Reinventing the wheel: The incidence and cost implication of duplication of effort in patient education materials development

Papadakos, Janet; Giannopoulos, Eleni; Forbes, Leta; Fox, Colleen; Jain, Priyanka; McBain, Sarah; Mittman, Nicole; Moody, Lesley; Samoil, Diana; McLeod, Robin S.

doi:10.1016/j.pec.2020.11.017

Cited by 6 publications

(3 citation statements)

References 19 publications

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“…67,69 One solution suggested by the study participants and their organization was to develop new patient education tools rather than adopting, adapting and using those already available. As highlighted by Papadakos et al, 80 a similar situation exists in cancer education programs, where significant duplication of efforts was found to influence costs and the quality of educational material. Creating a mechanism for sharing existing self-management programs, such as making material available on a website and providing clear incentives for using it, is essential and could result in significant cost savings.…”

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confidence: 74%

“…More centralized and coordinated efforts could also provide more opportunities for patient education experts and partners to review educational tools and ensure that they are adapted to the educational and health literacy levels of different patient groups and kept up-to-date. 80 Future work needs to focus on how to better coordinate these efforts at the policy level to avoid unnecessary duplication of COPD patient education tools and programs.…”

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confidence: 99%

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Challenges and Strategies for Improving COPD Primary Care Services in Quebec: Results of the Experience of the COMPAS+ Quality Improvement Collaborative

Vachon¹,

Giasson²,

Gaboury³

et al. 2022

COPD

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Management of chronic obstructive pulmonary disease (COPD) remains a challenge in primary care and multiple barriers can limit implementation of COPD guidelines. Since 2016, a quality improvement (QI) collaborative, called COMPAS+, has been implemented across the province of Quebec (Canada) to support improvement of chronic disease management in primary care. The aim of this study was to describe the main COPD quality problems reported by participating teams and the strategies they proposed and implemented to improve COPD primary care services in Quebec. Methods: Sixteen sites in four different regions of Quebec were engaged in the COMPAS+ intervention to improve primary care services delivered to people living with COPD. A total of 14 workshop reports, 31 QI action plans and 4 regional final reports underwent content analysis. Key COPD quality problems were first identified and, for each of them, root causes were classified according to the domains and constructs of the Consolidated Framework for Implementation Research. Proposed strategies were organized according to the intervention function types described in the Behavior Change Wheel. Results: Four key COPD quality problems were identified: 1) lack of organization/coordination of COPD services, 2) lack of screening services coordination, 3) lack of interprofessional communication and collaboration and 4) lack of treatment adherence. Main root causes explaining these quality gaps were 1) lack of awareness of COPD, 2) lack of professional knowledge, 3) lack of definition of professional roles, 4) lack of resources and tools for COPD prevention, diagnosis, and follow-up, 5) lack of communication tools, 6) lack of integration of the patient-as-partner approach, and 7) lack of adaptation of patient education to their specific needs. Multiple strategies were proposed to improve healthcare professionals' education and interprofessional collaboration and communication. Conclusion: QI collaborative activities can support achieving understanding of QI challenges healthcare organizations face to improve COPD services.

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confidence: 74%

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confidence: 99%

Challenges and Strategies for Improving COPD Primary Care Services in Quebec: Results of the Experience of the COMPAS+ Quality Improvement Collaborative

Vachon¹,

Giasson²,

Gaboury³

et al. 2022

COPD

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“…Leveraging existing resources will not only allow for timely provision of information and closing of existing collection gaps but could reduce duplicated efforts across centers and costs for patient education resource development. Our previous study reports that cancer centers spend significant amounts of time and money on patient education material development and that patient education programs could reduce some of these costs if they share resources developed by one another [ 44 , 45 ]. As such, connecting with patient education programs and libraries in other cancer centers may help librarians quickly address collection gaps.…”

Section: Discussionmentioning

confidence: 99%

Identifying gaps in consumer health library collections: a retrospective review

Giannopoulos

Snow

Manley

et al. 2021

jmla

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Background: The objective of this study was to determine if search request forms, which are used when a patron’s request for information cannot be fulfilled at the time of contact with the library team, can be used to identify gaps in consumer health library collections.Case Presentation: Search request forms were collected from 2013 to 2020 and analyzed independently by two reviewers. Search request forms were included if they were complete and contained a record of how the request was fulfilled. Descriptive statistics were used to summarize patron characteristics. Search request forms were iteratively coded to identify themes in the data and determine if resources provided to patrons could be found within the library collection. The study team subsequently reviewed search request forms to determine reasons for identified gaps. Two hundred and forty-nine search request forms were analyzed. Six main content themes were identified: 1) understanding the cancer diagnosis, 2) cancer treatments, 3) understanding disease prognosis, 4) support during and after treatment, 5) natural health products and therapeutic effects in oncology, and 6) research literature. The majority of patrons were patients (53%). Over half (60%) of the submitted search request forms reflected collection gaps, and many (16%) contained queries for information about rare cancer diagnoses. The main reason that queries could not be satisfied was that there was limited consumer health information on the requested topics (53%).Conclusions: Search request forms are a useful resource for assessing gaps in consumer health library collections.

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