Relatives’ experiences of family members’ eating difficulties

Negotiating The Maze: Confronting Dysphagia Together With My Stroke-Afflicted Family Member

“…These caregivers assisted their dysphagic relatives with several daily activities, including feeding them via NG tube, accompanying them to dysphagia treatment classes and following the instructions of the speech-language therapists (SLTs) to practice swallowing. The current results differ from those of other studies, which focus on the role changes of family caregivers of dysphagic stroke patients on home-based responsibilities (Arai, 2005;Cameron, Naglie, Silver & Gignac, 2012;Johansson & Johansson, 2009;Nund et al, 2015;Wallengren, Friberg & Segesten, 2008). The data regarding the roles or life experiences of family caregivers of dysphagic stroke patients during hospitalization were limited.…”

“…However, family caregivers feel a heavy burden, especially in relation to food and meal preparation, when caring for dysphagia stroke survivors at home (Arai, 2005;Choi-Kwon, Kim, Kwon & Kim, 2005;Johansson & Johansson, 2009;Nund et al, 2015). Less research has been conducted on the effects of dysphagia among family caregivers of stroke survivors during the stroke recovery process in the hospital (Martino, Beaton & Diamant, 2009;Nund et al, 2015).…”

What is considered important for life balance? Similarities and differences among some working adults

“…This finding, i.e. that others' well-being affects one's life balance, might be an implicit justification for studies conducted by occupational therapists among relatives (25)(26)(27)(28)(29).…”

Recognizing new perspectives in eating difficulties following stroke: a concept analysis

“…In these instances the closest network of family and friends assists the patients in preserving dignity, security and wellbeing while eating [9,17,54]. Significant others of stroke victims may also be affected by the eating difficulties and experience alterations in their social lives, leading to isolation or feelings of helplessness [17,54]. Relatives are concerned about sustaining a normal standard of being together during mealtime and about regaining former closeness [54].…”