the EDGE exhibits. The results of this study, and the larger project, provide evidence that CRP works well when designing for females and serves as a valuable theory for creating museums that are truly inclusive.

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Reimagining publics and (non) participation: Exploring exclusion from science communication through the experiences of low-income, minority ethnic groups

Cited by 148 publications

References 43 publications

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

(Re‐)Designing Nature? An Overview and Outlook on the Ethical and Societal Challenges in Synthetic Biology

Straight From the Girls: The Importance of Incorporating the EDGE Design Attributes at Exhibits

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