Relation between functional ability and health-related quality of life of children with juvenile rheumatoid arthritis

Kwon, Hyo-Jeong; Kim, You Lim; Lee, Suk Min

doi:10.1589/jpts.27.837

Cited by 12 publications

(9 citation statements)

References 15 publications

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“…A study carried out in the UK by Shaw et al showed that the difficulties with regular physical activity constitute the greatest issue for half of the adolescents with JIA [7]. Kwon et al [15] reported a high negative correlation ( r = –0.74) between functional ability and overall HRQoL among adolescents with JIA.…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life in children with juvenile idiopathic arthritis – child’s and parent’s point of view

2016

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ObjectivesTo assess the quality of life (QoL) of children suffering from juvenile idiopathic arthritis (JIA) in Poland, to compare QoL of children with JIA and healthy children, and to compare children’s and parents’ assessments of QoL.Material and methodsThe KIDSCREEN-52 questionnaire (children’s and parents’ version) was used to assess the quality of life. The QoL in JIA patients and healthy peers from European and Polish reference groups was compared by the t-test. The Bland-Altman method was used to evaluate child and parent assessment agreement.ResultsEighty-nine questionnaires were obtained from children (median age: 14 years; 62% female; JIA history longer than 1 year) and 84 questionnaires from parents. The QoL of JIA patients was lower than in healthy peers from the European reference group in terms of physical well-being (p < 0.001), psychological well-being (p = 0.011), autonomy (p < 0.001) and social support and peers (p < 0.001). The QoL of JIA patients compared with the QoL of children from the Polish reference group was lower only in terms of physical well-being (p < 0.001), whereas it was higher in terms of moods and emotions (p = 0.023), parent relations and home life (p = 0.005) and financial resources (p < 0.001). In most terms the assessment performed by the parent was lower than the child’s. The most significant differences were observed for physical well-being (p < 0.001), psychological well-being (p = 0.016), and self-perception (p = 0.013).ConclusionsThe present study is the first assessment of QoL of JIA children in Poland. In our study the quality of life in JIA children was lower than in healthy peers. Discrepancies between the assessment of the child’s QoL performed by the child and the parent were found. Both assessments should be taken into account in clinical practice as well as in research studies.

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Section: Discussionmentioning

confidence: 99%

Health-related quality of life in children with juvenile idiopathic arthritis – child’s and parent’s point of view

2016

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“…Measuring age, gender, stroke severity, and baseline functional status, the study showed that health outcome and functional status improved for patients with rehabilitation after six months with a return to near pre‐stroke ability. Kwon, Kim, and Lee, in their qualitative and self‐assessment correlational study, reported the functional ability of patients diagnosed with juvenile rheumatoid arthritis (JRA) was statistically positively correlated ( r = 0.748, p = < .001) with health‐related quality of life. JRA is a long‐term, debilitating condition with physical impairments and symptoms interfering with the ability to function normally at an early age, resulting in a generally poor quality of life for children with JRA .…”

Section: Discussion Of Study Resultsmentioning

confidence: 99%

Functional mastery of health ownership: A model for optimum health

Donnelley

2017

Nurs Forum

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The aim of this paper is to introduce the Functional Mastery of Health Ownership (FMHO) model and to develop an operational definition of functional mastery as it applies to a positive health outcome for patients with chronic illness or an altered life situation. Daily functioning within the negative disease burden of chronic illness is the goal of individuals living within the constraints of morbidity. Functional mastery fosters health ownership and helps to predict successful control over life circumstances for optimum wellness within the parameters of the limitations of the effects of illness. Significant to nursing, the FMHO conceptual framework uses four foundational influences to assess a patient's ability to not only master function within the disease process, but also to sustain function and best health over time. The FMHO model provides a tool for practitioners to enable individualized care as patients move through the disease process and adapt to changes over time.

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“…A possible explanation for less attention paid by adolescents with JIA to their dental aesthetic could be due to some aspects related to their daily lives. Indeed, JIA patients usually present a lower physical well-being dimension associated with increased difficulties in performing regular physical activity as compared with healthy subjects [49,50], and this was highly correlated with a lower HRQoL among JIA adolescents [51]. Moreover, these patients are constantly treated for their chronic pathology and they also undergo regular medical consultations due to pain, physical disability and eye-related problems (uveitis) that negatively affect their emotions, their possibility to attend school and their daily activities [52].…”

Section: Discussionmentioning

confidence: 99%

The Psychological Impact of Dental Aesthetics in Patients with Juvenile Idiopathic Arthritis Compared with Healthy Peers: A Cross-Sectional Study

et al. 2019

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This study aimed to assess whether dental aesthetics had a different impact on the psychosocial domains of adolescents with juvenile idiopathic arthritis (JIA) as compared with healthy peers. Fifty JIA patients and eighty controls aged between 13 and 17 years were enrolled. The Psychosocial Impact of Dental Aesthetics Questionnaire (PIDAQ) was administered along with tools for the self-assessment of malocclusion and self-esteem. An objective evaluation of malocclusion severity was performed through a clinical evaluation with the Dental Aesthetic Index (DAI). The sample was divided according to the DAI stages of malocclusion severity; a two-way analysis of variance (ANOVA) was performed to assess whether there was a difference in the studied variables according to the malocclusion and the presence of JIA. The results showed no interaction between the malocclusion severity and the presence of JIA in all analyzed variables (all p > 0.05). According to the DAI stages, the Dental Self-Confidence domain of the PIDAQ and the Perception of Occlusion Scale showed statistically significant differences only within the controls (p = 0.027 and p = 0.014, respectively). Therefore, JIA adolescents seem to be less concerned about their dental aesthetics compared with healthy peers, and clinicians should take particular care when proposing orthodontic treatments aiming only to improve dental aesthetics.

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Relation between functional ability and health-related quality of life of children with juvenile rheumatoid arthritis

Cited by 12 publications

References 15 publications

Health-related quality of life in children with juvenile idiopathic arthritis – child’s and parent’s point of view

Health-related quality of life in children with juvenile idiopathic arthritis – child’s and parent’s point of view

Functional mastery of health ownership: A model for optimum health

The Psychological Impact of Dental Aesthetics in Patients with Juvenile Idiopathic Arthritis Compared with Healthy Peers: A Cross-Sectional Study

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