Relevance of the Aboriginal Children’s Health and Well-being Measure Beyond Wiikwemkoong

Young, Nancy L.; Wabano, Mary Jo; Blight, Shannon; Baker-Anderson, Karen; Beaudin, Roger; McGregor, Leslie F.; McGregor, Lorrilee; Burke, Tricia A.

doi:10.22605/rrh3941

Cited by 10 publications

(27 citation statements)

References 14 publications

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“…Two Indigenous-specific measures were identified; the Wicozani Instrument 67 and the ACHWM. 81–84 Two other papers referred to Indigenous theories, models or frameworks to varying degrees. 53 76 …”

Section: Resultsmentioning

confidence: 99%

“… 81–84 87 Additionally, this research was conducted in a culturally appropriate way, coled by a First Nation health director and an academic researcher who worked in collaboration with other Aboriginal leaders and Elders with the support of the Chiefs of Ontario. 81–84 87 …”

Section: Resultsmentioning

confidence: 99%

“…A reference list search of the eligible 543 papers led to a further 12 papers being examined for inclusion. After full-text review, a total of 40 papers were retained, reporting findings from 32 distinct studies 43–84…”

Section: Resultsmentioning

confidence: 99%

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Health-related quality of life measures used with Indigenous children/youth in the Pacific Rim: a scoping review

et al. 2023

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ObjectiveTo identify and describe (1) which health-related quality of life (HRQoL) measures have been used with Indigenous children/youth (aged 8–17 years) within the Pacific Rim; and (2) studies that refer to Indigenous health concepts in the use of child/youth HRQoL measures.DesignA scoping review.Data sourcesOvid (Medline), PubMed, Scopus, Web of Science and CINAHL were searched up until 25 June 2020.Eligibility criteriaEligible papers were identified by two independent reviewers. Eligible papers were written in English, published between January 1990 and June 2020 and included an HRQoL measure used in research with Indigenous child/youth populations (aged between 8 and 17 years) in the Pacific Rim region.Data extraction and synthesisData extracted included study characteristics (year, country, Indigenous population, Indigenous sample size, age group), HRQoL measure characteristics (generic or condition-specific measure, child or adult measure, who completed the measure(s), dimensions, items and response scale of measure) and consideration of Indigenous concepts (created for Indigenous population, modified for Indigenous population, validated for Indigenous population, reliability in Indigenous populations, Indigenous involvement, reference to Indigenous theories/models/frameworks).ResultsAfter removing duplicates, 1393 paper titles and abstracts were screened, and 543 had full-text review for eligibility. Of these, 40 full-text papers were eligible, reporting on 32 unique studies. Twenty-nine HRQoL measures were used across eight countries. Thirty-three papers did not acknowledge Indigenous concepts of health, and only two measures were specifically created for use with Indigenous populations.ConclusionsThere is a paucity of research investigating HRQoL measures used with Indigenous children/youth and a lack of involvement of Indigenous peoples in the development and use of HRQoL measures. We strongly recommend explicit consideration of Indigenous concepts when developing, validating, assessing and using HRQoL measures with Indigenous populations.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Health-related quality of life measures used with Indigenous children/youth in the Pacific Rim: a scoping review

et al. 2023

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“…In the hands of First Nations health leaders, the ACHWM process enables solutions to come from within each community (Saylor & Blackstock, 2005) and fosters empowerment (Chandler & Lalonde, 2009). The ACHWM is relevant to other communities (Baker-Anderson et al, 2015;Paquette, Boulard, Roy-Charland, & Young, 2014;Young et al, 2017) and has the support of the Chiefs of Ontario Band Council Resolution #13/15. The EQ score is the average of responses to 24 questions and is a marker of emotional health.…”

Section: The Aboriginal Children's Health and Well-being Measure (Achmentioning

confidence: 99%

“…It is completed independently by children (8 to 18 years), using Android tablets. The ACHWM is able to identify at-risk children (Young et al, 2017) in a way that is culturally appropriate and feasible in isolated Aboriginal communities (e.g., First Nations) and is tied to rapid triage and access to treatment resources. Previous testing of the ACHWM's screening and triage process took place from 2014 and 2015 Young, Wabano, Usuba, Trottier, & Burke, 2014).…”

Section: Introductionmentioning

confidence: 99%

A barrier-free health system for Indigenous Communities

Stewart¹,

Mashford‐Pringle²

2018

IJIH

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Preference-based measures of health-related quality of life in Indigenous people: a systematic review

Roy,

Neill,

Swampy

et al. 2023

Qual Life Res

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Purpose In many countries, there are calls to address health inequalities experienced by Indigenous people. Preference-based measures (PBMs) provide a measurement of health-related quality of life and can support resource allocation decisions. This review aimed to identify, summarize, and appraise the literature reporting the use and performance of PBMs with Indigenous people. Methods Eleven major databases were searched from inception to August 31, 2022. Records in English that (1) assessed any measurement property of PBMs, (2) directly elicited health preferences, (3) reported the development or translation of PBMs for Indigenous people, or (4) measured health-related quality of life (HRQL) using PBMs were included. Ethically engaged research with Indigenous people was considered as an element of methodological quality. Data was synthesized descriptively (PROSPERO ID: CRD42020205239). Results Of 3139 records identified, 81 were eligible, describing psychometric evaluation (n = 4), preference elicitation (n = 4), development (n = 4), translation (n = 2), and HRQL measurement (n = 71). 31 reported ethically engaged research. Reports originated primarily from Australia (n = 38), New Zealand (n = 20), USA (n = 9) and Canada (n = 6). Nearly all (n = 73) reported indirect, multi-attribute PBMs, the most common of which was the EQ-5D (n = 50). Conclusion A large number of recent publications from diverse disciplines report the use of PBMs with Indigenous people, despite little evidence on measurement properties in these populations. Understanding the measurement properties of PBMs with Indigenous people is important to better understand how these measures might, or might not, be used in policy and resource decisions affecting Indigenous people. (Funding: EuroQoL Research Foundation).

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Relevance of the Aboriginal Children’s Health and Well-being Measure Beyond Wiikwemkoong

Cited by 10 publications

References 14 publications

Health-related quality of life measures used with Indigenous children/youth in the Pacific Rim: a scoping review

Health-related quality of life measures used with Indigenous children/youth in the Pacific Rim: a scoping review

A barrier-free health system for Indigenous Communities

Preference-based measures of health-related quality of life in Indigenous people: a systematic review

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