Relations Between Quality of Life, Family Factors, Adherence, and Glycemic Control in Pediatric Patients With Type 1 Diabetes Mellitus

Reid, Adam M.; Balkhi, Amanda M.; Amant, Jay St.; McNamara, Joseph P. H.; Silverstein, Janet H.; Navia, Laura; Geffken, Gary R.

doi:10.1080/02739615.2013.842455

Cited by 7 publications

(14 citation statements)

References 29 publications

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“…A negative relationship was detected in the study between HbA1c levels in adolescents in the 13–18 years group and their total PedsQL scores (Table 4). This result is in accordance with the results of other studies on similar populations [6], [7], [10]. The participation of parents in the management of diabetes increases the child's compliance with achieving metabolic control and self management.…”

Section: Discussionsupporting

confidence: 92%

“…[5], Reid et al. [6], and Lukács et al. [13], a significant relationship was found between the scale scores of the patients and their parents [5], [6], [13].…”

Section: Discussionmentioning

confidence: 99%

“…[6], and Lukács et al. [13], a significant relationship was found between the scale scores of the patients and their parents [5], [6], [13]. The parents may be more affected by the illness than the children themselves, and this illness may have great effects on their lives [11].…”

Section: Discussionmentioning

confidence: 99%

“…The concept of quality of life formed from the physical environment and a combination of social, emotional and school-related functions [5], [6], [7], [8], [9], [10], can be affected by factors such as the age of onset of diabetes [7], [11], and the child's age and sex [12]. The parents' views on illness, achieving glycemic control, and the lifestyle of their children is also very important [7], [11], [14], [15], [16].…”

Section: Introductionmentioning

confidence: 99%

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A determination of the quality of life of children and adolescents with type 1 diabetes and their parents

Özyazıcıoğlu

Avdal

Sağlam

2017

International Journal of Nursing Sciences

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Objective Type 1 diabetes is a chronic illness which can have a negative effect on the health care and development of children and can put their lives in danger. This descriptive study aimed to determine the quality of life and the factors affecting it of children and adolescents with type 1 diabetes using the Pediatric Quality of Life Inventory (PedsQL). Methods The study was conducted in the Child Endocrinology Unit of a University Hospital in Bursa, Turkey. Totally 64 children eight-12 years and 85 adolescents aged 13–18 with type 1 diabetes and their parents were recruited. HbA1c measurements were obtained from the records of the endocrinology clinicare, which were made once every three months, and the average of the last three measurements was taken in the study. The PedsQL was used to measure quality of life of the children and adolescents. The data was analyzed using SPSS version 20.0 and P < 0.05 was considered significant. The demographic data of the children and parents were analyzed using means and percentiles. Pearson's correlation analysis was used to assess the relationship between two averages. Results Of the sub-groups on the scale, affective and school function scores were somewhat low, and social function scores were high. The quality of life scores of the children and adolescents were found to correlate with those of their parents. A negative correlation was found between HbA1c levels and adolescent quality of life, a positive correlation was found between the child's age and the quality of life of the child and parents, and a negative correlation was found between the number of children in the family and the quality of life of the child and parents. Conclusions An evaluation of the quality of life after a diagnosis of diabetes can be used to assess the problems which may be faced by children and adolescents and to combat these problems.

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Section: Discussionsupporting

confidence: 92%

“…[5], Reid et al. [6], and Lukács et al. [13], a significant relationship was found between the scale scores of the patients and their parents [5], [6], [13].…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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A determination of the quality of life of children and adolescents with type 1 diabetes and their parents

Özyazıcıoğlu

Avdal

Sağlam

2017

International Journal of Nursing Sciences

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“…Independent-samples t-test analyses were conducted to place camp counselors' scores in the context of previously published norms for the measures administered. 19,20,24,27,30,32 All camp counselors were compared to healthy sameage individuals using the validation sample from the PedsQL Generic Core Scales. 24 In addition, counselors with T1DM were compared to a sample of youth with T1DM, ranging in age from 9 to 18 years, on the PedsQL diabetes-specific HRQOL measure.…”

Section: Exploratory Comparison To Normative Samplesmentioning

confidence: 99%

Diabetes Camp Counselors: An Exploration of Counselor Characteristics and Quality of Life Outcomes

et al. 2017

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Purpose The purpose of this study is to investigate the effect of volunteering at a diabetes camp on emerging adults with and without type 1 diabetes mellitus (T1DM). Methods Thirty counselors with and 22 without T1DM (19.07 ± 2.71 years old) volunteered at a 1-week T1DM camp in the northeastern United States. Counselors with T1DM had a range of self-reported A1C scores (5.8% or 39.9 mmol/mol to 14.0% or 129.5 mmol/mol). Self-report measures of quality of life, hope, and well-being were completed pre- and postcamp at 4 time points: 1 month before camp, arrival at camp, final day of camp, and 2 months postcamp. Open-ended questions regarding counselor experiences were analyzed to understand camp effect. Results There were significant differences between counselors' levels of trait hope in comparison to published norms. There were few clear differences in psychosocial outcomes pre- and postcamp; however, some increases in well-being were revealed in anticipation of camp. Major reasons for volunteering included assisting others and reciprocating or continuing a perceived positive experience as a camper. Conclusion No changes in psychosocial outcomes pre- to postcamp were observed. However, measures used in this study may be poorly defined for a counselor population. Further research on the characteristics of emerging adults who choose to be camp counselors is needed. By understanding the demographics of this population, health professionals can help target individuals to become camp counselors as well as enhance the camp experience to fit their developmental needs.

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Parenting behaviors and the well-being of children with a chronic physical condition.

Crandell¹,

Sandelowski

Leeman

et al. 2018

Families, Systems, & Health

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The results identify multiple, potentially modifiable parenting dimensions associated with well-being in children with a chronic condition, which could be targeted in developing family-focused interventions. They also provide evidence that research using Skinner's core dimensions could lead to conceptualization and study of parenting behaviors in ways that would enable comparison of parenting in a variety of health and sociocultural contexts. (PsycINFO Database Record

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Relations Between Quality of Life, Family Factors, Adherence, and Glycemic Control in Pediatric Patients With Type 1 Diabetes Mellitus

Cited by 7 publications

References 29 publications

A determination of the quality of life of children and adolescents with type 1 diabetes and their parents

A determination of the quality of life of children and adolescents with type 1 diabetes and their parents

Diabetes Camp Counselors: An Exploration of Counselor Characteristics and Quality of Life Outcomes

Parenting behaviors and the well-being of children with a chronic physical condition.

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