Relevant forskning for hvem? Relevans for dem forskningen involverer gjennom utvidede muligheter for medvirkning

Kversøy, Kjartan Skogly

doi:10.23865/fof.v1.1220

Cited by 4 publications

(2 citation statements)

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“…Samhandlingen bidro til at vi sammen kunne foreslå endringer, korrigere kurs og ta nye veivalg underveis (175). Ressurspersonenes bidrag førte frem til bedre løsninger og nye muligheter, og de har på ingen måte bare bidratt med informasjon, de har også deltatt i viktige avgjørelser (198). Som medforskere ga de inngående dybdekunnskap på vegne av praksisfeltet som stimulerte til utvikling (65), og deres bidrag har styrket forskningsresultatene.…”

Section: Betydningen Av Aksjonsforskning For Avhandlingenunclassified

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Etikkdrøftinger i kommunale etikkomiteer – hva bidrar det til?

Karlsen¹,

Magelssen²,

Thoresen³

2022

NSF

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Introduction:In the municipal health service, demanding ethical challenges arise on a daily basis. It is advantageous to discuss these systematically. One measure that can be implemented to ensure that discussions are systematic is to establish ethics committees.Through a research project, four Norwegian municipalities received implementation support to establish ethics committees. The participating municipalities organized this work as local professional development projects and appointed two resource persons who were given central coordination and leadership roles. The same people also took roles as a leader and secretary of the ethics committees. The aim of the PhD project was to gain more knowledge about involved parties' experiences of participating in ethics discussions, and to study which key factors can influence establishment and operation of this ethics committees. Method:The research project has a qualitative design. 22 in-depth interviews have been conducted with healthcare personnel who approached the ethics committees with cases ("stakeholders"), six in-depth interviews with next-of-kin and three focus group interviews with resource persons in three different phases of the research project. In addition, five dialogue seminars were arranged with resource persons and researchers during the research period. The study also has an element of action research. The data material has been analyzed using a reflexive thematic content analysis.Result: Establishing municipal ethics committees is considered as useful, at both system and individual level. However, the establishment entailed a considerable amount of work and a great deal of responsibility for those who took on the role of resource person. At least two parties participated in the ethics discussions: Stakeholders, who were healthcare personnel, and ethics committee members. In some instances, next-of-kin also took part in ethics discussions, but no patients. Stakeholders and next-of-kin experienced that participating in ethics discussions gave them a great degree of support and security in demanding decisionmaking processes. The participants in the study learned that ethics discussions in the ethics committee gave increased competence, and that reflection on ethical issues contributed to better communication and interaction between those affected by the case. However, both stakeholders and next-of-kin missed good and tailored information before the meeting, what participation in an ethics committee discussion was, the purpose of the ethics discussion and

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Section: Betydningen Av Aksjonsforskning For Avhandlingenunclassified

“…Aksjonsforskningens demokratiske idealer ligger tett opp til diskursetikkens syn på samspill mellom deltakere i en diskurs. Tilnaermingen tilførte dermed et ytterligere perspektiv på veien mot å skape en felles forståelse av studienes forskningsresultat (198).…”

Section: Betydningen Av Aksjonsforskning For Avhandlingenunclassified

Etikkdrøftinger i kommunale etikkomiteer – hva bidrar det til?

Karlsen¹,

Magelssen²,

Thoresen³

2022

NSF

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Doing and Talking: People with Intellectual Disabilities’ Handling of Challenges of Remote Communication

Kversøy

Alhassan

Kellems

et al. 2021

International Journal of Disability, Development and Education

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This article is about the challenge of communication via smartphones and tablets by people with intellectual disabilities (ID). We will give special attention to persons that struggle with verbal communication. One of our co-researchers, the fourth author, has a severe ID. She cannot read, write or use voice assisted technology in any functional manner. As a result of many years of collaboration, and the need for solutions in connection with the challenges with COVID-19, she and her family have developed ways of remote communication that can be mastered both by the person with an ID and the majority (those without similar disabilities). We call it doing and talking. Successful remote communication not only depends on technology and how to use it, but also on communication strategies that both work for the person with an ID and the majority. It is often the case that people with ID are expected to learn the skills necessary to adapt to the majority. We will show that success is just as much a question of the majority learning new skills and strategies that can make real inclusion and collaboration possible.

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